Costs associated with resource utilization during the palliative phase of care: a Canadian perspective

Dumont, Serge; Jacobs, Philip; Fassbender, Konrad; Anderson, Donna; Turcotte, Véronique; Harel, François

doi:10.1177/0269216309346546

Cited by 75 publications

(116 citation statements)

References 28 publications

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“…However, fewer hospitalisations and hospital deaths are likely to have impacts for unpaid family and other carers (Social Care Institute for Excellence, 2013;Newman, 2013;Kelley et al, 2011;McCrone, 2009;Dumont et al, 2009). These may include negative impacts, for example, on carers' mental and physical health or their employment and finances (Funk et al, 2010) and on the total amount of unpaid care…”

Section: Teno Et Al 1997mentioning

confidence: 99%

The economic evidence for advance care planning: Systematic review of evidence

2015

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Section: Teno Et Al 1997mentioning

confidence: 99%

The economic evidence for advance care planning: Systematic review of evidence

2015

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“…[18] Studies that attempted to quantify the proportion of total care costs met by informal caregivers varied widely in their reported costs, with estimates of caregiving ranging from 26.6% -80% of total costs, again with wide variation across different countries. [31,18,34,35 ] It is also worth noting that cost estimates may vary depending on the method used to capture costs. Andersson (2002) reported that the cost of informal care calculated using a ed to 18% to 44% of the cost when a s used.…”

Section: Financial Costs Of Caregivingmentioning

confidence: 99%

Exploring the financial impact of caring for family members receiving palliative and end-of-life care: A systematic review of the literature

et al. 2013

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What is already known about the topic? To date, research regarding the economic dimension of palliative and end of life care provision has been relatively limited.  The importance of family care givers has long been recognised within palliative care.  T ly What this paper adds? Evidence relating to the costs and implications of caregiving is relatively limited.  The review identified 21 studies relating to the costs and implications of caregiving in a palliative care context  The financial costs of caring for someone at the end of life are substantial.  Financial costs can result in significant and multidimensional caregiver burden; various factors mediate the extent of financial burden. Implications for practice, theory or policy? This review identified a significant gap in the evidence base regarding the economic implications of providing care to a family member within a palliative care context.  Further research is required to explore these economic costs  Policy initiatives across much of the developed world to move the provision of palliative care from hospital to community settings should be mindful of the significant costs incurred by family caregivers.

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“…Canadian-based research led by Dumont has found that the welfare state, the family and not-for-pro t organizations sustained 71.3%, 26.6% and 1.6%, respectively, of all costs associated with end of life care [40]. A recent examination of Canada's Compassionate Care Bene t [41] also suggests that even where bene ts are available, family members can experience challenges in negotiating the system; this study found that family members were concerned about limitations of the bene t, such as strict eligibility criteria and the relative short duration of assistance.…”

Section: E Burdens Of Family Caregiving At the End Of Lifementioning

confidence: 99%

Burdens of Family Caregiving at the End of Life

Stajduhar¹

2013

CIM

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A patient's ability to be cared for and to die at home is heavily dependent upon the e orts of family caregivers. Considerable stresses are associated with such caregiving, including physical, psychosocial and nancial burdens. Research has shown that unmet needs and dissatisfaction with care can lead to negative outcomes for caregivers. While many family caregivers also report caregiving as life-enriching, some report that they would prefer alternatives to care at home, primarily because of these associated burdens. Little is known about which interventions are most e ective to support family caregivers ministering palliative care at home. Well-designed studies to test promising interventions are needed, followed by studies of the best ways to implement the most e ective interventions. Clinically e ective practice support tools in palliative home care are warranted to identify family caregiver needs and to ensure that patients and their family caregivers have a choice about where care is provided. The aging population, the growing number of Canadians diagnosed with chronic life-limiting illness, and the fact that a large majority of Canadians report that they prefer to spend their nal days at home [1,2,3] are converging to prompt government policy to press for more and better care of dying people in the community [4]. Patients' ability to be cared for and to die at home, however, is heavily dependent upon the e orts of family caregivers [5]. Even where patients receive home care services, the likelihood of dying at home is dramatically reduced if family caregivers are unable to provide care [6]. SPECIAL SERIES -END OF LIFE CAREAbout 80% of all care at home is provided by family caregivers [7]. Recent estimates suggest that Canada's 1.5 to 2 million family caregivers provide $25 to $26 billion worth of care annually and incur $80 million in out-of-pocket expenses annually [8]. Not only are family caregivers the 'invisible' providers within our health care system in Canada, but they have emerged as the principle source of support for patients who are dying at home.ough normally willingly undertaken [9], caregiving at the end of life entails considerable cost for family caregivers and the wider family, incurring emotional, social, physical and nancial costs [10,11]. e toll of care extends even into bereavement; people who are at least somewhat distressed by caregiving are 63% more likely to die in the four years following the patient's death than those who were not distressed or than the bereaved who did not give care [12]. Indeed, the Public Health Agency of Canada identi es the issue of 'seniors caring for seniors' as a public health concern in need of attention.Canada's Family Caregivers: Who Are ey? e vast majority of family caregivers in Canada are female (77%); about 70% are 45 years of age or older and about 25% are at least 65 years of age. us, women aged 45 and older comprise 51% of Canada's family caregiver population [13]. Consistent with these characteristics, Canada's family caregivers are most...

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Costs associated with resource utilization during the palliative phase of care: a Canadian perspective

Abstract: Such results provide a comprehensive picture of costs related to palliative care in Canada, by specifying the cost sharing between the PHCS, the family, and NFPO.

Cited by 75 publications

References 28 publications

The economic evidence for advance care planning: Systematic review of evidence

The economic evidence for advance care planning: Systematic review of evidence

Exploring the financial impact of caring for family members receiving palliative and end-of-life care: A systematic review of the literature

Burdens of Family Caregiving at the End of Life

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