Creating communities of care: Delineating work in the information-care relationship

McKenzie, Pamela J.; Dalmer, Nicole K.

doi:10.29173/cais939

Cited by 3 publications

(6 citation statements)

References 11 publications

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“…Other scholars highlighted the ways that care work and information work are both gendered and forms of labour even when information work as an element of caregiving is taken for granted and undervalued (McKenzie and Dalmer 2016). McKenzie and Dalmer cite Roma Harris' work as an important articulation of the information work performed by women when seeking health information on behalf of others.…”

Section: Ethics Of Care Emotional Labour and Information Workmentioning

confidence: 99%

FemiLISm now!: Identifying and exploring feminist theories and methods in CAIS/ACSI and ASIS&T conference proceedings, 1993-2021

2023

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This paper reports on a systematic literature review of CAIS/ACSI and ASIS&T conference proceedings to identify, analyze, and map the application of feminist theories, methods, and epistemologies across a sample of LIS research. We seek a better understanding of feminist theories in LIS to a) identify how/where it has been taken up (and not taken up); b) identify feminist research themes and influence over time and across subdomains; and c) to consider how to build on intersectional feminist theories and praxis in LIS to move toward a critical intersectional femiLISt movement that is embraced and embedded within our field.

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Section: Ethics Of Care Emotional Labour and Information Workmentioning

confidence: 99%

FemiLISm now!: Identifying and exploring feminist theories and methods in CAIS/ACSI and ASIS&T conference proceedings, 1993-2021

2023

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“…Issues commonly connected to caregiving responsibilities include depression and anxiety, high stress levels (Lee et al, 2021;Buteau-Poulin et al, 2020;Phillips et al, 2017), decreased social and professional life, and feelings of isolation, guilt, and entrapment (Gallagher et al, 2008). Many studies point to the consistently unmet needs of caregivers (Dalmer & McKenzie, 2016;Siklos & Kerns, 2006;Washington et al, 2011). The caregiver experience is often described as complex, intense (Barros et al 2017), and ever-changing, as are their information needs.…”

Section: Caregiver Burdenmentioning

confidence: 99%

“…According to the literature, a significant proportion of caregivers are female, "emphasizing the historical and cultural tradition of the woman in taking the main responsibility for care" (Barros et al, 2017, p. 3630). Despite societal changes that have expanded women's opportunities, they still take on the majority of "hidden work" in our society including serving as household information keepers and coordinators (Dalmer & McKenzie, 2016). Women are seen as naturally caring and tend to take on nurturing roles within their families.…”

Section: Outdated Gender Rolesmentioning

confidence: 99%

“…In addition to strong social networks, it is important for caregivers of disabled people to have a supportive health information network, including care organizations and healthcare professionals (Dalmer & McKenzie, 2016). Melvin et al (2018) describe this as "a two-way partnership" (p. 426) of sharing and receiving information.…”

Section: The Importance Of Networkmentioning

confidence: 99%

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Information Practices of Canadian Family Caregivers of People with Down Syndrome

Humes,

Brown

2023

Pathfinder

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This literature review was conducted as part of a research study, the purpose of which was to understand how Canadian family (unpaid) caregivers of people with Down syndrome (DS) find, understand, use, share, and manage information to meet their needs and the complex needs of those in their care. Unpaid caregivers are vital to society but are undervalued. The need for caregiving is growing as people with Down syndrome are living longer and are likely to experience dementia as they age; the responsibility for caregiving is being increasingly transferred to families. Information is crucial for empowering and enabling caregivers. In conducting this review, I found that caregiving information work is stressful, mostly done by women, requires robust networks, and links to troubling social and economic trends.

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“…This information is essential as it includes tools for coping, solving problems, and dealing with uncertainty through knowledge, support, and affirmation. 6 , 7…”

Section: Introductionmentioning

confidence: 99%

Exploring interface design to support caregivers’ needs and feelings of trust in online content

Hussein

Chauhan

Dalmer

et al. 2020

Journal of Rehabilitation and Assistive Technologies Engineerin

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Introduction Family caregivers of people living with dementia require a range of accurate, current, and reliable information throughout the care trajectory. Much of this information is available online, however it can be difficult for caregivers to identify and decide what content is relevant to them. Little is known about how online design cues impact family caregivers’ decision to assess how trustworthy information is and whether to engage with it. Methods Our exploratory research focused on the interface design of CARE-RATE, an online search tool intended to support more effective information searches for family caregivers seeking dementia care-related resources. Data from focus groups were coupled with design literature to inform the development of three mockups that were evaluated by seven dementia caregiver experts. Results Participants preferred a search bar design because of its simplicity, familiarity, and functionality. Design elements that impact trust included logos from reputable organizations, transparency of content author, and ratings from other caregivers. Conclusion Feelings of trust regarding information, including the ability to ascertain trustworthiness, is a major aspect of caregivers’ willingness to engage with online content. Transparency and familiarity appear to be key elements that impact caregivers’ trust in online information, which agrees with current web design research.

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Creating communities of care: Delineating work in the information-care relationship

Cited by 3 publications

References 11 publications

FemiLISm now!: Identifying and exploring feminist theories and methods in CAIS/ACSI and ASIS&T conference proceedings, 1993-2021

FemiLISm now!: Identifying and exploring feminist theories and methods in CAIS/ACSI and ASIS&T conference proceedings, 1993-2021

Information Practices of Canadian Family Caregivers of People with Down Syndrome

Exploring interface design to support caregivers’ needs and feelings of trust in online content

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