Critical care nurses’ experiences of caring for a dying child: A qualitative evidence synthesis

Grimston, Mitchell; Butler, Ashleigh E.; Copnell, Beverley

doi:10.1111/jan.13701

Cited by 11 publications

(17 citation statements)

References 41 publications

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“…Although nurses caring for dying children frequently identify the facilitation of making memories and creating mementos as one of their roles, nurses have numerous other important roles in guiding families through their child's death. 43 , 44 It may be that the actual offering of legacy activities has been delegated more completely to child life specialists, reflecting the growth of the child life profession since the prior time point. More study is needed to clearly delineate how other health care professionals (e.g., physicians, advanced practice nurses, social workers, music therapists, and chaplains) can support child life departments delivering this care at the bedside.…”

Section: Discussionmentioning

confidence: 99%

Long-Term Follow-Up of Legacy Services Offered by Children's Hospitals in the United States

Akard

Burley

Root

et al. 2021

Palliative Medicine Reports

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Background: Our 2012 survey of providers described legacy services offered at children's hospitals nationwide. Since then, the science related to legacy interventions has advanced, resulting in increased recognition of the importance of legacy services. Yet, legacy interventions offered by children's hospitals have not been recently described. Objective: To describe current legacy services offered by children's hospitals in the United States and compare with our previous results. Design: Descriptive cross-sectional design. Setting/Subjects: Participants included providers (N = 54) from teaching children's hospitals in the United States. Measurements: Electronic REDCap survey.Results: Similar to our prior research, 100% of respondents reported that their hospital offers legacy activities with 98% providing such services as a standard of care. Notable increased numbers of children are participating in legacy interventions compared with the previous study, now with 40% (compared with 9.5% previously) of participants reporting >50 children per year. Patients being offered legacy activities include neonatal intensive care unit (NICU) patients, those with life-threatening traumatic injuries, those on life support for extended periods of time, and those referred to hospice. Although not statistically significant, the percentage of hospitals offering legacy-making to children with cancer, neurodegenerative diseases, and life-threatening illnesses is slightly increased from the prior time point. Conclusions: Children across developmental stages and illness contexts and their families can benefit from both the memories generated through the process of legacy services and the subsequent tangible products. Providers should continue to offer legacy opportunities to seriously ill children and their families across a wide array of settings and illness contexts.

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Section: Discussionmentioning

confidence: 99%

Long-Term Follow-Up of Legacy Services Offered by Children's Hospitals in the United States

Akard

Burley

Root

et al. 2021

Palliative Medicine Reports

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“…Strategies that HCPs could employ in order to aid parental preparedness, including discussing end-of-life topics, have been proven difficult for them due to a lack of confidence [28][29][30] and the emotional demands. 12,31 However, studies have shown that parents would be open to and value conversations on end-of-life topics. 32,33 Our results show that, at the start of their career, HCPs experienced 'cold feet' addressing end-of-life topics, due to a lack of education and training.…”

Section: Discussionmentioning

confidence: 99%

“…Studies identifying HCPs' support practices aimed at parental grief prior to the loss, are mostly limited to inventory surveys, 10,11 or experiences in critical care. 12 These studies predominantly focus on concrete interventions, while the goals and strategies underlying the HCPs provision of care remain unclear. Therefore this study aims to achieve a thorough understanding of the HCPs' intentions and experiences with providing pre-loss care aimed at supporting parental grief during the child's end-of-life.…”

Section: Introductionmentioning

confidence: 99%

Health Care Professionals' Experiences With Preloss Care in Pediatrics: Goals, Strategies, Obstacles, and Facilitators

Kochen

Boelen

Teunissen

et al. 2021

Journal of Pain and Symptom Management

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“…Participants were eligible if they met the following criteria: (a) ≥18 years old; and (b) worked for 12 months or less since graduation as a registered nurse. Those who worked in paediatric, infant, or midwifery units were excluded as coping with the death of a dying child or infant was considered different from adult contexts, especially for new graduate nurses (Grimston et al., 2018; Meyer, 2011).…”

Section: The Studymentioning

confidence: 99%

New graduate nurses' coping with death and the relationship with death self‐efficacy and death anxiety: A multicentre cross‐sectional study

Zheng

Bloomer

Guo

et al. 2020

Journal of Advanced Nursing

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Aims: To examine new graduate nurses' perceptions of competency on coping with dying and death and the relationship with death self-efficacy and death anxiety. Design: A multicentre, cross-sectional study. Methods: Three hundred and forty new graduate nurses from five metropolitan hospitals were recruited between August-November 2018. Participants completed the Coping with Death Scale, Death Self-efficacy Scale, and Death Anxiety Scale. Results: Two hundred and ninety-eight new graduate nurses responded to the survey. The mean score of coping with death and death self-efficacy was 120.11 (SD 24.59), 259.11 (SD 57.70) respectively. 88.9% feared a painful death, 81.5% were particularly afraid of getting cancer, and 80.2% were afraid of death. There was a positive relationship between coping with death and death self-efficacy, a negative relationship between coping with death and death anxiety and a negative correlation between death self-efficacy and death anxiety. Five variables, including death selfefficacy, three dimensions of death anxiety including emotion, cognition with life and death and stress and distress and religion in total accounted for 46.9% of the variance of coping with death. Conclusion: New graduate nurses are at a disadvantage in terms of death self-efficacy, less well prepared in coping with death and are more anxious about death. Impact: It is imperative for educational institutions to support new graduate nurses with pre-licensure learning related to patient death issues and care. Organizations are also strongly advised to support new graduate nurses to cope with patient death through development of culturally sensitive interventions and guidelines, which may in turn assist with decreasing new graduate nurses' risk of burnout and increasing their longevity in the profession.

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Critical care nurses’ experiences of caring for a dying child: A qualitative evidence synthesis

Cited by 11 publications

References 41 publications

Long-Term Follow-Up of Legacy Services Offered by Children's Hospitals in the United States

Long-Term Follow-Up of Legacy Services Offered by Children's Hospitals in the United States

Health Care Professionals' Experiences With Preloss Care in Pediatrics: Goals, Strategies, Obstacles, and Facilitators

New graduate nurses' coping with death and the relationship with death self‐efficacy and death anxiety: A multicentre cross‐sectional study

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