Cultural humility and end‐of‐life communication with people with advanced liver disease

Woodrell, Christopher D.; Patel, Arpan; Wilder, Julius; Sundaram, Vinay; Chung, Raymond T.; Ufere, Nneka N.

doi:10.1002/cld.1225

Cited by 4 publications

(2 citation statements)

References 9 publications

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“…Descriptions of cultural humility provided by allied health providers in this study aligned with common definitions [ 33 , 57 ], despite many reporting that they did not receive education or training on cultural humility in their health profession’s educational curriculum. This finding reaffirms the need for cultural humility to be effectively integrated into pre-licensing education curriculums [ 25 , 73 ].…”

Section: Discussionmentioning

confidence: 68%

“…Cultural humility has been promoted by allied health providers’ professional organizations [ 52 – 54 ] and organizations in palliative and EOL care [ 55 , 56 ] as an essential approach. This approach may help optimize palliative care by ensuring healthcare providers critically examine their awareness and understanding of a patient’s cultural beliefs and practices and encourage collaboration to determine their needs and preferences for EOL planning, decisions and goals [ 50 , 57 – 60 ]. Continuous consultation with patients and families, oneself, and other healthcare providers may help providers assess the cultural dimensions of the patient’s experience, manage power dynamics, and ensure patients are equal partners in the therapeutic alliance [ 4 , 46 , 47 , 51 , 61 ].…”

Section: Introductionmentioning

confidence: 99%

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A qualitative exploration of allied health providers’ perspectives on cultural humility in palliative and end-of-life care

et al. 2023

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Background Cultural factors, including religious or cultural beliefs, shape patients’ death and dying experiences, including palliative and end-of-life (EOL) care preferences. Allied health providers must understand their patients’ cultural preferences to support them in palliative and EOL care effectively. Cultural humility is a practice which requires allied health providers to evaluate their own values, biases, and assumptions and be open to learning from others, which may enhance cross-cultural interactions by allowing providers to understand patients’ perceptions of and preferences for their health, illness, and dying. However, there is limited knowledge of how allied health providers apply cultural humility in palliative and EOL care within a Canadian context. Thus, this study describes Canadian allied health providers’ perspectives of cultural humility practice in palliative and EOL care settings, including how they understand the concept and practice of cultural humility, and navigate relationships with patients who are palliative or at EOL and from diverse cultural backgrounds. Methods In this qualitative interpretive description study, remote interviews were conducted with allied health providers who currently or recently practiced in a Canadian palliative or EOL care setting. Interviews were audio-recorded, transcribed, and analyzed using interpretive descriptive analysis techniques. Results Eleven allied health providers from the following disciplines participated: speech-language pathology, occupational therapy, physiotherapy, and dietetics. Three themes were identified: (1) Interpreting and understanding of cultural humility in palliative and EOL care (i.e., recognizing positionality, biases and preconceived notions and learning from patients); (2) Values, conflicts, and ethical uncertainties when practicing cultural humility at EOL between provider and patient and family, and within the team and constraints/biases within the system preventing culturally humble practices; (3) The ‘how to’ of cultural humility in palliative and EOL care (i.e., ethical decision-making in palliative and EOL care, complexities within the care team, and conflicts and challenges due to contextual/system-level factors). Conclusions Allied health providers used various strategies to manage relationships with patients and practice cultural humility, including intra- and inter-personal strategies, and contextual/health systems enablers. Conflicts and challenges they encountered related to cultural humility practices may be addressed through relational or health system strategies, including professional development and decision-making support.

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Section: Discussionmentioning

confidence: 68%