Cystic Fibrosis in Adult Life: A Study of Coping Patterns

Patients' Knowledge of Cystic Fibrosis: Genetic Determinism and Implications for Treatment

“…Looking at the levels of knowledge that patients hold is important in its own right because inadequate or inaccurate knowledge about CF, and its related treatments, may result in unintentional poor adherence following the assumption that if patients have limited knowledge and understanding of the seriousness of their condition, they are less likely to follow treatment. Pinkerton et al (1985) found that those with less interest in, or understanding of, CF were likely to be admitted to hospital more frequently.…”

Health-related quality of life in adults with cystic fibrosis: The role of coping

“…The CF literature consists of several descriptive studies of the ways in which people cope [31][32][33][34][35][36][37] but only two German studies have attempted to evaluate the extent to which coping explains patient-reported HRQoL in CF. Staab et al [35] administered a generic German HRQoL questionnaire ('Every day Life') and coping scale (Freiburg Questionnaire of Coping with Disease) to 89 adolescents and adults with CF.…”

Self-Efficacy, Pulmonary Function, Perceived Health and Global Quality of Life of Cystic Fibrosis Patients

“…According to Holman and Lorig (1992), high and increasing levels of perceived self-efficacy in coping with the consequences of chronic disease are associated with improvements in symptoms, in physical and emotional well-being, and in social activity. Pinkerton et al (1985) found substantial differences between a sample of coping and noncoping adult CF patients. 'Non-copers' had twice as many hospital admissions as 'copers' over a year, even though their ventilatory function was better.…”