Data privacy against innovation or against discrimination?: The case of the California Consumer Privacy Act (CCPA)

Baik, Jeeyun

doi:10.1016/j.tele.2020.101431

Cited by 47 publications

(20 citation statements)

References 21 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The Health Insurance Portability and Accountability Act of 1996 is known as HIPAA that outlines the legal use and disclosure of health information [25]. The European General Data Protection Regulation (GDPR) [26] and the California Consumer Privacy Act (CCPA) [27] are two data protection laws that use a similar conceptual approach to permit and prohibit the use of personal information and rights and obligations of access and control [28]. HIPAA and GDPR contain similar patterns for patient and users consent for use or disclosure and rules to analysed ensure that individuals are notified if any data breach occurs [28].…”

Section: Relevant Studiesmentioning

confidence: 99%

A Conceptual Framework to Ensure Privacy in Patient Record Management System

Semantha¹,

Azam

Shanmugam

et al. 2021

IEEE Access

View full text Add to dashboard Cite

show abstract

Section: Relevant Studiesmentioning

confidence: 99%

A Conceptual Framework to Ensure Privacy in Patient Record Management System

Semantha¹,

Azam

Shanmugam

et al. 2021

IEEE Access

View full text Add to dashboard Cite

show abstract

“…We assumed that trials in the US are subject to CCPA, as many organizations have implemented CCPA for all US customers, not just those in California. 17,18 Analysis of trials according to the US states in which they occurred is provided in the Appendix.…”

Section: Methodsmentioning

confidence: 99%

Clinical trials are moving to countries with fewer data protections

Yom-Tov

Ofran

2022

Preprint

View full text Add to dashboard Cite

Background: The European Union implemented data privacy laws in mid-2018 and the state of California enacted a similar law several weeks later. These regulations affect medical data collection and analysis. Methods: Here we investigate the effect of these laws on clinical trials through analysis of clinical trials recorded on ClinicalTrials.gov, the World Health Organization's International Clinical Trials Registry Platform and scientific papers describing clinical trials. Results: The number of phase 1 and 2 trials in countries not adhering to data privacy laws rose significantly after implementation of these laws. The largest rise occurred in countries which are less free, as indicated by the negative correlation (-0.48, p=0.008) between the civil liberties freedom score of countries and the increase in the number of trials. This trend was not observed in countries adhering to data privacy laws nor in the paper publication record. Conclusions: The implementation of data privacy laws is associated with a move of clinical trials to countries where people have fewer protections for their data.

show abstract

“…Previous studies on the EU case suggest that the EU citizens' knowledge of data protection policies varied across the EU countries despite its longer history of strong data privacy regulations (Hallinan et al, 2012;Sarikakis & Winter, 2017). The lack of the general public's awareness of data privacy regulations was frequently mentioned by consumer advocates at the CCPA public forums as well (Baik, 2020).…”

Section: Methodsmentioning

confidence: 99%

Data privacy and political distrust: corporate ‘pro liars,’ ‘gridlocked Congress,’ and the Twitter issue public around the US privacy legislation

Baik

2020

Information, Communication & Society

Self Cite

View full text Add to dashboard Cite

This study explores how emerging US data privacy regulations are discussed at state and federal levels, examining Twitter discourse around Senate public hearings on data privacy and public forums on the California Consumer Privacy Act (CCPA). The recent legal steps reflect growing public outcry over corporate data misuses and lack of appropriate legislation. The findings suggest that the issue public of Twitter users in this study largely considered corporations and the government as untrustworthy actors for privacy legislation. The political distrust was raising doubts over regulatory capture and if a future US federal privacy law will be weaker than state laws (e.g., CCPA) while overriding them. The study explores implications of the findings on the current deadlock over the state preemption clause in developing a comprehensive federal privacy law. I argue that the emerging regulatory efforts on data privacy may not be effective unless the public trust in institutions is regained in the US and that the continuing absence of a federal law amid the political distrust can leave people with limited individual privacy strategies as a result.

show abstract

Data privacy against innovation or against discrimination?: The case of the California Consumer Privacy Act (CCPA)

Cited by 47 publications

References 21 publications

A Conceptual Framework to Ensure Privacy in Patient Record Management System

A Conceptual Framework to Ensure Privacy in Patient Record Management System

Clinical trials are moving to countries with fewer data protections

Data privacy and political distrust: corporate ‘pro liars,’ ‘gridlocked Congress,’ and the Twitter issue public around the US privacy legislation

Contact Info

Product

Resources

About