Decision aid prototype development for parents considering adenotonsillectomy for their children with sleep disordered breathing

Maguire, Erin; Hong, Paul; Ritchie, Krista; Archibald, Karen; Chorney, Jill

doi:10.1186/s40463-016-0170-2

Cited by 20 publications

(25 citation statements)

References 38 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…First, participants preferred the presentation of DAv2014, suggesting that appealing visuals (esthetics, colors, fonts) favoured acceptability and usability of a DA. This is consistent with other literature relating to evaluation of DAs, where authors report suggested changes to be made to their DAs in terms of font size (43), background colours (43) and colors in general (43)(44)(45)(46). According to these studies, participants dislike colors that are "flat", "uninteresting" or "somber".…”

Section: Discussionsupporting

confidence: 90%

Desirable features in a decision aid for prenatal screening – what do pregnant women and their partners think? A mixed methods pilot study

Agbadjé

Rahimi

Côté

et al. 2020

Preprint

View full text Add to dashboard Cite

Background To help pregnant women and their partners make informed value-congruent decisions about Down syndrome prenatal screening, our team developed two successive versions of a decision aid (DAv2017 and DAv2014). We aimed to assess pregnant women and their partners’ perceptions of the usefulness of the two DAs for preparing for decision making, their relative acceptability and their most desirable features. Methods This is a mixed methods pilot study. We recruited participants of study (women and their partners) when consulting for prenatal care in three clinical sites in Quebec City. To be eligible, women had to: (a) be at least 18 years old; (b) be more than 16 weeks pregnant; or having given birth in the previous year and (c) be able to speak and write in French or English. Both women and partners were invited to give their informed consent. We collected quantitative data on the usefulness of the DAs for preparing for decision making and their relative acceptability. We developed an interview grid based on the Technology Acceptance Model and Acceptability questionnaire to explore their perceptions of the most desirable features. We performed descriptive statistics and deductive analysis. Results Overall, 23 couples and 16 individual women participated in the study. The majority of participants were between 25 and 34 years old (79% of women and 59% of partners) and highly educated (66.7% of women and 54% of partners had a university-level education). DAv2017 scored higher for usefulness for preparing for decision making (86.2 ± 13 out of 100 for DAv2017 and 77.7 ± 14 for DAv2014). For most dimensions, DAv2017 was more acceptable than DAv2014 (e.g. the amount of information was found “just right” by 80% of participants for DAv2017 against 56% for DAv2014). However, participants preferred the presentation and the values clarification exercise of DAv2014. In their opinion, neither DA presented information in a completely balanced manner. They suggested adding more information about raising Down syndrome children, replacing frequencies with percentages, different values clarification methods, and a section for the partner. Conclusions A new user-centered version of the prenatal screening DA will integrate participants’ suggestions to reflect end users’ priorities.

show abstract

Section: Discussionsupporting

confidence: 90%

Desirable features in a decision aid for prenatal screening – what do pregnant women and their partners think? A mixed methods pilot study

Agbadjé

Rahimi

Côté

et al. 2020

Preprint

View full text Add to dashboard Cite

show abstract

“…A steering committee, made up of clinicians, researchers, knowledge translation experts, and parents of pediatric patients, directed the development of the DA. The specific information within the DA was based on what was deemed important by the steering committee and was populated with information from a scoping literature review . Although the development process was laborious, the integration of stakeholder perspectives throughout has been shown to increase the likelihood that these tools will be adopted into clinical practice.…”

Section: Discussionmentioning

confidence: 99%

“…The specific information within the DA was based on what was deemed important by the steering committee and was populated with information from a scoping literature review. 18 Although the development process was laborious, the integration of stakeholder perspectives throughout has been shown to increase the likelihood that these tools will be adopted into clinical practice. Additional stages upon completion of the IPDAS framework include assessing the effectiveness of the DA through a rigorous randomized controlled trial and evaluating dissemination methods to facilitate implementation into routine clinical practice.…”

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

Decision aid prototype for treatment of pediatric sleep disordered breathing: A randomized pilot study

2018

Self Cite

View full text Add to dashboard Cite

Objectives 1) To examine the feasibility and usability of a decision aid prototype (DA) for pediatric obstructive sleep apnea (OSA). 2) to estimate parameters for a future randomized controlled trial. Study Design Multicenter randomized pilot trial. Methods Ninety‐nine parents of children ( < 6 years of age) undergoing consultation for adenotonsillectomy for sleep‐disordered breathing were prospectively enrolled. Families were randomly assigned to receive the DA or to follow standard care procedures. All consultations were video‐recorded and coded with the observing patient involvement in decision making (OPTION) instrument. Following the consultation, parents completed the Decisional Conflict Scale (DCS) and Shared Decision‐Making Questionnaire (SDM‐Q‐9), whereas otolaryngologists completed the physician version (SDM‐Q‐Doc). A subset of parents and surgeons were interviewed to assess the usability of the DA. Results: Overall, a significantly negative correlation between DCS and SDM‐Q‐9 was observed (P < 0.001). Interviews showed that parents found the DA helpful but wanted more time to read and contemplate the information. Both parents and surgeons indicated that instructions on how to use the DA would be beneficial. For parents receiving the DA, the mean total OPTION score was 13.83 out of 40 (standard deviation 5.24), compared to 11.95 (standard deviation 5.21) in those not receiving the DA (P = 0.11). There were no significant differences in the decisional conflict or shared decision making when using the DA. Conclusion: The DA was feasible but used differently among surgeons. The need to improve SDM techniques was suggested by both surgeons and parents. Future studies training otolaryngologists on effective SDM techniques and how to appropriately utilize decision aids may improve SDM for pediatric OSA. Level of Evidence 1b Laryngoscope, 129:229–234, 2019

show abstract

“…A decision aid example is provided in Figure 1 . 21 It contains not only a brief description of pediatric obstructive sleep apnea, management options, and the associated risks and benefits but also a section to help clarify family values. Employing option grids and decision aids before, during, and/or after appointments has demonstrated tangible improvements in informed consent, health-related quality of life, patient knowledge, and decisional conflict.…”

Section: How Do Option Grids and Decision Aids Relate To Sdm?mentioning

confidence: 99%

Evidence‐Based Medicine in Otolaryngology Part 7: Introduction to Shared Decision Making

Ikeda

Hong

Ishman

et al. 2018

Otolaryngol.--head neck surg.

Self Cite

View full text Add to dashboard Cite

Shared decision making (SDM) is a collaborative process in which patients, families, and clinicians develop a mutually agreed upon treatment plan when more than one reasonable treatment option exists. This cooperative engagement fosters improvements in patient satisfaction, disease management, and outcomes and also has the capacity to promote evidence-based care. Thus, this seventh installment of our Evidence-Based Medicine in Otolaryngology series focuses on SDM. We introduce SDM, including its potential to reduce decisional conflict and decisional regret, when it should be used, its potential benefits, barriers to implementation, and its role in the management of chronic disease and otolaryngological conditions.

show abstract

Decision aid prototype development for parents considering adenotonsillectomy for their children with sleep disordered breathing

Cited by 20 publications

References 38 publications

Desirable features in a decision aid for prenatal screening – what do pregnant women and their partners think? A mixed methods pilot study

Desirable features in a decision aid for prenatal screening – what do pregnant women and their partners think? A mixed methods pilot study

Decision aid prototype for treatment of pediatric sleep disordered breathing: A randomized pilot study

Evidence‐Based Medicine in Otolaryngology Part 7: Introduction to Shared Decision Making

Contact Info

Product

Resources

About