Decreasing the Burden in Families Caring for a Relative With a Dementing Illness

Kahan, Jason S.; Kemp, Bryan J.; Staples, Fred R.; Brummel‐Smith, Kenneth

doi:10.1111/j.1532-5415.1985.tb01774.x

Cited by 109 publications

(53 citation statements)

References 13 publications

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“…This might be due to the fact that more highly educated caregivers have better social and financial support and, therefore, are more able to adapt to the stress. The study of Kahan et al [29] also showed that knowledge about dementia is an important factor for decreasing the caregivers' burden. Therefore, caregivers with lower educational levels should have more support.…”

Section: Discussionmentioning

confidence: 99%

The Caregiving Burden Scale among Chinese Caregivers of Alzheimer Patients

Fuh

Wang

Liu

et al. 1999

Dement Geriatr Cogn Disord

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From April 1996 to January 1997, a total of 76 Alzheimer’s disease (AD) patients and their caregivers were recruited for participation in a comprehensive assessment at the Veterans General Hospital-Taipei, a 2,198-bed tertiary-care teaching hospital in Taipei, Taiwan. The AD patients responded to the Chinese version of the Cognitive Abilities Screening Instrument. Primary caregivers rated the patients using the Symptom Check List-90 (SLC-90) and the Revised Memory and Behavior Problems Checklist and then rated themselves with the caregiving burden scale (CBS), coping strategies scale and the short version of the Geriatric Depression Score (GDS-S). The internal consistency of the CBS, as assessed by Cronbach’s α, was 0.849. The correlations between the CBS, SCL-90 and GDS-S ranged from 0.435 to 0.698. The CBS scores increased with disease progression and were higher among spouse caregivers than adult children caregivers. Multiple-regression analysis revealed that caregivers with higher CBS scores were more likely to have lower education levels and to use the meaning subscales of coping strategies, and that these caregivers’ patients had greater disruptive behavior and were older (R² = 0.727, p = 0.001). The current study establishes the reliability and validity of the Chinese version of the CBS for assessment of Chinese caregivers of AD patients.

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Section: Discussionmentioning

confidence: 99%

The Caregiving Burden Scale among Chinese Caregivers of Alzheimer Patients

Fuh

Wang

Liu

et al. 1999

Dement Geriatr Cogn Disord

View full text Add to dashboard Cite

show abstract

“…This might be due to the fact that more highly educated caregivers have more realistic expectations about the course of the disease as well as better social and financial support and, therefore, can adapt better to the stress and changing care needs of the person with AD. Also, knowledge about dementia and its management is an important factor for decreasing caregiver burden [31] . Therefore, caregivers with lower educational levels should be targeted to receive closer monitoring and support programs by governmental agencies and nongovernmental organizations.…”

Section: Discussionmentioning

confidence: 99%

Impact on Health-Related Quality of Life and Perceived Burden of Informal Caregivers of Individuals with Alzheimer’s Disease

Serrano‐Aguilar¹,

López-Bastida²,

Yanes-Lopez³

2006

Neuroepidemiology

152

138

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This study assessed the impact on health-related quality of life (HRQL) and the perceived burden of informal caregivers of individuals with Alzheimer’s disease (AD) on the Canary Islands (Spain). We utilized a multicenter, cross-sectional design, based on questionnaire responses of 237 informal caregivers of AD patients. Patients were classified according to the degree of severity utilizing the Clinical Dementia Rating Scale. Sociodemographic, HRQL (EQ-5D) and functional dependency data were gathered together with the degree of caregiver burden. Caregivers had a higher frequency of problems than did the general population for every EQ-5D dimension. Caregivers’ HRQL was inversely associated with the subject dependency level and caregiver age. HRQL was higher for more educated caregivers. Variables with a negative and/or significant effect on caregivers’ HRQL were high feelings of burden, more committed time to care, and older age. The caregiver burden quantified by the Zarit scale showed 83.3% of caregivers with a high level of burden.

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“…Additionally, mental state and language were closely related to strain and these cognitive hnpairments were related to more emotional than practical aspects of caregiver strain. Some carers expressed a need for stroke carer support groups where they would be able to taUc to other people in the same situation: Support groups have shown to provide information and to promote interaction with others facmg the same situation (Barnes, 1981;Bishop et al, 1986;Kanan and Kempt, 1985;WUson, 1985) and they thrive on individuals sharing their personal experiences (WUson, 1985).…”

Section: Emotional Interventionmentioning

confidence: 99%

Caregiver strain in spouses of stroke patients

Blake¹,

Lincoln²,

Clarke

2003

Clin Rehabil

107

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Objective: To test the ability of a previously generated logistic regression model to predict caregiver strain from carer mood, negative affectivity and perceived patient functional ability. Design: Postal prospective survey. Setting: Spouses of community-residing patients identified from hospital stroke registers. Method: Spouses were assessed at three and six months after stroke. A previously derived equation was used to make predictions at three months of their level of strain at six months, which were compared with observed outcomes. Measures: Spouses were asked to complete the Caregiver Strain Index (CSI), the General Health Questionnaire (GHQ-12), the Positive and Negative Affectivity Schedule (PANAS) and to assess patients' independence in activities of daily living on the Extended Activities of Daily Living Scale (EADL). Results: Of 409 stroke patients, 276 had an identifiable co-resident spouse and 116 (42%) completed the measures. At three months after stroke, 39 carers (34%) were under significant strain with 40 (35%) under strain at six months. The predictive model using the GHQ-12, PANAS and EADL at three months was 78% accurate in predicting levels of caregiver strain at six months. Conclusion: Carers at risk of later strain could be identified for further followup. Services to provide emotional support to carers might be effective in the reduction of carer strain.

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Decreasing the Burden in Families Caring for a Relative With a Dementing Illness

Cited by 109 publications

References 13 publications

The Caregiving Burden Scale among Chinese Caregivers of Alzheimer Patients

The Caregiving Burden Scale among Chinese Caregivers of Alzheimer Patients

Impact on Health-Related Quality of Life and Perceived Burden of Informal Caregivers of Individuals with Alzheimer’s Disease

Caregiver strain in spouses of stroke patients

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