Defining the concept of family caregiver burden in patients with schizophrenia: a systematic review protocol

Tamizi, Zahra; Fallahi-Khoshknab, Masoud; Dalvandi, Asghar; Shahboulaghi, Farahnaz Mohammadi; Mohammadi, Eesa; Bakhshi, Enayatollah

doi:10.1186/s13643-019-1182-6

Cited by 27 publications

(31 citation statements)

References 32 publications

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“…Because there is a deep-rooted family collectivism in China’s rural areas, when a person is sick, the whole family are likely to unite to take care of the patient [ 24 ]. Some studies have shown that the burden of rural families is negatively correlated with the function of community care network, family members of patients may encounter various difficulties in providing care for patients with mental disorders, and tend to have family caregiver burden [ 24 , 25 ]. The family caregivers’ burden is not only a Chinese issue but a global issue.…”

Section: Discussionmentioning

confidence: 99%

Barriers to medication adherence for rural patients with mental disorders in eastern China: a qualitative study

et al. 2021

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Background Mental disorders are destructive and usually require long-term medication, but non-adherence of medication is highly prevalent in patients with mental disorders. Previous studies relating to medication non-adherence were mainly quantitative. Meanwhile, there have been even fewer studies conducted in rural areas in China that focused on patients’ medication non-adherence. This study aims to explore the barriers to medication adherence for rural patients with mental disorders in China from the perspectives of patients, patients’ family members and healthcare providers. Methods A qualitative study was carried out in the rural areas of four towns within Shandong Province in eastern China. The study adheres to COREQ guidelines. Semi-structured in-depth interviews were conducted with 11 patients, 21 family members and 8 primary mental health service providers. Results Thematic analysis generated five major themes: (1) lack of self-insight, (2) inadequate family support, (3) long treatment duration and side effects of drugs, (4) poor economic conditions, and (5) the perceived stigma of illness. Conclusion These findings may be useful for policymakers and planners to improve medication adherence and decrease the recurrence rate of mental disorders in China.

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Section: Discussionmentioning

confidence: 99%

Barriers to medication adherence for rural patients with mental disorders in eastern China: a qualitative study

et al. 2021

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“…In another study aimed at determining the educational needs of caregivers of patients with schizophrenia, it is stated that they need information about the early signs and symptoms of the illness, the effects of drugs, and coping with the patient's unusual and aggressive behaviors (Bademli et al, 2016;Raghavan et al, 2017). In the study conducted by Tamizi et al (2020), it was similarly reported that the family caregivers mentioned experiences such as lack of knowledge about the nature of the disorder, methods of treatment, how to provide care for the patient at home, insufficient awareness in managing the high-risk behavior of the patient and in dealing with the patient's resistance to treatment. In another study showed that caregivers were unaware of the nature of the illness, treatment schemes, or illness trajectories (Von Kardorff et al, 2016).…”

Section: Meaning Of Schizophreniamentioning

confidence: 99%

Feelings, thoughts and experiences of caregivers of patients with schizophrenia

Bademli

Lök

2020

Int J Soc Psychiatry

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Background: Caregivers have different experiences in the patient care process during which the role of providing care is fulfilled. Aim: The aim of this study was to provide data on the feelings, thoughts and experiences of the caregivers of patients with schizophrenia. Method: In this study, the phenomenological method was used. Results: The results of this study revealed the following themes: meaning of schizophrenia, the meaning of being caregiver, life before being caregiver, feeling of patients’ relatives, difficult areas while providing care, coping situations and metaphors produced by the caregivers. Conclusion: The results obtained from the study revealed that the caregivers of patients with schizophrenia need information about the mental illness and have a higher emotional burden. Practice Implications: Nurses should listen to caregivers’ experiences, inquire about the experience of caregivers regarding patient care and advise caregivers on how to take care of their patients.

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“…Caregiver burden refers to the strain endured by a person who cares for a chronically ill individual [ 11 ]. Although there has been much debate in the literature regarding the dimensions and attributions of the construct, a distinction has been made between objective and subjective burden [ 11 ]. Objective burden includes concrete costs to the caregiver, such as time and finances devoted to care.…”

Section: Introductionmentioning

confidence: 99%

Perceived burden and family functioning among informal caregivers of individuals living with schizophrenia in Tanzania: a cross-sectional study

et al. 2022

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Background Globally, families play a critical role in providing care and support for persons living with schizophrenia. It is important to identify potentially modifiable factors that influence perceived caregiver burden in order to properly address the needs of caregivers. This is especially relevant in low-resource settings where psychiatric services are scarce and interventions could be most effective if targeted to both the individual living with schizophrenia and their caregiver. This study examines correlates of perceived burden among informal caregivers of individuals with schizophrenia in Tanzania, in particular, the association between burden and caregiver-reported family functioning. Methods This study used baseline data from an individually randomized controlled trial with 65 pairs of individuals with schizophrenia and their informal caregivers in Dar es Salaam and Mbeya, Tanzania. Caregiver burden was measured using the Burden Assessment Scale. Univariable and multivariable regression analyses were performed to determine the relationship between caregiver burden and family functioning and to explore other correlates of burden. Results Sixty-three percent of caregivers reported experiencing high burden as a result of caring for a relative with schizophrenia. Multivariable regression analyses revealed that poor family functioning and the caregiver being employed were associated with high caregiver burden, while higher levels of hopefulness in the caregiver was associated with low caregiver burden. Conclusion Caregivers who were employed, reported poor family functioning, and/or had low levels of hopefulness were more likely to perceive high caregiver burden. Future interventions aiming to reduce caregiver burden may benefit from improving family functioning and nurturing hope among caregivers of individuals living with schizophrenia. Policies and programs should be cognizant of the needs of caregivers that work in addition to providing care for a relative with schizophrenia in order to better support them.

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Defining the concept of family caregiver burden in patients with schizophrenia: a systematic review protocol

Cited by 27 publications

References 32 publications

Barriers to medication adherence for rural patients with mental disorders in eastern China: a qualitative study

Barriers to medication adherence for rural patients with mental disorders in eastern China: a qualitative study

Feelings, thoughts and experiences of caregivers of patients with schizophrenia

Perceived burden and family functioning among informal caregivers of individuals living with schizophrenia in Tanzania: a cross-sectional study

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