Deliberate termination of life of newborns with spina bifida, a critical reappraisal

Jong, T. H. R. de

doi:10.1007/s00381-007-0478-3

Cited by 28 publications

(13 citation statements)

References 53 publications

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“…Although the exact definition of ‘hopeless and unbearable suffering’ is unspecified, we infer it to mean acute and chronic pain that is not alleviated by modern therapeutics. In fact, whether infants with open MMC actually experience an unbearable degree of pain is itself a matter of debate [4,15]. The evidence is sparse, and no rigorous studies evaluating patients using the many available neonatal and infant pain scales have been published.…”

Section: The Protocol: An Evidence-based Analysismentioning

confidence: 99%

“…It has even been suggested that the practices drawn up in the GP are a violation of numerous articles of the United Nations Universal Declaration of Human Rights, such as those including the right to life, as well as the rights of nondiscrimination and the right to equal protection by the law [4]. …”

Section: The Protocol: An Ethical Analysismentioning

confidence: 99%

“…One exception to this silence is Dr. Rob de Jong, a pediatric neurosurgeon from Rotterdam, The Netherlands, who has been vocal in his opposition to the GP [4]. Neurosurgeons have a unique perspective on this condition and therefore an important voice, given the significant role they have in caring for patients with spina bifida at all stages of their lives.…”

Section: Background/introductionmentioning

confidence: 99%

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Quality of Life and Myelomeningocele: An Ethical and Evidence-Based Analysis of the Groningen Protocol

Barry¹

2010

Pediatr Neurosurg

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In 2005, a group of pediatricians at the University Medical Center in Groningen, The Netherlands, published the Groningen Protocol (GP) for Euthanasia in Newborns. This protocol is a set of guidelines devised in 2001 to clarify and facilitate the assessment of clinically stable neonates deemed to be in unbearable suffering for whom the prognosis is felt to be hopeless. At the time of publication, the GP had been in use for 7 years, and 22 patients, all with diagnosed myelomeningocele (MMC), had met the selection criteria for euthanasia by lethal injection. MMC is the most common neurological congenital anomaly, affecting approximately 300,000 newborns yearly worldwide. Neurosurgeons have a unique perspective on this disease and therefore an important voice, given the significant role they have in caring for these patients at all stages of their lives. This paper reviews the principal ethical arguments presented to date in the literature regarding the GP. It also provides an evidence-based critique of the GP in light of quality-of-life studies addressing adults with MMC, and ascertains whether or not the GP meets the criteria for an evidence-based guideline.

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Section: The Protocol: An Evidence-based Analysismentioning

confidence: 99%

Section: The Protocol: An Ethical Analysismentioning

confidence: 99%

Section: Background/introductionmentioning

confidence: 99%

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Quality of Life and Myelomeningocele: An Ethical and Evidence-Based Analysis of the Groningen Protocol

Barry¹

2010

Pediatr Neurosurg

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“…Esses trabalhos afirmavam categoricamente que o protocolo era inaceitável e que ia frontalmente contra toda a noção de dignidade humana que fundamentou o ideário de direitos humanos de nossa civilização [26][27][28][29] .…”

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Abordagem crítica filosófica, científica e pragmática ao abortamento pós-nascimento

Neto¹,

Ribeiro²,

Santos³

et al. 2014

Rev. Bioét.

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ResumoO infanticídio foi denominado abortamento pós-nascimento em artigo publicado em 2012. Embora tenha despertado numerosas reações no meio acadêmico e na mídia, ainda resta a necessidade de tecer uma críti-ca dialética ampla e específica do mesmo, considerando seus aspectos científicos, filosóficos e pragmáticos, além de inseri-lo na realidade concreta. Por meio de tal crítica, pode-se concluir que o artigo apresenta importantes limitações científicas, filosóficas e pragmáticas, desconsiderando a complexidade da realidade e a abrangência do conceito de pessoa. As afirmações do artigo são pouco fundamentadas e suas conclusões se baseiam em pressupostos artificiais e frágeis. Palavras-chave: Aborto. Bioética. Lógica. ResumenAbordaje crítico filosófico, científico y pragmático del aborto post-nacimiento El infanticidio fue llamado aborto post-nacimiento en un artículo publicado en 2012. Aunque levantara numerosas reacciones en el ámbito académico y en los medios de comunicación, aún existe la necesidad de tejer una amplia y específica crítica dialéctica de lo mismo, teniendo en cuenta su carácter científico, filosófico y pragmático, y su integración en la realidad concreta. A través de esta crítica, se puede concluir que el artículo tiene limitaciones científicas, filosóficas y pragmáticas serias, sin llevar en cuenta la complejidad de la realidad y el alcance del concepto de persona. Las afirmaciones del artículo son mal fundamentadas, y sus conclusiones se basan en suposiciones artificiales y frágiles. Palabras-clave: Aborto. Bioética. Logica. AbstractPhilosophical, scientific and pragmatic critical approach of post-birth abortion Infanticide was named post-birth abortion in an article published in 2012. Despite raising many reactions in the academia and in the media, there is still the need to do a wide and specific dialectical critique, considering its scientific, philosophical and pragmatic aspects, inserting it into the concrete reality. Through this critique, it can be concluded that the article has serious scientific, philosophical and pragmatic limitations, disregarding the complexity of reality and the broad scope of the "person" concept. The claims of the article are poorly substantiated, and its conclusions are based on artificial and fragile assumptions.

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“…20 de Jong 21 cites that editorial in his critique of the Groningen Protocol, which permits the euthanasia of newborns with myelomeningocele in the Netherlands. According to de Jong, 21 the Protocol' s application to myelomeningocele is based on outdated and, in some cases, false information about the condition, leading to overly pessimistic assessments in most cases. Newly diagnosed parents participating in online forums, such as BabyCenter, routinely report being pressured to abort by obstetricians or maternal/fetal medicine specialists who present the "worst case scenario" but call it a "prognosis."…”

mentioning

confidence: 99%

Living With Spina Bifida: A Historical Perspective

Pruitt

2012

Pediatrics

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Deliberate termination of life of newborns with spina bifida, a critical reappraisal

Abstract: Objects Deliberate termination of life of newborns (involuntary euthanasia) with meningomyelocele

Cited by 28 publications

References 53 publications

Quality of Life and Myelomeningocele: An Ethical and Evidence-Based Analysis of the Groningen Protocol

Quality of Life and Myelomeningocele: An Ethical and Evidence-Based Analysis of the Groningen Protocol

Abordagem crítica filosófica, científica e pragmática ao abortamento pós-nascimento

Living With Spina Bifida: A Historical Perspective

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