Depression and grief reactions in hospice caregivers: from pre-death to 1 year afterwards

Chentsova‐Dutton, Yulia E.; Shucter, Stephen; Hutchin, Susan; Strause, Linda; Burns, Kathleen C.; Dunn, Laura B.; Miller, Marci; Zisook, Sidney

doi:10.1016/s0165-0327(00)00368-2

Cited by 76 publications

(59 citation statements)

References 13 publications

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“…Consequently, and in order to be available to help the dying, and capable of investing themselves physically and emotionally in to their work, palliative carers have an "onus" as Ley and Van Bommell in 1994 put it, to examine their beliefs, feelings, and attitudes about death, the meaning of life, and grief; to care for themselves, and to supplement their work so as to enrich themselves and reduce the possibility of burnout [18,23].…”

Section: Roles Of Palliative Workersmentioning

confidence: 99%

The Dying and Those Who Care for Them

Rokach¹

2015

J Pat Care

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The article reviews the loneliness of those on their deathbed, and the complex and demanding field of palliative care, noting the sources of the stresses and strains that the healthcare workers often encounter. It highlights the needs of patients, the reasons why they and/or their families may hamper palliative care, and mostly-what can be done to deal with, and better yet-prevent, palliative workers' burnout.

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Section: Roles Of Palliative Workersmentioning

confidence: 99%

The Dying and Those Who Care for Them

Rokach¹

2015

J Pat Care

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“…Being the sole primary caregiver (as is often the case), may result in caregivers feeling unsupported by family and friends who go on with their lives, thus compounding their sense of loneliness [42] . Finally, seeing the suffering of a loved one without being able to ease the pain or prevent death, as well as, facing one's own mortality, may result in loneliness and alienation from the rest of the healthy and bustling society [7] . It is, therefore, obvious why caregiving is frequently associated with significant psychological and physical vulnerability, which may include depression, anxiety, anger, health problems, loneliness and suicidality [23] .…”

Section: Caregiversmentioning

confidence: 99%

“…Their distress is evident in the form of depression, anxiety, anger, health problems, and loneliness. Alarmingly, 14% of caregivers admitted entertaining suicidal thoughts [7] .…”

Section: Caregiversmentioning

confidence: 99%

Coping with loneliness: Caregivers of cancer patients

Rokach

Miller²,

Schick³

et al. 2014

Clinical Nursing Studies

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Caregivers to cancer patients may be particularly vulnerable to the experience of loneliness. The current study compared the strategies used to cope with loneliness by those caring for hospitalized cancer patients who were receiving treatment, and caregivers of cancer patients in a hospice, who were on their death bed. Analyses revealed that there was no significant difference in coping with loneliness by caregivers of the ill and dying, but found a significant interaction effect within the caregivers to the ill group. Women attending to the ill scored higher on Acceptance and reflection, Self-development & understanding, and on the Social support network subscales than men did.

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“…The themes that emerged from a review of research with bereaved family caregivers of patients with cancer included painful emotions and a lack of follow-up support (Grbich, Parker, & Maddocks, 2001;Hudson, 2006;Kristjanson, Cousins, Smith, & Lewin, 2005;McLaughlin, Sullivan, & Hasson, 2007), high rates of depression (Wyatt, Friedman, Given, & Given, 1999), loss of appetite (Brazil et al, 2003), severe sleep problems (Carter, 2005), distressing grief over an unpredictable length of time (Chentsova-Dutton et al, 2002), and even death during bereavement (Christakis & Iwashyna, 2003). In a retrospective cohort study of more than 195,000 older adult couples in the United States, mortality rates for hospice users were 4.9% for women and 13.2% for men at 18 months after the death of a loved one, compared to 5.4% for women and 13.2% for men who had not Effectiveness research: examines the specific benefits from the healthcare system for the improvement of health • What health services currently are being used by bereaved family caregivers?…”

Section: Characteristics Of Bereaved Family Caregiversmentioning

confidence: 99%

Caring for Bereaved Family Caregivers: Analyzing the Context of Care

Holtslander¹

2008

Clinical Journal of Oncology Nursing

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Deaths from cancer will continue to rise with an increasing and aging population. Family caregivers of patients with cancer will face loss, grief, and bereavement as a result. As mandated by cancer and palliative care clinical practice guidelines, support for family caregivers continues through the processes of grief and bereavement to facilitate a positive transition through loss. To provide evidence-based nursing with this population, an analysis of their context of care was undertaken. Key health policies, characteristics of the healthcare delivery system, and the results of research with bereaved palliative caregivers are described. A model of effectiveness, efficiency, and equity is used to examine the situation of bereaved caregivers and to suggest research questions to fill the gaps in what is known about their needs and experience. Bereaved caregivers are at high risk for many distressing symptoms, including depression and sleeplessness, related to a range of complex variables, such as age, gender, social support, resources, and their experiences during caregiving. Current systems of support have not been adequate to meet the needs of this population and very little is known about the caregivers' quality of life, well-being, and health outcomes or how best to provide compassionate and effective nursing care.

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Depression and grief reactions in hospice caregivers: from pre-death to 1 year afterwards

Cited by 76 publications

References 13 publications

The Dying and Those Who Care for Them

The Dying and Those Who Care for Them

Coping with loneliness: Caregivers of cancer patients

Caring for Bereaved Family Caregivers: Analyzing the Context of Care

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