Designing consumer health IT to enhance usability among different racial and ethnic groups within the United States

Valdez, Rupa S.; Gibbons, M. Chris; Siegel, Elliot R.; Kukafka, Rita; Brennan, Patrícia Flatley

doi:10.1007/s12553-012-0031-6

Cited by 46 publications

(29 citation statements)

References 52 publications

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“…We approached groups or pages serving racial or ethnic communities of interest without excluding those unrelated to health (eg, film, engineering, photography, radio). By casting a wider net, we hoped to increase our recruitment of racial and ethnic minorities, ensuring that any recommendations for consumer health IT design were culturally relevant to multiple populations [ 59 , 60 ]. However, it is possible that we inadvertently alienated members of the populations we tried to engage.…”

Section: Discussionmentioning

confidence: 99%

Beyond Traditional Advertisements: Leveraging Facebook’s Social Structures for Research Recruitment

Valdez¹,

Guterbock²,

Thompson³

et al. 2014

J Med Internet Res

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BackgroundObtaining access to a demographically and geographically diverse sample for health-related research can be costly and time consuming. Previous studies have reported mixed results regarding the potential of using social media-based advertisements to overcome these challenges.ObjectiveOur aim was to develop and assess the feasibility, benefits, and challenges of recruiting for research studies related to consumer health information technology (IT) by leveraging the social structures embedded in the social networking platform, Facebook.MethodsTwo recruitment strategies that involved direct communication with existing Facebook groups and pages were developed and implemented in two distinct populations. The first recruitment strategy involved posting a survey link directly to consenting groups and pages and was used to recruit Filipino-Americans to a study assessing the perceptions, use of, and preferences for consumer health IT. This study took place between August and December 2013. The second recruitment strategy targeted individuals with type 2 diabetes and involved creating a study-related Facebook group and asking administrators of other groups and pages to publicize our group to their members. Group members were then directly invited to participate in an online pre-study survey. This portion of a larger study to understand existing health management practices as a foundation for consumer health IT design took place between May and June 2014. In executing both recruitment strategies, efforts were made to establish trust and transparency. Recruitment rate, cost, content of interaction, and characteristics of the sample obtained were used to assess the recruitment methods.ResultsThe two recruitment methods yielded 87 and 79 complete responses, respectively. The first recruitment method yielded a rate of study completion proportionate to that of the rate of posts made, whereas recruitment successes of the second recruitment method seemed to follow directly from the actions of a subset of administrators. Excluding personnel time, the first recruitment method resulted in no direct costs, and the second recruitment method resulted in a total direct cost of US $118.17. Messages, posts, and comments received using both recruitment strategies reflected ten themes, including appreciation, assistance, clarification, concerns, encouragement, health information, interest, promotion, solicitations, and support. Both recruitment methods produced mixed results regarding sample representativeness with respect to characteristics such as gender, race, and ethnicity.ConclusionsThe results of the study demonstrate that leveraging the social structures of Facebook for health-related research was feasible for obtaining small samples appropriate for qualitative research but not for obtaining large samples needed for quantitative research. The content of interactions with members of the target population prompted ethical deliberations concerning suitable target communities and appropriate boundaries between researchers and par...

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Section: Discussionmentioning

confidence: 99%

Beyond Traditional Advertisements: Leveraging Facebook’s Social Structures for Research Recruitment

Valdez¹,

Guterbock²,

Thompson³

et al. 2014

J Med Internet Res

View full text Add to dashboard Cite

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“…Cultural differences associated with ethnicity are one aspect of diversity that may play a role in user-technology interactions [30,46,49]. Many studies that focus on consumer health IT within the literature do not have a diverse population sample [18].…”

Section: Introductionmentioning

confidence: 99%

Spanish-Language Consumer Health Information Technology Interventions: A Systematic Review

Chaet¹,

Morshedi²,

Wells³

et al. 2016

J Med Internet Res

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BackgroundAs consumer health information technology (IT) becomes more thoroughly integrated into patient care, it is critical that these tools are appropriate for the diverse patient populations whom they are intended to serve. Cultural differences associated with ethnicity are one aspect of diversity that may play a role in user-technology interactions.ObjectiveOur aim was to evaluate the current scope of consumer health IT interventions targeted to the US Spanish-speaking Latino population and to characterize these interventions in terms of technological attributes, health domains, cultural tailoring, and evaluation metrics.MethodsA narrative synthesis was conducted of existing Spanish-language consumer health IT interventions indexed within health and computer science databases. Database searches were limited to English-language articles published between January 1990 and September 2015. Studies were included if they detailed an assessment of a patient-centered electronic technology intervention targeting health within the US Spanish-speaking Latino population. Included studies were required to have a majority Latino population sample. The following were extracted from articles: first author’s last name, publication year, population characteristics, journal domain, health domain, technology platform and functionality, available languages of intervention, US region, cultural tailoring, intervention delivery location, study design, and evaluation metrics.ResultsWe included 42 studies in the review. Most of the studies were published between 2009 and 2015 and had a majority percentage of female study participants. The mean age of participants ranged from 15 to 68. Interventions most commonly focused on urban population centers and within the western region of the United States. Of articles specifying a technology domain, computer was found to be most common; however, a fairly even distribution across all technologies was noted. Cancer, diabetes, and child, infant, or maternal health were the most common health domains targeted by consumer health IT interventions. More than half of the interventions were culturally tailored. The most frequently used evaluation metric was behavior/attitude change, followed by usability and knowledge retention.ConclusionsThis study characterizes the existing body of research exploring consumer health IT interventions for the US Spanish-speaking Latino population. In doing so, it reveals three primary needs within the field. First, while the increase in studies targeting the Latino population in the last decade is a promising advancement, future research is needed that focuses on Latino subpopulations previously overlooked. Second, preliminary steps have been taken to culturally tailor consumer health IT interventions for the US Spanish-speaking Latino population; however, focus must expand beyond intervention content. Finally, the field should work to promote long-term evaluation of technology efficacy, moving beyond intermediary measures toward measures of health outcomes.

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“…Specifically, they stated, “Conceivably, physicians from different cultures may exhibit considerable differences in attitude formation and technology assessment” (p. 107). Also, Valdez, Gibbons, Siegel, Kukafka, and Brennan () suggested that design of consumer health information technology should follow a deep understanding of the users' culture. Therefore, if we can consider the organization cultures, the implementation would be much easier to understand.…”

Section: Introductionmentioning

confidence: 99%

Comparison of national e-health implementation in the United States and South Korea

2016

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With the development of the health care industry, there has been growing recognition that e‐health implementation is needed to improve the efficiency, quality, and safety of care. In addition, a review of previous studies suggests that much can be learned by investigating the difference in national e‐health implementation in the United States and in South Korea. To this end, the main objective of this article is to compare the national e‐health implementation in the case of the United States and South Korea. The results show that in the United States a decentralized e‐health implementation is being followed by individual‐level e‐health. South Korea is pursuing ubiquitous health (u‐health) after a hospital information system and electronic health were implemented. The United States still lags behind many other countries in the implementation of e‐health, possibly due to its low uncertainty avoidance culture. South Korea has been among the frontrunner groups in e‐health implementation as a consequence of its highly developed telecommunication infrastructures and high uncertainty avoidance culture. On the basis of these results, we recommend that establishing health care policies be done on a national scale that takes into account the countries’ cultures.

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Designing consumer health IT to enhance usability among different racial and ethnic groups within the United States

Cited by 46 publications

References 52 publications

Beyond Traditional Advertisements: Leveraging Facebook’s Social Structures for Research Recruitment

Beyond Traditional Advertisements: Leveraging Facebook’s Social Structures for Research Recruitment

Spanish-Language Consumer Health Information Technology Interventions: A Systematic Review

Comparison of national e-health implementation in the United States and South Korea

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