Developing a complex intervention programme for informal caregivers of stroke survivors: The Caregivers’ Guide

Krieger, Theresia; Feron, Frans; Dorant, E.

doi:10.1111/scs.12344

Cited by 32 publications

(56 citation statements)

References 52 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Our experiences support those of Craig et al (2008) in recognising the development of a complex intervention as an iterative process. Our top-down developed preliminary concept did not adequately address the system´s needs (Krieger, Feron, and Dorant 2017). In retrospect, this might be attributed to the fact that the Caregivers' Guide counsellor was affiliated to the academic organisation and not to the regional stroke support system.…”

Section: Optimisation Processmentioning

confidence: 92%

“…This situation poses several challenges for the support system, the patient, and the caregiver (Schuler and Oster 2004). A new primary prevention programme -The Caregivers' Guidewas recently developed by the Institute for Health Research and Social Psychiatry (igsp) -Catholic University of Applied Sciences North Rhine-Westphalia in Aachen, Germany (Krieger et al, 2017;Krieger et al 2019). The programme aims to maintain the quality of life and reduce stroke caregivers´burdens by offering professional support parallel to the current rehabilitation trajectory.…”

Section: The Caregivers' Guide: a New Stroke Caregiver Support Programmementioning

confidence: 99%

“…The development phase was split into two parts (as shown in Figure 1). First, the preliminary concept was developed by the lead of the professional research team (Krieger, Feron, and Dorant 2017). New knowledge was gained via explorative interviews with experienced caregivers (end-users), semi-structured interviews with practitioners (service providers), and field observations in the acute, rehabilitation and homecare settings.…”

Section: The Caregivers' Guide: a New Stroke Caregiver Support Programmementioning

confidence: 99%

“…In retrospect, it might have been helpful for the entire study to also involve family caregivers in the PAR. However, the preliminary concept was developed by the interactive contribution of 'experienced stroke caregivers' (Krieger, Feron, and Dorant 2017) and the`voice´of caregivers after receiving the intervention was included via interviews in PAR.…”

Section: Critical Reflection On Participant Inclusion and Rolesmentioning

confidence: 99%

See 3 more Smart Citations

Optimising a complex stroke caregiver support programme in practice: a participatory action research study

Krieger

Floren

Feron

et al. 2019

Educational Action Research

Self Cite

View full text Add to dashboard Cite

Complex public health programmes may suffer from 'teething problems' during their implementation in practice, especially when programmes are developed top-down without the participation of end-users and service providers. Trying out and optimising a new concept in practice with stakeholder´s participation may enhance the programme´s chance of success. In this article we describe the participatory optimisation process of a German primary prevention programme for stroke caregivers, performed before its full-scale implementation.

show abstract

Section: Optimisation Processmentioning

confidence: 92%

Section: The Caregivers' Guide: a New Stroke Caregiver Support Programmementioning

confidence: 99%

Section: The Caregivers' Guide: a New Stroke Caregiver Support Programmementioning

confidence: 99%

Section: Critical Reflection On Participant Inclusion and Rolesmentioning

confidence: 99%

See 2 more Smart Citations

Optimising a complex stroke caregiver support programme in practice: a participatory action research study

Krieger

Floren

Feron

et al. 2019

Educational Action Research

Self Cite

View full text Add to dashboard Cite

show abstract

“…In order to safeguard the information, memos were developed after each interview and focus group discussion. In addition, ‘input’ of the stakeholder ‘caregiver’ (end‐users) was generated from interview materials that had been collected in the part 1 of the project's development phase (Fig. ).…”

Section: Methodsmentioning

confidence: 99%

The development of implementation management instruments for a new complex stroke caregiver intervention based on systematic stakeholder and risk analyses

Krieger

Boumans

Feron

et al. 2019

Scandinavian Caring Sciences

Self Cite

View full text Add to dashboard Cite

Background Stakeholders are important contributors in the implementation of a complex public health intervention. During the development phase of an implementation, alongside careful design of its components and investing in the exploration of the dynamic multi‐stakeholder stroke rehabilitation setting, it is essential to assess possible implementation risks. Systematic stakeholder and risk analyses can guide the exploration process and enable teams involved in complex interventions to develop context‐tailored implementation management instruments. Purpose To develop instruments that facilitate the implementation of the complex stroke caregiver intervention project in the real‐life support system. Methods Systematic stakeholder and risk analyses were conducted composing five activities. Project stakeholders were identified, classified and assessed using a top‐down approach, while implementation risks were identified and assessed by applying a bottom‐up approach. Data were collected through interviews and focus groups. Results Based on the knowledge provided by the stakeholders, two context‐tailored implementation management instruments were designed with a top‐down approach: (1) a comprehensive ‘stakeholder‐risk atlas’ providing individual stakeholder information, such as role, access, contribution, power and interest, expectations, perceived risks and specific engagement activities and (2) an overall ‘project implementation strategy’ concentrating on communication, transparency, network building and professionalism. Conclusion Complex interventions will benefit from early and comprehensive stakeholder and risk analyses. The early involvement of stakeholders, with their insightful knowledge, enables the research team to develop context‐tailored implementation management instruments. Instruments will support the team during implementation and may impact positively on the outcome of the intervention. Knowledge can be obtained by combining top‐down and bottom‐up working approaches.

show abstract

mHealth applications to support caregiver needs and engagement during stroke recovery: A content review

Lobo

Frølich

Kensing

et al. 2020

Research in Nursing & Health

View full text Add to dashboard Cite

Caregiving in stroke results in severe physical, psychological, and social impacts on the caregiver. Over the past few years, researchers have explored the use of mHealth technologies to support healthcare-related activities due to their ability to provide real-time care at any given place or time. The purpose of this content review is to investigate mHealth apps in supporting stroke caregiving engagement based on three aspects: motivation, value, and satisfaction. We searched app stores and repositories for apps related to stroke caregiving published up to September 2020. Extracted apps were reviewed and filtered using inclusion criteria, and then downloaded onto compatible devices to determine eligibility. Results were compared with evidence-based frameworks to identify the ability of these apps in engaging and supporting the caregiver. Forty-seven apps were included in this review that enabled caregivers to support their needs, such as adjustment to new roles and relationships, involvement in care and caring for oneself using several different functionalities. These functionalities include information resources, risk assessment, remote monitoring, data sharing, reminders and so on. However, no single app was identified that focuses on all aspects of stroke caregiving. We also identified several challenges faced by users through their reviews and the factors associated with value and satisfaction. Our findings can add to the knowledge of existing mHealth technologies and their functionalities to support stroke caregiving needs, and the importance of considering user engagement in the design. They can be used by developers and researchers looking to design better mHealth apps for stroke caregiving.

show abstract

Developing a complex intervention programme for informal caregivers of stroke survivors: The Caregivers’ Guide

Cited by 32 publications

References 52 publications

Optimising a complex stroke caregiver support programme in practice: a participatory action research study

Optimising a complex stroke caregiver support programme in practice: a participatory action research study

The development of implementation management instruments for a new complex stroke caregiver intervention based on systematic stakeholder and risk analyses

mHealth applications to support caregiver needs and engagement during stroke recovery: A content review

Contact Info

Product

Resources

About