Developing an Evaluation Framework for Parent Education and Training in Autism Spectrum Disorder: Results of a Multi-stakeholder Process

Dawson-Squibb, John-Joe; Vries, Petrus J. de

doi:10.1007/s10803-019-04176-w

Cited by 21 publications

(24 citation statements)

References 41 publications

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“…The most well-defined taxonomy to date was articulated by Bearss and colleagues (2015) who differentiated between ‘parent support’ (to describe interventions where the parent was the direct beneficiary) and ‘parent-mediated intervention’ (to describe parent-led interventions where the child with ASD was the direct beneficiary). In a review of one specific ASD parent programme (Dawson-Squibb et al, 2019), it was acknowledged that many parent support interventions may represent ‘hybrids’ between these broad groups as outlined by Bearss et al (2015). The authors recommended use of a placeholder term – Parent Education and Training (PET) – to describe the process of passing on information or skills to parents/carers using a range of modalities (e.g.…”

Section: Introductionmentioning

confidence: 99%

“…didactic, role-play, discussions) in a context where parents/carers and trained facilitators are the direct participants. As noted, the focus of PET is on knowledge transfer to parents/carers and they are the main beneficiaries rather than the emphasis being on the parent–child dyad (Dawson-Squibb et al, 2019; Dawson-Squibb et al, 2020).…”

Section: Introductionmentioning

confidence: 99%

“…A wide range of PET programmes are used across the globe (see Dawson-Squibb et al, 2020, for a recent review). In a scoping review of one such widely implemented PET programme, the EarlyBird/EarlyBird Plus (EB/EBP) programme developed in the United Kingdom, the authors were able to identify only low level of evidence for the outcomes of the programme and found that little research to date had been performed on implementation-related factors of the programme, such as expansion, practicality, accessibility and cultural appropriateness (Dawson-Squibb et al, 2019). A recently published review by the National Clearinghouse on autism evidence and practice identified only two parent-mediated interventions as evidence based, despite the many programmes that exist (Steinbrenner et al, 2020).…”

Section: Introductionmentioning

confidence: 99%

“…The authors commented on the absence of any consensus evaluation tools to make direct comparisons of programmes in order to evaluate or select a suitable PET programme for a specific context. Dawson-Squibb and de Vries (2019) therefore used a multi-stakeholder participatory strategy to generate a pragmatic evaluation framework as a potential tool for the study of ASD PET programmes (Dawson-Squibb & de Vries, 2019).…”

Section: Introductionmentioning

confidence: 99%

“…To date, more than 27,000 families in 14 countries have attended the 12-week group-based programmes. The majority of research on EB/EBP reported positive outcomes, although the evidence base comprised mostly lower-level strength and was exclusively from high-income countries (HICs) (Dawson-Squibb et al, 2019; Palmer et al, 2020).…”

Section: Introductionmentioning

confidence: 99%

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A comparative feasibility study of two parent education and training programmes for autism spectrum disorder in a low-resource South African setting

Dawson-Squibb

Vries

2020

Autism

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Despite the clear need for post-diagnostic parent/carer education and training in autism spectrum disorder, the evidence base is small, particularly in low-resource settings. Furthermore, few studies have examined the feasibility of intervention implementation. Here, we performed a comparative feasibility study of two Parent Education and Training programmes in a low-resource South African setting. EarlyBird/EarlyBird Plus, a UK-developed programme was compared to Autism Cares, a locally developed programme. The aims were to (1) examine acceptability, adaptation and perform limited efficacy testing and (2) use a multi-stakeholder panel and new autism spectrum disorder Parent Education and Training evaluation framework checklist to compare the programmes. A mixed-method, quasi-experimental design collected pre, post and 3-month follow-up data. Measures included standardised and custom-designed quantitative and qualitative data. In total, 18 parents participated in the EarlyBird/EarlyBird Plus programmes and 11 in Autism Cares. Strong parental acceptability for both programmes was found and adaptation suggestions were provided. Limited efficacy testing showed positive changes for parental stress, knowledge of autism spectrum disorder and child changes. The multi-stakeholder panel rated EarlyBird/EarlyBird Plus superior for next-step research based on implementation feasibility. Our findings contribute to the limited evidence base for autism spectrum disorder Parent Education and Training in low-resource environments and underline the need for evidence base of programmes to include not only intervention outcomes but also procedural and implementation outcomes. Lay Abstract After a diagnosis of autism, it is an important first step to give families information about autism and skills to help them support their child. These interventions are called Parent Education and Training programmes. Little is known about these programmes or if they can make a difference to families, particularly in countries with few autism resources. In this study, we compared two Parent Education and Training programmes in South Africa. EarlyBird/EarlyBird Plus was developed in the United Kingdom, and Autism Cares in South Africa. We wanted to know if parents found the programmes useful, and if any changes were required. We collected information from parents through questionnaires and interviews before and after the group. We also asked a panel of experts (including parents) to compare the programmes. In total, 18 parents attended the EarlyBird/EarlyBird Plus group and 11 attended the Autism Cares group. Parents found both programmes helpful and made suggestions for improvements. Parents showed less stress, more knowledge of autism, and saw improvements in their children. The expert panel rated EarlyBird/EarlyBird Plus as better because it was more supportive of parents and was seen as easier to run in the country. Our study showed that Parent Education and Training programmes are important, but that researchers must study not only the outcomes but also the implementation needs of these programmes.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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A comparative feasibility study of two parent education and training programmes for autism spectrum disorder in a low-resource South African setting

Dawson-Squibb

Vries

2020

Autism

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Seeing through a robot's eyes: A cross‐sectional exploratory study in developing a robotic screening technology for autism

So,

Wong,

et al. 2024

Autism Research

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The present exploratory cross‐sectional case–control study sought to develop a reliable and scalable screening tool for autism using a social robot. The robot HUMANE, installed with computer vision and linked with recognition technology, detected the direction of eye gaze of children. Children aged 3–8 (M = 5.52; N = 199) participated, 87 of whom had been confirmed with autism, 55 of whom were suspected to have autism, and 57 of whom were not considered to cause any concern for having autism. Before a session, a human experimenter instructed HUMANE to narrate a story to a child. HUMANE prompted the child to return his/her eye gaze to the robot if the child looked away, and praised the child when it re‐established its eye gaze quickly after a prompt. The reliability of eye gaze detection was checked across all pairs of human raters and HUMANE and reached 0.90, indicating excellent interrater agreement. Using the pre‐specified reference standard (Autism Spectrum Quotient), the sensitivity and specificity of the index tests (i.e., the number of robot prompts and duration of inattentiveness) reached 0.88 or above and the Diagnostic Odds Ratios were beyond 190. These results show that social robots may detect atypical eye patterns, suggesting a potential future for screening autism using social robots.

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International Perspectives in Coordinated Care for Individuals with ASD

Harrison

Dawson-Squibb

2020

Interprofessional Care Coordination for Pediatric Autism Spectrum Disorder

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Developing an Evaluation Framework for Parent Education and Training in Autism Spectrum Disorder: Results of a Multi-stakeholder Process

Cited by 21 publications

References 41 publications

A comparative feasibility study of two parent education and training programmes for autism spectrum disorder in a low-resource South African setting

A comparative feasibility study of two parent education and training programmes for autism spectrum disorder in a low-resource South African setting

Seeing through a robot's eyes: A cross‐sectional exploratory study in developing a robotic screening technology for autism

International Perspectives in Coordinated Care for Individuals with ASD

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