Development and pilot-testing of a colorectal cancer screening decision aid for individuals with varying health literacy levels

Woudstra, Anke J.; Smets, Ellen M. A.; Dekker, Evelien; Broens, Tom; Penning, Judith; Smith, Sian K; McCaffery, Kirsten; Fransen, Mirjam P.

doi:10.1016/j.pec.2019.04.029

Cited by 18 publications

(17 citation statements)

References 36 publications

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“…The NVS-D is a 6-question tool to assess an individual's ability to find and interpret information (both text and numerical information) on an ice cream nutrition label. Individuals with <4 correct responses were considered to have low calculating skills [17,18].…”

Section: Background Characteristicsmentioning

confidence: 99%

Women’s Participation in Decision-Making in Maternity Care: A Qualitative Exploration of Clients’ Health Literacy Skills and Needs for Support

Murugesu

Damman

Derksen

et al. 2021

IJERPH

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Shared decision-making requires adequate functional health literacy (HL) skills from clients to understand information, as well as interactive and critical HL skills to obtain, appraise and apply information about available options. This study aimed to explore women’s HL skills and needs for support regarding shared decision-making in maternity care. In-depth interviews were held among women in Dutch maternity care who scored low (n = 10) and high (n = 13) on basic health literacy screening test(s). HL skills and perceived needs for support were identified through thematic analysis. Women appeared to be highly engaged in the decision-making process. They mentioned searching and selecting general information about pregnancy and labor, constructing their preferences based on their own pre-existing knowledge and experiences and by discussions with partners and significant others. However, women with low basic skills and primigravida perceived difficulties in finding reliable information, understanding probabilistic information, constructing preferences based on benefit/harm information and preparing for consultations. Women also emphasized dealing with uncertainties, changing circumstances of pregnancy and labor, and emotions. Maternity care professionals could further support clients by guiding them towards reliable information. To facilitate participation in decision-making, preparing women for consultations (e.g., agenda setting) and supporting them in a timely manner to understand benefit/harm information seem important.

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Section: Background Characteristicsmentioning

confidence: 99%

Women’s Participation in Decision-Making in Maternity Care: A Qualitative Exploration of Clients’ Health Literacy Skills and Needs for Support

Murugesu

Damman

Derksen

et al. 2021

IJERPH

Self Cite

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“… 10 , 11 , 12 To enhance an individual's autonomy while participating in CRC screening, a decision aid (DA) can be helpful. 13 , 14 DAs are often web‐based tools with various content, including disease‐related information, information about the procedure (screening in this case), benefits and harms of the procedure and value clarification exercises 13 , 15 , 16 to facilitate what decision best match the individual's values. 11 Existing evidence shows that people using DAs in connection to a treatment or screening decision increase their knowledge, feel more informed and are certain of what matters most to them.…”

Section: Introductionmentioning

confidence: 99%

“… 11 , 13 DAs can also have an important role for individuals with lower levels of educational attainment and health literacy since the DA facilitate learning by providing interactive information in different formats and on different levels. 16 , 17 This study is part of a larger project aiming at developing a DA in connection to population‐based CRC screening in Sweden. The DA will be based on previous research, within the SCREESCO study, on participation and nonparticipation in CRC screening exploring values and preferences 18 health literacy, 19 anxiety, 20 shared decision‐making 21 and experiences of the screening procedure itself.…”

Section: Introductionmentioning

confidence: 99%

Different information needs—The major reasons for calling the helpline when invited to colorectal cancer screening

Fritzell

Kottorp

Jervaeus

2022

Health Expectations

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Introduction: This study pertains to the design of a decision aid (DA) to shed light on information and support needs in colorectal cancer screening, with the aim to explore the calling patterns to the Screening of Swedish Colons (SCREESCO) study's helpline.Methods: A cross-sectional study was conducted with data from documented telephone calls to the SCREESCO study, including individuals, 59-60 years, randomized to colonoscopy or high sensitive faecal immunochemical test (FIT).Results: More than 2000 calls (women 58.5%; colonoscopy 59%) were analysed.Calling patterns: unsubscribing from screening, confirmation of participation, logistical concerns about the screening procedure, counselling, and FIT screening difficulties or in need of a new FIT test. Comorbidity was the most frequent reason for unsubscribing and most of the counselling calls included questions about the FIT test or the colonoscopy. Conclusion:Most of the calls to the helpline seemed to be related to individuals' lack of understanding about the organization of the screening programme and the screening procedure. Therefore, we find it important to further stress the tailoring part in our DA developing process, that is, provide limited information initially, with the possibility of access to more, if desired by the individual, still with respect to the individual's needs, health and digital literacy.

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“…59 This lack of initiative matters, since physicians are more likely to order a genetic test if patients inquire about genetic testing. 60,61 A focus on health literacy may therefore be a useful strategy for reducing disparities in referral to breast cancer genetic counseling and testing.…”

Section: Patient-related Factorsmentioning

confidence: 99%

“…Recent studies show promising results in the development and implementation of decision aids in cancer care, adapted to patients with limited health literacy. 60,61 The use of these decision aids seems promising and should be further explored. In addition, the discussion about the definition of health literacy is currently led by the conviction that health literacy is not only determined by individuals' skills and abilities, but also by the complexities of the healthcare system.…”

Section: Further Research On Other Factors Influencing Access To Breast Cancer Genetic Counseling and Testingmentioning

confidence: 99%

Equal access to breast cancer genetic counseling and testing

Doelen¹

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Proefschrift ter verkrijging van de graad van doctor aan de Universiteit Utrecht op gezag van de rector magnificus, prof. dr. H.R.B.M. Kummeling, ingevolge het besluit van het college voor promoties in het openbaar te verdedigen op 28 september 2021 des middags te 12.15 uur door Jeanine Adriana Maria van der Doelen geboren op 30 juli 1968 te Geffen Gelijke toegang tot erfelijkheidsonderzoek bij borstkanker Ontwikkeling en implementatie van een 'health literacy' trainingsprogramma voor oncologisch chirurgen en gespecialiseerd verpleegkundigen (met een samenvatting in het Nederlands) Equal access to breast cancer genetic counseling and testing Development and implementation of a health literacy training program for surgical oncologists and specialized nurses

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Development and pilot-testing of a colorectal cancer screening decision aid for individuals with varying health literacy levels

Cited by 18 publications

References 36 publications

Women’s Participation in Decision-Making in Maternity Care: A Qualitative Exploration of Clients’ Health Literacy Skills and Needs for Support

Women’s Participation in Decision-Making in Maternity Care: A Qualitative Exploration of Clients’ Health Literacy Skills and Needs for Support

Different information needs—The major reasons for calling the helpline when invited to colorectal cancer screening

Equal access to breast cancer genetic counseling and testing

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