Development and validation of the Consumer Quality index instrument to measure the experience and priority of chronic dialysis patients

Veer, Sabine N van der; Jager, Kitty J.; Visserman, Ella; Beekman, Robert J.; Boeschoten, Els W.; Keizer, Nicolette F. de; Heuveling, Lara; Stronks, Karien; Arah, Onyebuchi A.

doi:10.1093/ndt/gfs023

Cited by 32 publications

(30 citation statements)

References 19 publications

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“…This requires professionals to be aware of the need for many patients to foster relationships that enable ongoing information provision, communication, and support. A perceived lack of information sharing has been linked with reduced satisfaction with care (7,52,53). In common with other studies, this synthesis highlights problems with information sharing between health professionals and patients with CKD (6,7,52,54).…”

Section: Discussionsupporting

confidence: 61%

A Thematic Synthesis of the Experiences of Adults Living with Hemodialysis

Reid

Seymour

Jones

2016

CJASN

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Background and objectives Patients on in-center dialysis spend significant amounts of time in the dialysis unit; additionally, managing ESRD affects many aspects of life outside the dialysis unit. To improve the care provided to patients requiring hemodialysis, their experiences and beliefs regarding treatment must be understood. This systematic review aimed to synthesize the experiences of patients receiving in-center hemodialysis.Design, setting, participants, & measurements We searched Embase, MEDLINE, CINAHL, PsychINFO, Google Scholar, and reference lists for primary qualitative studies published from 1995 to 2015 that explored the experiences of adult patients receiving treatment with in-center hemodialysis. A thematic synthesis was conducted.Results Seventeen studies involving 576 patients were included in the synthesis. Four analytic themes were developed. The first theme (a new dialysis-dependent self) describes the changes in identity and perceptions of self that could result from dialysis dependence. The second theme (a restricted life) describes the physical and emotional constraints that patients described as a consequence of their dependence. Some patients reported strategies that allowed them to regain a sense of optimism and influence over the future, and these contributed to the third theme (regaining control). The first three themes describe a potential for change through acceptance, adaption, and regaining a sense of control. The final theme (relationships with health professionals) describes the importance of these relationships for in-center patients and their influence on perceptions of power and support. These relationships are seen to influence the other three themes through information sharing, continuity, and personalized support.Conclusions Our synthesis has resulted in a framework that can be used to consider interventions to improve patients' experiences of in-center hemodialysis care. Focusing on interventions that are incorporated into the established relationships that patients have with their health care professionals may enable patients to progress toward a sense of control and improve satisfaction with care.

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Section: Discussionsupporting

confidence: 61%

A Thematic Synthesis of the Experiences of Adults Living with Hemodialysis

Reid

Seymour

Jones

2016

CJASN

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“…Still, the quality, comprehensibility and completeness of information and education provided to kidney patients seem to be suboptimal at best [11]–[14]. This may partly explain why some patients have little knowledge of their disease as well as a limited awareness of their different treatment options [15], [16].…”

Section: Introductionmentioning

confidence: 99%

Patients’ Perceptions of Information and Education for Renal Replacement Therapy: An Independent Survey by the European Kidney Patients' Federation on Information and Support on Renal Replacement Therapy

Biesen

Veer

Murphey³

et al. 2014

PLoS ONE

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BackgroundSelection of an appropriate renal replacement modality is of utmost importance for patients with end stage renal disease. Previous studies showed provision of information to and free modality choice by patients to be suboptimal. Therefore, the European Kidney Patients’ Federation (CEAPIR) explored European patients’ perceptions regarding information, education and involvement on the modality selection process.MethodsCEAPIR developed a survey, which was disseminated by the national kidney patient organisations in Europe.ResultsIn total, 3867 patients from 36 countries completed the survey. Respondents were either on in-centre haemodialysis (53%) or had a functioning graft (38%) at the time of survey. The majority (78%) evaluated the general information about kidney disease and treatment as helpful, but 39% did not recall being told about alternative treatment options than their current one. Respondents were more often satisfied with information provided on in-centre haemodialysis (90%) and transplantation (87%) than with information provided on peritoneal dialysis (79%) or home haemodialysis (61%), and were more satisfied with information from health care professionals vs other sources such as social media. Most (75%) felt they had been involved in treatment selection, 29% perceived they had no free choice. Involvement in modality selection was associated with enhanced satisfaction with treatment (OR 3.13; 95% CI 2.72–3.60). Many respondents (64%) could not remember receiving education on how to manage their kidney disease in daily life. Perceptions on information seem to differ between countries.ConclusionsKidney patients reported to be overall satisfied with the information they received on their disease and treatment, although information seemed mostly to have been focused on one modality. Patients involved in modality selection were more satisfied with their treatment. However, in the perception of the patients, the freedom to choose an alternative modality showed room for improvement.

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“…In order for the instrument to have this property, including additional items would be required; doing so would demand a qualitative approach by including patients and other people associated with healthcare services. Previous studies have also had difficulties regarding a ceiling effect when measuring satisfaction among this kind of patients [20, 34]. In such cases, strategies such as increasing each item’s answer options and score normalization have been used [30]; however, using qualitative approaches to evaluate these constructs in patients reporting optimal experiences has also been proposed [20].…”

Section: Discussionmentioning

confidence: 99%

“…The Choices for Healthy Outcomes in Caring for End-Stage Renal Disease (CHOICE) [17] is an instrument that has been used for comparing satisfaction with the type of dialysis therapy [19], and as the basis for the development of other instruments. Other instruments for evaluating satisfaction in patients undergoing dialysis are the Satisfaction of Patients in Chronic Dialysis (SEQUS) [18], the SDIALOR ( Satisfaction des patients dialysés en Lorraine ) [1], the Client Satisfaction Questionnaire (CSQ) [20], the Customer Quality Index (CQ-index), the Renal Treatment Satisfaction Questionnaire (RTSQ) [21] and the Consumer Assessment of Healthcare Providers and Systems In-Center Hemodialysis (CAHPS-ICH) survey [22]. …”

Section: Introductionmentioning

confidence: 99%

Validation of an instrument for measuring satisfaction of patients undergoing hemodialysis

Sanabria-Arenas¹,

Marín²,

Certuche-Quintana

et al. 2017

BMC Health Serv Res

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BackgroundPatients’ satisfaction is an indicator of the quality of healthcare services. Its measurement involves developing and validating complex instruments. The purpose of this study was to validate a scale for measuring hemodialysis patients’ satisfaction with the provided care, the Scale for Evaluation of Hemodialysis Patient’s Satisfaction with Service provided at a Chronic Kidney Disease Unit (or ESUR-HD, its acronym in Spanish).MethodsThe instrument was applied to 370 patients undergoing hemodialysis for undertaking exploratory and confirmatory analyses, internal consistency assessment, and Rasch analysis. In order to assure test-retest reliability, the instrument was applied once again to 54 patients after 2 days. Convergent validity was assessed by estimating correlation coefficients based on the results of 2 instruments (ESUR-HD and SDIALOR) simultaneously applied in 70 patients. Sensitivity to change was assessed in 40 patients by comparing the scale scores before and after an intervention consisting of improved care conditions.ResultsIn the 44 items of the scale a 9-factor structure was found (1: Facilities and organization of the service. 2: Care provided by the attending nurses and/or nursing assistants. 3: Attention to psychological and administrative issues. 4: Contact and social work personnel. 5: Medical attention and care. 6: Nutritional attention and care. 7: Medications supply and quality. 8: Features of the admission process. 9: Attention and care provided by head nurses). Chronbach alpha for the scale was 0.96. Lin’s concordance correlation for the whole scale was 0.85. Although statistically different from 0, low correlation values with dimensions from another scale measuring the same attribute were found. The scale could detect construct changes through increased scores in specific dimensions following an intervention aimed at enhancing satisfaction. Rasch analysis located improperly fit items and suggested reducing items measurement levels. Despite the effect encountered, Rasch analysis showed the scale might not capture variability in upper attribute levels.ConclusionThe ESUR-HD scale measures hemodialysis patients’ satisfaction in one dimension with 9 domains. Validity and reliability are adequate. The instrument may detect changes in the construct. Subsequent versions of the scale should include new items allowing improved discrimination amongst high satisfaction levels.Trial registration 10.1186/ISRCTN45318400. April 05, 2017

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Development and validation of the Consumer Quality index instrument to measure the experience and priority of chronic dialysis patients

Cited by 32 publications

References 19 publications

A Thematic Synthesis of the Experiences of Adults Living with Hemodialysis

A Thematic Synthesis of the Experiences of Adults Living with Hemodialysis

Patients’ Perceptions of Information and Education for Renal Replacement Therapy: An Independent Survey by the European Kidney Patients' Federation on Information and Support on Renal Replacement Therapy

Validation of an instrument for measuring satisfaction of patients undergoing hemodialysis

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