Development of a clinician–parent home care education intervention

Lane, Blake; Hanke, Samuel P.; Giambra, Barbara K.; Madsen, Nicolas; Staveski, Sandra

doi:10.1017/s1047951119001318

Cited by 6 publications

(26 citation statements)

References 11 publications

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“…31 Our findings emphasise onpersonalised medicine concepts and patient-centred care. [14][15][16] With the desire to improve patient/caregiver comfort with medication management, our team implemented an app to provide caregivers with medication schedules in 2019 to provide automated reminders to administer medications postdischarge. We also introduced a preoperative psychological screen in 2019 within surgical workflow which triggers referral for behavioural counselling to improve pain coping.…”

Section: Discussionmentioning

confidence: 99%

“…Recent evidence shows that patient-centred approaches positively impact clinical outcomes and more efficient healthcare system utilisation 31. Our findings emphasise onpersonalised medicine concepts and patient-centred care 14–16. With the desire to improve patient/caregiver comfort with medication management, our team implemented an app to provide caregivers with medication schedules in 2019 to provide automated reminders to administer medications postdischarge.…”

Section: Discussionmentioning

confidence: 99%

“…Generate insights from previous learnings LWC reviewed processes and innovations stemming from three past collaborations between LWC and the cardiology team, 14 bone marrow transplant team 15 and behavioural medicine. 16 Generate insights into perioperative experiences LWC used an 'empathy map' 21 to organise insights of stakeholders.…”

Section: Stage 1 Stage 1amentioning

confidence: 99%

“…Review of LWC previous projects revealed the importance of having a road map for process flow and expectations, 14 providing information at the right time and right place, 15 and sharing information with patients/families, for optimal engagement. 16 Mapping experiences of stress/anxiety Stress 'hotspots' for caregivers/patients were mapped (online supplemental figure 1).…”

Section: Insights From Previous Learningsmentioning

confidence: 99%

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Design and implementation of a novel patient-centered empowerment approach for pain optimisation in children undergoing major surgery

et al. 2022

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BackgroundPaediatric surgery is a stressful experience for patients and caregivers. While standardised protocols are the norm, patient-centred approaches are needed to empower patients/caregivers for an optimal perioperative pain experience. To address this gap, we employed a patient-centred approach using design thinking (DT) methodology to develop insights, map processes, identify opportunities and design solutions for individualised empowerment tools.MethodsIn consultation with DT experts, a multidisciplinary team of stakeholders (healthcare providers, patients who underwent pectus excavatum/scoliosis surgery and their caregivers), were invited to participate in surveys, interviews and focus groups. The project was conducted in two sequential stages each over 24 weeks—involving 7 families in stage 1 and 16 patients/17 caregivers in stage 2. Each stage consisted of three phases: design research (focus groups with key stakeholders to review and apply collective learnings, map processes, stressors, identify influencing factors and opportunities), concept ideation (benchmarking and co-creation of new solutions) and concept refinement.ResultsIn stage 1, mapping of stress/anxiety peaks identified target intervention times. We identified positive and negative influencers as well as the need for consistent messaging from the healthcare team in our design research. Current educational tools were benchmarked, parent-child engagement dyads determined and healthcare-based technology-based solutions conceived. The ‘hero’s journey’ concept which has been applied to other illness paradigms for motivation successfully the was adapted to describe surgery as a transformative experience. In stage 2, patient and caregiver expectations, distinct personas and responses to perioperative experience were categorised. Educational tools and an empowerment tool kit based on sensorial, thinking, relaxation and activity themes, tailored to parent/child categories were conceptualised.ConclusionDT methodology provided novel family centred insights, enabling design of tailored empowerment toolkits to optimise perioperative experience. Adapting the hero’s journey call to adventure may motivate and build resilience among children undergoing surgery.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Stage 1 Stage 1amentioning

confidence: 99%

Section: Insights From Previous Learningsmentioning

confidence: 99%

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Design and implementation of a novel patient-centered empowerment approach for pain optimisation in children undergoing major surgery

et al. 2022

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“…5,7 Some data suggest that using a mobile application and/or other technology-based support systems may serve as a potential way to reduce knowledge gaps and enhance discharge readiness of caregivers whose children are discharged postoperatively from cardiac surgery. 13 The goals of this project were to (1) identify gaps in caregivers' knowledge and skills regarding the care of their child prior to discharge home from the perspectives of parents and clinicians and (2) assess acceptability of using an educational mobile application as an adjunctive modality for discharge preparation. This information will support the development of interventions seeking to improve discharge education for this complex population.…”

mentioning

confidence: 99%

Post-operative discharge education for parent caregivers of children with congenital heart disease: a needs assessment

et al. 2020

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Objective: Children with congenital heart disease (CHD) have complex unique post-operative care needs. Limited data assess parents’ hospital discharge preparedness and education quality following cardiac surgery. The goals were to identify knowledge gaps in discharge preparedness after congenital heart surgery and to assess the acceptability of an educational mobile application to improve discharge preparedness. Methods: Telephonic interviews with parents of children with two-ventricle physiology who underwent cardiac surgery 5–7 days post-discharge and in-person interviews with clinicians were conducted. We collected parent and clinician demographics, parent health literacy information and patient clinical data. We analysed interview transcripts using summative content analysis. Results: We interviewed 26 parents and 6 clinicians. Twenty-two of the 26 (85%) parents felt ready for discharge; 4 of the 6 (67%) clinicians did not feel most parents were ready for discharge. Fifteen of the 26 parents (58%) reported receiving the majority of discharge teaching on the day of discharge. Eight parents did not feel like all of their questions were answered. Most parents (14/26, 54%) preferred visual educational learning aids and could accurately describe important aspects of care. Most parents (23/26, 88%) and all 6 clinicians felt a mobile application for post-operative care education would be helpful. Conclusions: Most parents received education on the day of discharge and could describe the information they received prior to discharge, although there were some preparedness gaps identified after discharge. Clinicians and parents varied in their perceptions of the readiness for discharge. Most responses suggest that a mobile application for discharge education may be helpful for transition to home.

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Toward improved co-designing home care solutions based on personas and design thinking with older users

Gaspar

Gonçalves²,

Filho³

et al. 2022

Univ Access Inf Soc

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Development of a clinician–parent home care education intervention

Cited by 6 publications

References 11 publications

Design and implementation of a novel patient-centered empowerment approach for pain optimisation in children undergoing major surgery

Design and implementation of a novel patient-centered empowerment approach for pain optimisation in children undergoing major surgery

Post-operative discharge education for parent caregivers of children with congenital heart disease: a needs assessment

Toward improved co-designing home care solutions based on personas and design thinking with older users

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