Development of a conceptual model of health‐related quality of life among hepatitis C patients: A systematic review of qualitative studies

Mhatre, Shivani K.; Sansgiry, Sujit S.

doi:10.1111/hepr.12521

Cited by 20 publications

(43 citation statements)

References 33 publications

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“…Patients infected with HCV face a variety of negative physical, social, and psychological effects associated with a disease that spans beyond the impact of the virus. Physically, patients may experience severe levels of fatigue that debilitates their productivity at home or work . This physical effect may influence them psychologically and socially as they struggle with routine chores or even lose their jobs altogether .…”

Section: Discussionmentioning

confidence: 99%

Engaging hepatitis C infected patients in cost‐effectiveness analyses: A literature review

2017

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Section: Discussionmentioning

confidence: 99%

Engaging hepatitis C infected patients in cost‐effectiveness analyses: A literature review

2017

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“…High prevalance of dissatisfaction with sexual life and sexual dysfunction was found in chronic hepatitis C patients in Brazil, and it was related to factors such as symptoms of depression or taking antidepressants (18). Decreased sexual function due to either disease or hepatitis C treatment, fear of disease transmission, or lack of sexual interest were observed in hepatitis C patients; regardless of the underlying reasons, decreased sexual function leads to worse sexual relations in partners (19).…”

Section: Discussionmentioning

confidence: 99%

“…On the contrary, there is a lack of qualitative researches on reporting sexual health of males and females with chronic diseases that consider their subjective experiences (17). Because a few studies exist on marital problems in patients with chronic hepatitis C (18)(19)(20), knowledge on marital problems of HBV carriers is limited. As hepatitis B infection is a confidential and unparalleled experience, to have a detailed understanding of the patients' marital challenges, which are the most confidential secrets of private life, using a qualitative approach will be helpful.…”

Section: Introductionmentioning

confidence: 99%

A Qualitative Study on Marital Challenges of Chronic Hepatitis B Patients

Hassani

Ezbarami

Tafreshi

et al. 2017

Iran Red Crescent Med J

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Background: Hepatitis B is a life-threatening viral infection that is mainly transmitted through blood; due to the presence of this virus in semen, vaginal fluids, and saliva, the possibility of transmission among couples during marital life still exists. Objectives: This study was conducted to specify the patients' perception of their marital problems. Methods: In this descriptive qualitative research conducted in Iran, 32 patients with chronic hepatitis B were selected through purposive sampling. The data were collected through semi-structured interviews and field notes during 23 months in 2015 and 2016. The interview transcripts were coded by using MAXQDA10 software®. The utilization of thematic analysis approach was to extract categories and themes. Results: Participants of this study were in the chronic and inactive phase of hepatitis B. Participants' age varied from 24 to 57 years. Three major themes were extracted: premarriage challenges, conjugal life with suffering, and lack of marital adjustment. Conclusions: Like other chronic diseases, chronic hepatitis B causes numerous marital challenges for the carriers of the disease. The partners of patients with hepatitis B can be used as self-care facilitating agents in the family to promote self-care of these patients and help better manage their marital challenges.

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“…The research team developed an interview guide with open‐ended questions addressing key aspects of being diagnosed with HCV infection and living with this disease based on the work of Mhatre and others (Chen et al., ; Janke, McGraw, Garcia‐Tsao, & Fraenkel, ; Mhatre & Sansgiry, ; North, Devereaux, Pollio, Hong, & Jain, ; North, Sims et al., ). The questions focused on participants’ experiences and challenges with their HCV infection diagnosis, interactions with family and friends, impact on daily life, treatment options and care for HCV (Table ).…”

Section: Methodsmentioning

confidence: 99%

Improving support and education of low‐income baby boomers diagnosed with chronic hepatitis C virus infection through universal screening

Turner

Craig

Makanji

et al. 2017

Journal of Clinical Nursing

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Aims and objectives The objective of this study was to identify support needs of low income baby boomers recently diagnosed with chronic hepatitis C virus infection. Background The United States Preventive Services Task Force has endorsed one-time screening of all baby boomers (born 1945 to 1965) for hepatitis C because 75% of the estimated 2 to 3 million persons with chronic infection are in this age range. We hypothesized that persons diagnosed by routine screening would have significant psycho-emotional, cognitive, and health care challenges that need to be met by collaborative care and services from nurses and other health care personnel. Design Qualitative descriptive study of data from three focus groups with predominantly minority participants (N=16). Data were analyzed using qualitative content analysis, transcribed data were categorized by 3 domains in a previously developed model and a new domain identified in this study. Frequencies of unique participants’ comments about each theme were calculated. Results Elucidated domains were: 1) psycho-emotional effects due to social stigma, shame, fear, dealing with risky behaviors; 2) social effects due to concerns about infecting others; and 3) cognitive deficits because of poor understanding about HCV infection and its care. A new domain related to health care emerged reflecting the following themes: poor access to care, barriers to costly treatment, and navigating complex care for comorbidities. Despite these challenges, participants strongly endorsed universal baby boomer hepatitis C virus screening. Conclusion This study describes psycho-emotional and social challenges of people dealing with a hepatitis C diagnosis that are compounded by poor knowledge and barriers to supportive care. Relevance to clinical practice Nursing and other allied health personnel require structured support programs to assist older persons diagnosed with hepatitis C with addressing these common challenges with the ultimate goal of achieving a cure.

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Development of a conceptual model of health‐related quality of life among hepatitis C patients: A systematic review of qualitative studies

Abstract: The systematic review and the proposed model represent a useful starting point in the critical appraisal of the conceptual underpinnings of PRO instruments used in HCV patients.

Cited by 20 publications

References 33 publications

Engaging hepatitis C infected patients in cost‐effectiveness analyses: A literature review

Engaging hepatitis C infected patients in cost‐effectiveness analyses: A literature review

A Qualitative Study on Marital Challenges of Chronic Hepatitis B Patients

Improving support and education of low‐income baby boomers diagnosed with chronic hepatitis C virus infection through universal screening

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