Development of a condition‐specific measure to assess quality of life in patients with hypodontia

Akram, Ansa; Jerreat, AS; Woodford, Joanne; Sandy, Jonathan R; Ireland, Anthony J

doi:10.1111/j.1601-6343.2011.01517.x

Cited by 28 publications

(24 citation statements)

References 19 publications

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“…The esthetic result should fulfill the patient's expectations, but it is perhaps as important that the dentist is content with the result. In clinical studies, patients' evaluation has been measured by standardized questionnaires [4,5] or described by interviews [6] whereas no means to measure or describe professional evaluation in a standardized manner has been used.…”

Section: Introductionmentioning

confidence: 99%

Responsiveness of the Prosthetic Esthetic Scale

Özhayat

2016

Clin Oral Invest

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Section: Introductionmentioning

confidence: 99%

Responsiveness of the Prosthetic Esthetic Scale

Özhayat

2016

Clin Oral Invest

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“…The differences among the groups may be related to differences in stressors; thus, adults in the oligodontia/ED group may experience a different type of stress than adults in the other groups. For example, many individuals with oligodontia/ED have noticeable spaces between the teeth, which may cause significant teasing and bullying in adolescence [ 46 ]. At some stage in adulthood, these individuals often undergo extensive prosthodontic treatment.…”

Section: Discussionmentioning

confidence: 99%

Living with orofacial conditions: psychological distress and quality of life in adults affected with Treacher Collins syndrome, cherubism, or oligodontia/ectodermal dysplasia—a comparative study

et al. 2014

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Purpose The relationship between quality of life, psychological distress, and orofacial syndromes in children and adolescents has been reported in several studies. However, little is known about differences in psychological distress and quality of life among adults with different orofacial conditions. Therefore, the aims of this study were to examine and compare these factors among three groups of adults affected by Treacher Collins syndrome (TCS), cherubism, and oligodontia/ectodermal dysplasia (ED). Methods We included 11 individuals with TCS (mean age 46.9, SD 12.9 years), 15 with cherubism (mean age 50.3, SD 16.8 years), and 49 with oligodontia/ED (mean age 30.7, SD 15.6 years). The respondents completed questionnaires related to psychological distress and quality of life. Results The oligodontia/ED group had a significantly higher level of anxiety and worse mental health-related quality of life than both the TCS and cherubism groups. Adults with TCS reported the highest level of depression, and the lowest levels of overall quality of life, well-being, and physical health-related quality of life. The cherubism group displayed the best overall quality of life, well-being, and mental health.Conclusions Psychological distress and quality of life differed in various orofacial conditions. This study provided insight into these aspects that may contribute to improved care.

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“…Survey components included an introduction to the survey and explanation of its purpose, questions to obtain demographic data, an explanation of the attribute and DCE task followed by the eight DCE choice tasks, and background questions identifying factors that may influence preference ratings. Background questions included questions about knowledge (based on the domains of the Illness Perception Questionnaire [ 38 ]), beliefs about dental treatment (developed from the Beliefs about Medicine Questionnaire [ 39 ] and the Beliefs about Surgery Questionnaire [ 40 ]), decision making (based on the SURE tool [ 41 ]), dental anxiety (5-point Likert scale) and the impact of hypodontia (using questions from a hypodontia-specific tool [ 42 ]).…”

Section: Methodsmentioning

confidence: 99%

Development of a Discrete-Choice Experiment (DCE) to Elicit Adolescent and Parent Preferences for Hypodontia Treatment

Barber

Bekker

Marti

et al. 2018

Patient

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ObjectiveOur objective was to develop and test a discrete-choice experiment (DCE) survey to elicit adolescent and parent preferences for dental care for hypodontia (a developmental condition where one or more teeth fail to develop).MethodsThis was a mixed-methods study. Participants were adolescents (aged 12–16 years) with hypodontia and their parents and the dentists providing hypodontia care. Stage one entailed attribute development, as follows. (1) Attribute identification: systematic review of hypodontia literature; interviews with adolescents with hypodontia (n = 8) and parents (n = 8); observation of hypodontia clinical consultations (n = 5); environmental scan of hypodontia patient information resources (n = 30); and systematic analysis of social media posts (n = 176). (2) Attribute selection: stakeholder consultation to develop items for a questionnaire; rating and ranking questionnaire for adolescents with hypodontia and parents (n = 18); further stakeholder consultation. Stage two involved the development of the DCE survey, and stage three included the pre-testing using cognitive interviews with adolescents (n = 12) and parents (n = 8) to assess face and content validity.ResultsThe attribute long list included 27 attributes focusing on service delivery and treatment outcome, from which seven ‘important’ attributes were selected for pre-testing. Cognitive interviewing suggested adolescents found the DCE choice tasks challenging to understand; the survey was modified to enhance its acceptability. One attribute was excluded as it showed poor validity with adolescents. Pre-testing suggested DCE choice tasks encouraged thinking and discussion about preferences for treatment.ConclusionsIncluding the target respondent group in all stages of DCE development ensured the final DCE survey was valid and acceptable. DCE methods appear to be a useful tool for exploring joint decision making alongside conventional preference elicitation.Electronic supplementary materialThe online version of this article (10.1007/s40271-018-0338-0) contains supplementary material, which is available to authorized users.

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Development of a condition‐specific measure to assess quality of life in patients with hypodontia

Abstract: A new measure for assessment of quality of life in patients with hypodontia is presented.

Cited by 28 publications

References 19 publications

Responsiveness of the Prosthetic Esthetic Scale

Responsiveness of the Prosthetic Esthetic Scale

Living with orofacial conditions: psychological distress and quality of life in adults affected with Treacher Collins syndrome, cherubism, or oligodontia/ectodermal dysplasia—a comparative study

Development of a Discrete-Choice Experiment (DCE) to Elicit Adolescent and Parent Preferences for Hypodontia Treatment

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