Development of a Web-Based Integrated Birth Defects Surveillance System in New York State

Wang, Ying; Zhang, Tao; Cross, Philip K.; Le, Linh H.; Steen, Patricia M.; Babcock, Gwen D.; Druschel, Charlotte M.; Hwang, Syni‐An

doi:10.1097/01.phh.0000338377.83736.9c

Cited by 9 publications

(7 citation statements)

References 19 publications

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“…The successful geocoding rate of 88.5% is comparable to other studies that involve geocoding birth certificate data (27, 28). However, a significantly lower proportion of successful geocoded addresses among the rural population was not optimal.…”

Section: Discussionsupporting

confidence: 77%

Potential selection bias associated with using geocoded birth records for epidemiologic research

Mao

et al. 2016

Annals of Epidemiology

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Purpose There is an increasing use of geocoded birth registry data in environmental epidemiology research. Ungeocoded records are routinely excluded. Methods We used classification and regression tree analysis (CART) and logistic regression to investigate potential selection bias associated with this exclusion among all singleton Florida births in 2009 (N=210,285). Results The rate of unsuccessful geocoding was 11.5% (n=24,171). This ranged between 0% to 100% across zip codes. Living in a rural zip code was the strongest predictor of being ungeocoded. Other predictors for geocoding status varied with urbanity status. In urban areas, maternal race [adjusted odds ratio (aOR) ranging between 1.08 for Hispanic to 1.18 for Black compared to White], maternal age [aOR: 1.16 (1.10-1.23) for ages 20-34 compared to <20], maternal nativity [aOR: 1.20 (1.15, 1.25) for Non-US vs. US born], delivery at a birth center [aOR: 1.72(1.49, 2.00 compared to hospital delivery)], multiparity [aOR: 0.91 (0.88, 0.94)], maternal smoking [aOR: 0.82 (0.76-0.88)] and having non-private insurance [aOR: 1.25 (1.20-1.30) for Medicaid vs. private insurance] were significantly associated with being ungeocoded. In rural areas, births delivered at birth center [aOR: 2.91(1.80-4.73)] or home [aOR: 1.94(1.28-2.95) had increased odds compared to hospital births. The characteristics predictive of being ungeocoded were also significantly associated with adverse birth outcomes such as low birthweight and preterm delivery, and the association for maternal age was different when ungeocoded births were included and excluded. Conclusions Geocoding status is not random. Women with certain exposure-outcome characteristics may be more likely to be ungeocoded and excluded, indicating potential selection bias.

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Section: Discussionsupporting

confidence: 77%

Potential selection bias associated with using geocoded birth records for epidemiologic research

Mao

et al. 2016

Annals of Epidemiology

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“…Aside from geocoding (Forand et al, 2002;Gilboa et al, 2006, GIS techniques have been used in birth defects research in a variety of ways, such as determining prevalence, risk factors (e.g., socioeconomic status and living near hazardous sites), access to health care, and mapping the spatial distribution of birth defects (Rushton and Lolonis, 1998;Wasserman et al, 1998;Siffel et al, 2006;Gardner et al, 2007;Case et al, 2008;Langlois et al, 2009a,b;Luben et al, 2009;Messer et al, 2010;Wang et al, 2010a;Root et al, 2011;Fixler et al, 2012;Colvin et al, 2013). Aday and Andersen (1974) suggested that "access" needed to be measured in terms of whether the population with health care needs is able to enter the medical system, a concept also known as "realized" access (Khan and Bhardwaj, 1994).…”

Section: Introductionmentioning

confidence: 99%

Modeling travel impedance to medical care for children with birth defects using Geographic Information Systems

Delmelle

Cassell

Dony

et al. 2013

Birth Defects Research

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BACKGROUND Children with birth defects may face significant geographic barriers accessing medical care and specialized services. Using a Geographic Information Systems–based approach, one-way travel time and distance to access medical care for children born with spina bifida was estimated. METHODS Using 2007 road information from the Florida Department of Transportation, we built a topological network of Florida roads. Live-born Florida infants with spina bifida during 1998 to 2007 were identified by the Florida Birth Defects Registry and linked to hospital discharge records. Maternal residence at delivery and hospitalization locations were identified during the first year of life. RESULTS Of 668 infants with spina bifida, 8.1% (n = 54) could not be linked to inpatient data, resulting in 614 infants. Of those 614 infants, 99.7% (n = 612) of the maternal residential addresses at delivery were successfully geocoded. Infants with spina bifida living in rural areas in Florida experienced travel times almost twice as high compared with those living in urban areas. When aggregated at county levels, one-way network travel times exhibited statistically significant spatial autocorrelation, indicating that families living in some clusters of counties experienced substantially greater travel times compared with families living in other areas of Florida. CONCLUSION This analysis demonstrates the usefulness of linking birth defects registry and hospital discharge data to examine geographic differences in access to medical care. Geographic Information Systems methods are important in evaluating accessibility and geographic barriers to care and could be used among children with special health care needs, including children with birth defects.

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“…Web-based registries have been previously established in other fields of medicine 256. Most involve conversion of existing manual and computer-based registries to web-based registries.…”

Section: Discussionmentioning

confidence: 99%

“…Additionally, the web-based approach overcomes data management issues and allows for periodic generation of information for monitoring and policy making. Health managers at hospitals, national, and international levels use web-based registries to compile information on different health issues 567…”

Section: Introductionmentioning

confidence: 99%

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Development of a web-based glaucoma registry at King Khaled Eye Specialist Hospital, Saudi Arabia: A cost-effective methodology

Zaman

Khandekar

Shahwan

et al. 2014

Middle East Afr J Ophthalmol

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In this brief communication, we present the steps used to establish a web-based congenital glaucoma registry at our institution. The contents of a case report form (CRF) were developed by a group of glaucoma subspecialists. Information Technology (IT) specialists used Lime Survey softwareTM to create an electronic CRF. A MY Structured Query Language (MySQL) server was used as a database with a virtual machine operating system. Two ophthalmologists and 2 IT specialists worked for 7 hours, and a biostatistician and a data registrar worked for 24 hours each to establish the electronic CRF. Using the CRF which was transferred to the Lime survey tool, and the MYSQL server application, data could be directly stored in spreadsheet programs that included Microsoft Excel, SPSS, and R-Language and queried in real-time. In a pilot test, clinical data from 80 patients with congenital glaucoma were entered into the registry and successful descriptive analysis and data entry validation was performed. A web-based disease registry was established in a short period of time in a cost-efficient manner using available resources and a team-based approach.

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Development of a Web-Based Integrated Birth Defects Surveillance System in New York State

Cited by 9 publications

References 19 publications

Potential selection bias associated with using geocoded birth records for epidemiologic research

Potential selection bias associated with using geocoded birth records for epidemiologic research

Modeling travel impedance to medical care for children with birth defects using Geographic Information Systems

Development of a web-based glaucoma registry at King Khaled Eye Specialist Hospital, Saudi Arabia: A cost-effective methodology

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