Dialogue between workers and family members is related to their attitudes towards self-determination of individuals with intellectual disability

Martínez‐Tur, Vicente; Estreder, Yolanda; Moliner, Carolina; Gracia, Esther; Pătraș, Luminița; Zornoza, Ana

doi:10.3109/13668250.2017.1416256

Cited by 14 publications

(11 citation statements)

References 38 publications

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“…The individual responses are not only a result of this unique set of factors, but may also be explained by the mothers' level of knowledge, awareness and understanding of self‐determination (Shogren, ). The idea of autonomy and self‐determination for adults with intellectual disability can be worrying for parents (Biswas et al, ), with the concept of self‐determination not always accepted (Martínez‐Tur et al, ). The mothers in this study had varying levels of previous experience with the disability sector and with the concept of self‐determination (see column Involvement in disability sector in Table ), and this may well have influenced the level of importance they placed on supporting and encouraging self‐determination.…”

Section: Discussionmentioning

confidence: 99%

The experience of mothers supporting self‐determination of adult sons and daughters with intellectual disability

Curryer

Stancliffe

Wiese

et al. 2019

Research Intellect Disabil

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Background:The right of people with disability to be self-determining, to live a life of their choosing, is increasingly recognized and promoted. For adults with intellectual disability, support to enable self-determination may be required. This is often provided by family, yet little is understood about the experience of providing such support.Methods: An interpretative phenomenological analysis (IPA) of eight individual, semi-structured interviews with mothers was conducted, to understand the meaning given to their experience of supporting self-determination of their adult son or daughter with intellectual disability.Results: Three superordinate themes were identified: (a) support context; (b) continuum of support roles; and (c) mother's personal concerns. Conclusion:Mothers of adults with intellectual disability experience an ongoing sense of responsibility to balance competing rights and concerns as they support self-determination. This complex, interdependent relationship results in roles that may facilitate, guide, influence and at times restrict choice and control.

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Section: Discussionmentioning

confidence: 99%

The experience of mothers supporting self‐determination of adult sons and daughters with intellectual disability

Curryer

Stancliffe

Wiese

et al. 2019

Research Intellect Disabil

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“…Los padres tienen dudas sobre los niveles de autodeterminación que pueden alcanzar sus hijos, las estrategias que deben utilizar para promover esta competencia y los riesgos que puede implicar la autodeterminación. Todo ello limita el apoyo de las familias a la autodeterminación (Martínez-Tur et al, 2018).…”

Section: Discussionunclassified

“…Se percibe, por lo tanto, que la familia y los centros no están alineados en este sentido, y que establecer estrategias comunes favorecería el uso de estrategias efectivas autodeterminación en adolescentes y jóvenes con discapacidad intelectual: perspectiva de los padres eliana noemí sabeh, licia maría sotelo aguilar y maría paula carreras en el logro de la autodeterminación. Teniendo en consideración la importancia de los apoyos, tanto por parte de los profesionales como de la familia, Martínez-Tur et al (2018) analizaron las actitudes de estos dos grupos en una amplia muestra de participantes, observando que los profesionales que trabajan con personas con discapacidad presentan mejores actitudes que las familias hacia la autodeterminación de las personas con discapacidad intelectual. Por otro lado, cuando existe una comunicación abierta entre estos, las actitudes tienden a converger.…”

Section: Discussionunclassified

Autodeterminación en adolescentes y jóvenes con discapacidad intelectual: perspectiva de los padres

Sabeh

Aguilar

Carreras

2020

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La autodeterminación de las personas con discapacidad es esencial para el logro de su calidad de vida. El apoyo que brindan las familias a los hijos depende en buena medida de las percepciones que sostienen sobre la autodeterminación. Por eso esta investigación pretende describir la opinión de padres de adolescentes y jóvenes con discapacidad intelectual acerca de este constructo. Se conformaron 5 grupos focales, con 42 participantes. El análisis lexicométrico de las entrevistas grupales, utilizando el software Iramuteq, arrojó cuatro dimensiones: autonomía; barreras en la familia y el entorno; apoyos y oportunidades; capacidades psicológicas. Los padres desconocen el concepto de autodeterminación en toda su extensión. Lo asocian con la autonomía en el cuidado personal y en las tareas del hogar y, en menor medida, con la vida en la comunidad. Las barreras familiares son de tipo psicológico: el miedo, la sobreprotección, la subestimación y falta de confianza en las capacidades del hijo. Esto los lleva a ofrecer menos oportunidades. Consideran a la sociedad poco preparada para fomentar estos procesos. Sienten la necesidad de recibir apoyo profesional orientado a revisar sus creencias, aumentar sus conocimientos y poner en práctica estrategias que faciliten el logro de la autodeterminación en sus hijos.

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“…The lack of integration is linked to excessive institutionalization, lack of autonomy, overprotection by their families, and low employment levels (e.g., Maulik et al, 2011). One of the challenges to achieving inclusive contexts and independent living of people with intellectual disability is the cooperation between professionals in organizations and family members (Carter et al, 2013;Martínez-Tur et al, 2018). When the main efforts stem only from the professionals in organizations, there is not much hope for real improvement in the lives of people with intellectual disability.…”

Section: Maintextmentioning

confidence: 99%

Using Autonomous Teams to Improve Quality of Life of People with Intellectual Disabilities

Blížkovská

Martínez‐Tur²,

Pătraș

et al. 2022

Applied Research Quality Life

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This research study tested an intervention, based on autonomous teams and the service co-creation approach, to improve the social inclusion and self-determination (as indicators of quality of life) of people with intellectual disability. Members of the autonomous teams (professionals, people with intellectual disability, and family members) cooperated to plan and carry out a project. A total of 72 autonomous teams participated (experimental condition). Each team designed its action plan to be implemented during eight weeks. Three measurement times were used: before the intervention (T1), four (T2) and eight (T3) weeks after the starting point. Family members (experimental group, N = 117; control group, N = 187) reported on the social inclusion and self-determination of their relative with intellectual disability. Scores in the control group remained stable over time, whereas scores in the experimental group changed significantly. Social inclusion increased (T2), and later stabilized (T3). By contrast, self-determination increased (T2), but this improvement was subsequently reduced (T3).

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Dialogue between workers and family members is related to their attitudes towards self-determination of individuals with intellectual disability

Cited by 14 publications

References 38 publications

The experience of mothers supporting self‐determination of adult sons and daughters with intellectual disability

The experience of mothers supporting self‐determination of adult sons and daughters with intellectual disability

Autodeterminación en adolescentes y jóvenes con discapacidad intelectual: perspectiva de los padres

Using Autonomous Teams to Improve Quality of Life of People with Intellectual Disabilities

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