Difficult-to-Recruit Respondents and Their Effect on Prevalence Estimates in an Epidemiologic Survey

Cottler, Linda B.; Zipp, John F.; Robins, Lee N.; Spitznagel, Edward L.

doi:10.1093/oxfordjournals.aje.a114534

Cited by 122 publications

(65 citation statements)

References 30 publications

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“…Therefore, the current study overrepresents non-Hispanic whites not only compared with the US population, but also compared with rheumatology practice. These findings are characteristic of survey research and medical care, since minorities are less likely to seek specialist care (27)(28)(29)(30) and to participate in studies (31)(32)(33)(34). It should also be noted that fewer persons in our cohort than in the US population did not complete high school (11.7% versus 15.9%).…”

Section: Discussionmentioning

confidence: 66%

Tuberculosis infection in patients with rheumatoid arthritis and the effect of infliximab therapy

Wolfe¹,

Michaud²,

Anderson³

et al. 2004

Arthritis & Rheumatism

390

189

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Objective. According to the Centers for Disease Control and Prevention, the 1999 and 2000 incidence rates for tuberculosis (TB) in the US population were 6.4 and 5.8, respectively, per 100,000 persons. Recently, reports of TB following infliximab administration have raised questions regarding the rate of TB in patients with rheumatoid arthritis (RA) generally and in those treated with infliximab in clinical practice. We undertook this study to determine the baseline rate of TB in RA prior to the introduction of infliximab and to determine the rate of TB among those currently receiving infliximab.Methods. We surveyed patients with questionnaires, followed by detailed validation from medical records and physician reports. In study 1, we evaluated 10,782 RA patients in 1998-1999 prior to the widespread use of infliximab. In study 2, we evaluated 6,460 infliximab-treated patients in 2000-2002.Results. In study 1, the lifetime rate of TB was 696 per 100,000 patients (95% confidence interval [95% CI] 547-872). Of these cases, 76.8% occurred prior to the onset of RA. During the period of prospective followup, 1 case of TB developed during 16,173 patient-years of followup, yielding a rate of 6.2 cases (95% CI 1.6-34.4) per 100,000 patients. In study 2, the TB incidence rate among infliximab-treated patients was 52.5 cases (95% CI 14.3-134.4) per 100,000 patient-years of exposure. Three of the 4 cases occurred in patients with a history of TB exposure, and no cases occurred in persons with recent TB skin tests or prophylaxis. Conclusion.The rate of TB is not increased in RA patients generally. Among infliximab-treated patients, the rate is 52.5 cases (95% CI 14.3-134.4) per 100,000 patient-years of exposure. A thorough medical history regarding TB, as well as tuberculin testing and radiographic examination (if indicated), should be an essential component of anti-tumor necrosis factor therapy.

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Section: Discussionmentioning

confidence: 66%

Tuberculosis infection in patients with rheumatoid arthritis and the effect of infliximab therapy

Wolfe¹,

Michaud²,

Anderson³

et al. 2004

Arthritis & Rheumatism

390

189

View full text Add to dashboard Cite

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“…Several published studies comparing the characteristics of non-respondents and late respondents report similar results regarding demographic and socioeconomic variables 37,38) while others do not 9,39) . We could not confirm the assumption that late respondents had intermediate characteristics between respondents and nonrespondents 40) .…”

Section: Discussionmentioning

confidence: 85%

Non‐response Bias in a Surveillance Program for Asbestos‐related Lung Cancer

Knoll¹,

Felten²,

Ackermann

et al. 2011

Journal of Occupational Health

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Non-response Bias in a SurveillanceProgram for Asbestos-related Lung Cancer: Lars Knoll, et al. Institute of Occupational Medicine, RWTH Aachen University, Germany-Objectives: In a cohort study non-response might lead to a biased selection of cohort members and may affect the validity and reliability of the study outcome. To detect the possible effects of a non-response bias on study results, we evaluated the reasons for non-participation and the differences of respondents and non-respondents in a health surveillance program for power industry workers, formerly exposed to asbestos. Methods: A cohort of former power plant workers was formed to participate in an early detection program for lung cancer. We evaluated the results of 1,019 individuals (mean age 66 yr), of which 839 took part in at least one examination, 180 refused to participate or did not respond. To obtain the reasons for non-response, we interviewed the cohort members by telephone or we requested them by mail to complete and return a brief questionnaire. Further sources of information were the communal registration offices and local health offices. Results: The main reasons for non-participation were refusal (35%), illness (23.3%), death (16.7%) and difficulties with traveling (13.3%). It was impossible to make contact with or obtain an explanation from 11.7%. In a logistic regression model we demonstrated that advanced age and a long travel distance from the study center negatively affected the participation rate (p<0.001). There was no difference between respondents and non-respondents regarding prevalence (p=0.559) and incidence of lung cancer (p=0.882). Conclusion: We concluded that in our cohort non-participation did not cause a selection bias in terms of lung cancer rates. (J Occup Health 2011; 53: 16-22)

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“…The sex response differential was only present in adults and may reflect different approaches to health matters with females placing a higher priority on such issues increasing their willingness to participate in health research [26,27]. The similar sex response rates in children probably reflected the involvement of parents in the participation decision, treating children of both sexes equally.…”

Section: Discussionmentioning

confidence: 97%

A novel method of oral fluid collection to monitor immunity to common viral infections

Morris-Cunnington

Edmunds²,

Miller³

et al. 2004

Epidemiol. Infect.

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SUMMARYSerological surveys among representative population samples have proved rare given their reliance on invasive sample collection. We therefore completed the first population-based postal survey of immunity in England and Wales using new oral fluid technology. This paper examines the feasibility of this new methodological approach. Nearly 5500 oral fluid samples were collected, with individual demographic and social data via a questionnaire, from persons under 45 years of age recruited through general practices. Instructions were accurately followed with only 1 % of samples returned without risk-factor data. The overall response rate was 40%. Response was independently associated with age, sex and location. Response was highest in children aged 5-14 years, adult females and in rural locations. This approach allowed the successful collection of comprehensive individual risk data, but response rates in adults must be improved if oral fluid surveys are to routinely complement serological surveillance.

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Difficult-to-Recruit Respondents and Their Effect on Prevalence Estimates in an Epidemiologic Survey

Cited by 122 publications

References 30 publications

Tuberculosis infection in patients with rheumatoid arthritis and the effect of infliximab therapy

Tuberculosis infection in patients with rheumatoid arthritis and the effect of infliximab therapy

Non‐response Bias in a Surveillance Program for Asbestos‐related Lung Cancer

A novel method of oral fluid collection to monitor immunity to common viral infections

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