DISABKIDS® in Brazil: advances and future perspectives for the production of scientific knowledge

Abstract

Objective: to map the Brazilian scientific production related to the stages of the methodological process for the use of DISABKIDS ® instruments and/or forms adapted to Brazil. Method: scoping review, with searches conducted on10 electronic databases, plus Google Scholar and contacts with researchers, without restriction of period or language. Results: the mapping identified 90 scientific studies involving 46 instruments. Of these, 11 (23.9%) included the elaboration and/or cultural adaptation of the DISABKIDS ® instruments to measure the Quality of Life of children or adolescents with chronic conditions and 35 (76.1%) used the Generic Measures and/or Specific Modules for the semantic validation of other instruments. Conclusion: this scoping review allowed a comprehensive evaluation of the use of the DISABKIDS ® instrument and forms, in relation to the validation of the instrument adapted to Brazil, presenting a positive advance in the scenario with the development of academic/scientific projects in the country, incorporating the method recommended by the literature for the elaboration, cultural adaptation and validation of instruments and for the systematized and standardized recording of the perception and understanding of the target population about the measure of interest, using DISABKIDS ® forms adapted for this purpose.

Cultural adaptation of the Child Feeding Questionnaire for use in Brazil

“…The semantic validation adjusts the instrument to the language of interest, not only enabling the identification of the level of understanding for each item, but also adjusting the answers for which the instrument was built [21]. Still, reliability is an important psychometric property, as it indicates the consistency, accuracy, and stability of the instrument; it means that it ensures that the instrument measures the object to which it is proposed in a reproducible way [22][23][24][25].…”

Construct elaboration and validity of the Pregnancy Depression Risk Scale

“…This is a methodological study, which used the assumptions proposed by Pasquali and the DISABKIDS ® Group as methodological frameworks ( 14 - 16 ) , carried out, from January 12, 2017 to March 15, 2018, at the Usual Risk Prenatal Outpatient Clinic of a public maternity hospital and at the High-Risk Pregnancy Outpatient Clinic of a public university hospital, located in a medium-sized city located in the countryside of the state of São Paulo, Brazil.…”

Aprender brincando: validação semântica de tecnologia educacional sobre tuberculose para crianças escolares

“…This aspect is reinforced in this study, since we considered children of school age, a phase of assimilation of knowledge and stimulus to critical thinking, and when producing educational technologies in a simple, clear, and objective way, which can provide greater knowledge and adherence of children and their families to the subject in question. 25,26 For any group, in any age group, one must consider, in a contextualized way, the amount and type of information that the target audience wants or needs to feel informed and encouraged to change practices, not forgetting that such changes are dependent on experiences and information from other sources. Materials written in easy-to-understand language, such as word search puzzles, can enhance the development of skills for adherence to conducts of prevention and treatment of various diseases.…”