Disease adaptation may have decreased quality-of-life responsiveness in patients with chronic progressive neurological disorders

Kern, R.; Brown, Adalsteinn D.

doi:10.1016/j.jclinepi.2004.03.004

Cited by 8 publications

(10 citation statements)

References 72 publications

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“…The concept quality of life is variously used to indicate health and functional status, perceived health status, subjective health, health perception, symptoms, satisfaction, cognition, functional disability, disorder and well-being [4]. Often in clinical studies these terms are interchangeably used, although, it is evident that they are different concepts.…”

Section: Analysis Of Results and Discussionmentioning

confidence: 99%

“…We found limitations in the analyzed articles: not representative sample of the population [1], the relevance of self-report (which can condition the individual and clinical characteristics) [1,4,6], the cross-sectional design of the study [1,6], the use of non-specific resources for pathologies [6], the data generalization to clinical observations [7].…”

Section: Summary Of Methodological Limitationsmentioning

confidence: 99%

“…The HRQoL measure, however, it is not easy, because it is not directly observable and is often assessed by questionnaires about daily activity, functional capacity, cognitive performance and/or selfreports (selection of instruments based on evaluations made by patients, may have implications for the accuracy of the information, when faced with clinical information) [4,17].…”

Section: Journal Of Neurology and Neuroscience Issn 2171-6625mentioning

confidence: 99%

“…Thus, these instruments can provide useful information along the continuum of care for people with neurodegenerative disease, from early diagnosis to more severe states, ambulatory and hospital services, health and the level of social assistance. Therefore, these instruments appear to be promising tools to monitor QL changes [4].…”

Section: Journal Of Neurology and Neuroscience Issn 2171-6625mentioning

confidence: 99%

“…The measures of HRQoL include physical, psychological and social dimensions [1][2][3][4]. Physical component summary (PCS) and mental component summary (MCS) are two measures of HRQoL (present on short form health survey).…”

Section: Introductionmentioning

confidence: 99%

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Quality of Life in Patients with Neurodegenerative Diseases

Batista¹,

Pereira²

2016

J Neurol Neurosci

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Neurodegenerative diseases are characterized by a progressive deterioration of brain function, with a significantly consequent decrease in the quality of life of patients and their families. Due to increasing life expectancy, the incidence of these diseases has increased over the years, and has been under research.Objective: The aim of this paper is to systematically review the scientific literature about the evaluation of life' quality in patients with neurodegenerative diseases. Methods:Reflective systematic literature review on Pubmed, MedLine and Scopus database with the keywords "quality of life of Patients" and "neurodegenerative diseases" was analyzed. It was analyzed in the period between 2000 and 2015. PRISMA criteria reporting of systematic reviews and meta-analyses were applied. The inclusion criteria were: usage of instrument to measure life' quality, presenting quantitative or qualitative results, and psychometric studies. It was excluded articles reviews outside the scope of the subject, theoretical articles and new therapies, diagnostic and palliative care. Results:After applying the methodology, five scientific articles were included in the study. The measuring instruments were used the dimensions (physical, mental, social and environmental) were analyzed. It was analyzed the results obtained in the studies. Conclusions:This literature review indicated that more research is needed to assess the impact of quality of life in patients with degenerative pathologies. The implications of these findings and potential directions for future research are discussed.

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Section: Analysis Of Results and Discussionmentioning

confidence: 99%

Section: Summary Of Methodological Limitationsmentioning

confidence: 99%

Section: Journal Of Neurology and Neuroscience Issn 2171-6625mentioning

confidence: 99%

Section: Journal Of Neurology and Neuroscience Issn 2171-6625mentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 3 more Smart Citations

Quality of Life in Patients with Neurodegenerative Diseases

Batista¹,

Pereira²

2016

J Neurol Neurosci

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Nonpharmacological therapies for neurodegenerative disorders

Siddiq,

Shrestha,

Das

et al. 2025

The Neurodegeneration Revolution

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Assessment of subjective health and health-related quality of life in persons with acquired or degenerative brain injury

Steinbüechel

Richter²,

Morawetz

et al. 2005

Current Opinion in Neurology

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In neurology, only a few measures have been developed and validated for respondents with cognitive impairment, often showing poorer validity results than studies involving healthy persons. Health-related quality of life assessment should therefore be validated in the specific diseases and, if necessary, combined with a neuropsychological evaluation and a disease-specific health-related quality of life measure.

show abstract

Disease adaptation may have decreased quality-of-life responsiveness in patients with chronic progressive neurological disorders

Cited by 8 publications

References 72 publications

Quality of Life in Patients with Neurodegenerative Diseases

Quality of Life in Patients with Neurodegenerative Diseases

Nonpharmacological therapies for neurodegenerative disorders

Assessment of subjective health and health-related quality of life in persons with acquired or degenerative brain injury

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