Does narrative information bias individual's decision making? A systematic review

Winterbottom, Anna; Bekker, Hilary; Conner, Mark; Mooney, Andrew

doi:10.1016/j.socscimed.2008.09.037

Cited by 296 publications

(309 citation statements)

References 55 publications

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“…These scales were based on previous research, where factors related to intended participation in PCS for cystic fibrosis were studied. 24 Perceived severity was measured with four items on a 5-point scale (4)(5)(6)(7)(8)(9)(10)(11)(12)(13)(14)(15)(16)(17)(18)(19)(20). Respondents were asked how disturbing it would be to have a child with either severe pain, severe physical disability or severe intellectual disability, or who would die at a young age.…”

Section: Groupmentioning

confidence: 99%

“…It is therefore necessary to understand if adding narrative information can also change intention to participate in ECS. Several systematic reviews have shown that adding narrative information influences decision-making, by making decisions more experiential-automatic (emotional) than analytic-deliberative (rational) 20,21 although the possibility to measure emotional and rational decisions independently can be discussed because of their interrelatedness. Because the amount and type of narrative information varies greatly between studies, it is still difficult to determine which aspects of narrative information have the most influence on emotions and in what way narrative information is related to intended participation.…”

Section: Introductionmentioning

confidence: 99%

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Expanded carrier screening: what determines intended participation and can this be influenced by message framing and narrative information?

et al. 2017

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Next-generation sequencing enabled us to create a population-based expanded carrier screening (ECS) test that simultaneously tests for 50 serious autosomal recessive diseases. Before offering this test universally, we wanted to know what factors are related to intended participation and how the general public can be informed about the test without being influenced in their intention to participate. We studied this by measuring to what extent 'message framing' and 'narrative information' can influence people's intended participation. Data were collected by means of an online survey of 504 potential users, and the factors examined were based on the Theory of Planned Behaviour and on previous research on intended participation in preconception carrier screening. Message framing was manipulated by explaining the risk of couple carriership in different ways, while narrative information was provided to only half of the respondents. The factors most positively related to intended participation were perceiving benefits of the screening, having a positive attitude towards the screening, having no religion, having an actual child wish and experiencing the choice to participate as easy. Perceived benefits and a positive attitude were most influential factors by far. Message framing and narrative information had no significant effect on intended participation, reinforcing that message framing and narrative information can help to inform the general public about ECS without influencing their intended participation. Future research should study if the importance of perceived benefits and a positive attitude can be replicated when other factors are included and when actual participation is measured instead of intended participation. European Journal of Human Genetics (2017) 25, 793-800; doi:10.1038/ejhg.2017.74; published online 3 May 2017 INTRODUCTION Approximately 1-2 in 100 couples are at risk of having a child affected with a recessive genetic condition. 1 Population based expanded carrier screening (ECS) makes it possible to test couples before pregnancy for relevant recessive genetic conditions simultaneously. The preconception period might be considered a better time than the prenatal period, because it results in more reproductive options being available and termination of pregnancy can be avoided. 2 Next-generation sequencing techniques enabled us to create such a population-based ECS test that simultaneously tests for 50 serious autosomal recessive diseases. 3 The composition of this panel was based on previous research, multidisciplinary discussions and stakeholder meetings. Screening results are couple-based, so only couples who are both carriers of the same disease get positive results. However, before this test can be offered in a public healthcare setting, we needed a better understanding of the factors driving intended participation and how the general public could be better informed-but not influenced -in their intention to participate. This information is important because it is clear from previous research a...

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Section: Groupmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Expanded carrier screening: what determines intended participation and can this be influenced by message framing and narrative information?

et al. 2017

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“…Narratives, therefore, represented a broad range of perspectives to avoid the potential criticism of bias in these stories, which may, in turn, bias decision making. 38,40 Pilot study responses commended the balanced nature of these stories, suggesting that the selection of stories and diverse viewpoints provided a considered and unbiased set of perspectives for the reader to consider.…”

Section: Discussionmentioning

confidence: 99%

Developing a comprehensive, effective patient-friendly website to enhance decision making in predictive testing for Huntington disease

Virani

Creighton

Hayden

2013

Genetics in Medicine

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Purpose: Predictive testing for Huntington disease is a complex decision, requiring in-depth counseling, education, and evaluation. Despite the growth in Web-based decision aids and educational resources, such tools for those considering Huntington disease testing are not available. The main objective of this project was to develop a patient-friendly, comprehensive, accessible Web-based tool to provide accurate information about testing for Huntington disease.Methods: A semistructured interview study was conducted to determine the informational, educational, and support needs of those considering Huntington disease testing. A dedicated predictive testing website was subsequently developed and pilot tested. results:The interview study revealed that an effective website should include interactive diagrams, video documentaries, and personal stories of others who had considered testing. The pilot test revealed that the multidimensional site was easy to navigate and understand and provided an accurate, unbiased overview of the important factors to be considered before undergoing predictive testing.conclusion: This project demonstrates the use of a mixed-method approach to develop the first tailored website dedicated to predictive testing for Huntington disease. Such an approach enabled the development of a comprehensive, accurate, and effective educational tool that supports informed decision making for people considering predictive testing for Huntington disease in an accessible, nonthreatening manner. 2013:15(6):466-472 Genet Med

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“…Narratives have the greatest power when used to lay the framework for new ideas or causal arguments, within which detailed information will make sense and perhaps even be intuitive (10,25).…”

Section: Prescriptive Scientific Narrativesmentioning

confidence: 99%

“…There is no standard definition of narrative, with different researchers defining it according to their focus or interests (7,10). However, there is basic agreement about its core components, which are represented along the left-hand side of Fig.…”

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confidence: 99%

Prescriptive scientific narratives for communicating usable science

Downs

2014

Proc. Natl. Acad. Sci. U.S.A.

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In this paper I describe how a narrative approach to science communication may help audiences to more fully understand how science is relevant to their own lives and behaviors. The use of prescriptive scientific narrative can help to overcome challenges specific to scientific concepts, especially the need to reconsider long-held beliefs in the face of new empirical findings. Narrative can captivate the audience, driving anticipation for plot resolution, thus becoming a self-motivating vehicle for information delivery. This quality gives narrative considerable power to explain complex phenomena and causal processes, and to create and reinforce memory traces for better recall and application over time. Because of the inherent properties of narrative communication, their creators have a special responsibility to ensure even-handedness in selection and presentation of the scientific evidence. The recent transformation in communication and information technology has brought about new platforms for delivering content, particularly through interactivity, which can use structured self-tailoring to help individuals most efficiently get exactly the content that they need. As with all educational efforts, prescriptive scientific narratives must be evaluated systematically to determine whether they have the desired effects in improving understanding and changing behavior.decision making | adolescents | interactive video

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Does narrative information bias individual's decision making? A systematic review

Cited by 296 publications

References 55 publications

Expanded carrier screening: what determines intended participation and can this be influenced by message framing and narrative information?

Expanded carrier screening: what determines intended participation and can this be influenced by message framing and narrative information?

Developing a comprehensive, effective patient-friendly website to enhance decision making in predictive testing for Huntington disease

Prescriptive scientific narratives for communicating usable science

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