Domains of importance for parents, medical professionals and youth with cerebral palsy considering treatment outcomes

Abstract

Background-The aim of this study was to assess the domains of importance in therapeutic intervention for cerebral palsy (CP) using categories of the International Classification of Functioning, Disability, and Health -Version for Children & Youth (ICF-CY).

Toward the Development of the International Classification of Functioning Core Sets for Children With Cerebral Palsy

“…23,27 To our knowledge, only 1 study to date applied the International Classification of Functioning categories to assess domains of importance in therapeutic interventions for children with cerebral palsy. 28 The Vargus-Adams study conducted a survey of youths, parents, and medical professionals (n ¼ 75). Out of 322 responses, the most prevalent categories were related to ''mobility'' (45%) and ''movement related functions'' (45%).…”

Item hierarchy of the Chinese version of cerebral palsy quality of life for children

“…Our results are generally consistence with, but are more specific than, previous research findings. 12,29,30 Certainly, children with CP and their parents are concerned most often with pain, daily function, participation and community life. As well, the social acceptance, emotions, and family functioning are the discerned areas of life which are associated with QOL of children with CP.…”

“…Hence QOL has gained increasing attention as an important health or intervention outcome measure. 11,12 QOL has been defined by the World Health Organization as individuals' perception of their position in life, in the context of the culture and value systems in which they live and in relation to their goals, expectations, standards and concerns. 13 While measuring QOL is a vital part of assessing the wellbeing of children with CP, scales that have been used in the past 14,15 have been found to have substantial limitations.…”

How are actual needs recognized in the content and goals of written rehabilitation plans?

“…Vargus-Adams and Martin (2011) asked youth with CP, their parents and health professionals, what they found most important to consider when evaluating the effects of an intervention. The findings showed that the participants endorsed items across all domains of the ICF-CY [57].…”