Educational Needs and Technological Preferences of Fathers of Youth With Type 1 Diabetes

Albanese‐O’Neill, Anastasia; Schatz, Desmond; Bernhardt, Jay Michael; Elder, Jennifer

doi:10.1177/0145721716628649

Cited by 11 publications

(15 citation statements)

References 35 publications

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“…The quantitative survey results, published elsewhere [7], revealed that fathers of children with T1D had unmet diabetes education needs, including on topics in basic management such as managing hyperglycemia and hypoglycemia and calculating insulin doses, and more nuanced knowledge requirements, including managing diabetes at school, information on emerging diabetes technologies, and finding help for diabetes challenges. There was a high level of interest in online and mobile access to diabetes education resources [7]. The semistructured interview guide (Multimedia Appendix 1) was designed to elicit detailed information on the educational needs and design preferences of participants.…”

Section: Methodsmentioning

confidence: 99%

“…Push technology capability (the ability to push links to educational material to the end user via text or email) was facilitated via inclusion of a plug-in to automate this process. Content was informed by the phase 1 qualitative analysis and quantitative data on fathers’ educational needs and technological preferences reported elsewhere [7].…”

Section: Methodsmentioning

confidence: 99%

“…As such, fathers are often absent when diabetes education is provided and likewise often miss opportunities to participate in research [5-6]. Few studies have targeted fathers’ diabetes-specific educational needs, and there remains no tailored mobile or Web-based diabetes education available to fathers [7].…”

Section: Introductionmentioning

confidence: 99%

“…While health care providers often focus on the mechanics of disease management, in particular glucose control, families indicate a need for assistance in responding to diabetes life challenges, adaptation to the diagnosis, and linkage to social support [11]. Fathers of children with T1D have reported diverse learning needs, with fathers of teenagers indicating more substantial knowledge requirements and skills training to guide their involvement in their children’s care [7,11-14]. However, qualitative studies suggest that fathers can feel lost or left out during clinical appointments because they lack the disease-specific knowledge, vocabulary, or conceptual framework to confidently participate in the conversation with the care provider [15].…”

Section: Introductionmentioning

confidence: 99%

“…To summarize, fathers of children with T1D have unmet educational needs, and traditional, clinic-based diabetes education delivery may be unsuccessful in meeting these needs due to low clinic attendance [5,7]. Leveraging mobile technology to deliver DSMES to fathers outside of the clinical setting is an important step toward improving their self-efficacy with regard to their children’s care.…”

Section: Introductionmentioning

confidence: 99%

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Designing Online and Mobile Diabetes Education for Fathers of Children With Type 1 Diabetes: Mixed Methods Study

Albanese‐O’Neill¹,

Schatz²,

Thomas³

et al. 2019

JMIR Diabetes

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Background Fathers make unique and central contributions to the health of their children. However, research in type 1 diabetes (T1D) education largely ignores the needs of fathers, including during the development of online and mobile educational materials. Objective The purpose of this study was to solicit and incorporate input from fathers of children with T1D into the design, content, and infrastructure of a suite of online diabetes self-management education and support (DSMES) resources. Methods The study took part in three phases: (1) exploratory research, (2) website and subdomain development, and (3) evaluation. Fathers of children with T1D (n=30) completed surveys and semistructured qualitative interviews. Thematic content analysis was used to identify fathers’ content and design preferences. An online DSMES website (T1DToolkit.org) and a separate mobile subdomain targeting fathers (Mobile Diabetes Advice for Dads, or mDAD) were developed. A prototype of the site for fathers was evaluated by 33 additional father participants. End user feedback was elicited via survey. Results Participants in the exploratory phase were enthusiastic about the online diabetes resources. Preferences included high-quality design, availability via mobile phone and tablet, brief text content supplemented with multimedia and interactive features, reminders via text or email, endorsement by medical professionals, and links to scientific evidence. The mDAD subdomain received high usability and acceptability ratings, with 100% of participants very likely or likely to use the site again. Conclusions The development of eHealth educational platforms for fathers of children with T1D remains an unmet need in optimizing diabetes management. This study incorporated fathers’ feedback into the development of a suite of online diabetes education resources. The findings will serve as the basis for future research to assess the clinical efficacy of the website, its subdomain targeting fathers, and additional subdomains targeting unique populations.

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Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 3 more Smart Citations

Designing Online and Mobile Diabetes Education for Fathers of Children With Type 1 Diabetes: Mixed Methods Study

Albanese‐O’Neill¹,

Schatz²,

Thomas³

et al. 2019

JMIR Diabetes

View full text Add to dashboard Cite

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Children's Oncology Group KidsCare smartphone application for parents of children with cancer

Landier

Gonzalez

Henneberg

et al. 2023

Pediatric Blood & Cancer

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Background Parents of children with cancer must learn and retain crucial information necessary to provide safe care for their child. Smartphone applications (apps) provide a significant opportunity to meet the informational needs of these parents. We aimed to develop, refine, and evaluate a smartphone app, informed by the Children's Oncology Group (COG) expert consensus recommendations, to support the informational needs of parents of children with cancer. Procedure We employed a user‐centered iterative mixed‐methods approach in two phases (prototype development/refinement and pilot testing). We engaged parents and clinicians in evaluating the app via qualitative interviews and standardized tools that measured app quality (Mobile Application Rating Scale [MARS]), usability (System Usability Scale [SUS]), and acceptability (System Acceptability Scale [SAS]). We evaluated early usage patterns after public release. Results Thirty‐two parents and 17 clinicians participated. Mean (± standard deviation [SD]) scores for app quality, usability, and acceptability were: MARS: 4.5 ± 0.7 on a 5‐point scale; SUS: 86.7 ± 23.8 on a 100‐point scale; and SAS: superior (61%); similar (28%); inferior (11%) to written materials. Qualitative findings largely confirmed the quantitative data. Downloads of the app during the first year following public release have exceeded 5000. Conclusions The COG KidsCare app prototype was found to be of high quality and received high usability and acceptability ratings. Further testing is needed to determine app effectiveness in improving parental knowledge regarding care of children with cancer.

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Parental Experiences of Continuous Glucose Monitoring in Danish Children with Type 1 Diabetes Mellitus

Haslund-Thomsen¹,

Hasselbalch

Laugesen

2020

Journal of Pediatric Nursing

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Educational Needs and Technological Preferences of Fathers of Youth With Type 1 Diabetes

Cited by 11 publications

References 35 publications

Designing Online and Mobile Diabetes Education for Fathers of Children With Type 1 Diabetes: Mixed Methods Study

Designing Online and Mobile Diabetes Education for Fathers of Children With Type 1 Diabetes: Mixed Methods Study

Children's Oncology Group KidsCare smartphone application for parents of children with cancer

Parental Experiences of Continuous Glucose Monitoring in Danish Children with Type 1 Diabetes Mellitus

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