Educational, psychologic, and social aspects of short stature

Rieser, Patricia

doi:10.1016/0891-5245(92)90099-p

Cited by 17 publications

(14 citation statements)

References 7 publications

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“…However, few have forgotten the cruel and thoughtless nicknames and pranks endured over the course of their lives. Within this context, height emerged more as a social problem than a clinical one, as such challenges extend to most short-statured individuals and are not specific to girls and women with TS [Stace and Danks 1981a;Sawisch 1986;Skuse 1987;Rieser 1992;Skuse et al 1994;Sandberg and Voss 2002;Gollust et al 2003]. The teasing that occurs during one's youth can be extremely damaging to a child's confidence and self-esteem [Gollust et al 2003].…”

Section: Discussionmentioning

confidence: 99%

“…Parents, school teachers, and even HCPs might consider teaching these girls how to respond assertively and effectively to bullying and teasing at an early age to ensure preservation of their self-esteem and self-confidence. Hopefully, as critical role models demonstrate respect for and comfort within the company of short girls and women with TS, including treating these individuals in an age appropriate manner irrespective of their size or physical appearance [Rieser 1992;Skuse et al 1994;Ross 2001], the amount of teasing endured by these girls will diminish.…”

Section: Discussionmentioning

confidence: 99%

“…A number of studies on Turner syndrome provide recommendations to health care providers on how to improve the overall physical and psychological health of girls and women with TS [Rieser 1992;Sylven et al 1993;Saenger 1996;Rosenfeld 2000;Savendahl and Davenport 2000;Elsheikh et al 2002;Frias and Davenport 2003]. Published timelines for administering various tests and explanations of symptoms and complications of TS serve as references for health care providers [Sylven et al 1993;Saenger 1996;Savendahl and Davenport 2000;Ross 2001;Sas and de Muinck Keizer-Schrama 2001;Cunniff 2002;Elsheikh et al 2002;Frias and Davenport 2003].…”

Section: Introductionmentioning

confidence: 99%

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Turner syndrome: Four challenges across the lifespan

Sutton

McInerney-Leo

Bondy

et al. 2005

American J of Med Genetics Pt A

111

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Turner syndrome (TS) is a sex chromosome condition that occurs in approximately 1/2500 live female births. Despite the prevalence of this chromosomal condition, the challenges these women face throughout their lives are not fully understood. This qualitative research study aimed to characterize the subjective experiences of individuals with Turner syndrome throughout their lifespan, to investigate their concerns and obstacles, and to offer insight into the strengths and weaknesses of health care delivery, as they perceived them.Ninety-seven girls and women with TS and 21 parents consented to participate in this interview study. Interviews were semi-structured and open-ended in design. Questions sought to elicit responses relating to existing concerns associated with their condition and positive and negative health care experiences. Participants were divided into four age categories (childhood, adolescence, adulthood, and mature adulthood) to facilitate a comparative analysis across the age spectrum.Regardless of age, infertility was the most frequently cited concern followed closely by short stature. Sexual development and function and general health were also viewed as challenges by a number of participants in each age group.Although the relative weight of these four concerns tended to shift based upon the individual's age and life experiences, all four issues remained significant throughout the lifespan. Enhanced awareness of the evolving physical and psychological challenges faced by girls and women with TS may help health care providers improve the quality of life for these individuals.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Turner syndrome: Four challenges across the lifespan

Sutton

McInerney-Leo

Bondy

et al. 2005

American J of Med Genetics Pt A

111

View full text Add to dashboard Cite

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“…Besides, since height is known to be an important fac tor in the interaction with peers [4][5][6], catch-up growth in children with short stature may change these interactions. We know that most of the children in the treatment group received positive reactions concerning their growth, from peers as well as from adults.…”

Section: Discussionmentioning

confidence: 99%

Self-Concept before and after Two Years of Growth Hormone Treatment in Intrauterine Growth-Retarded Children

et al. 1996

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The objective of this study was to assess self-concept in children with short stature after intrauterine growth retardation (IUGR), before and after 2 years of growth hormone (hGH) treatment. We assessed 25 children before treatment, and 40 children after a 2-year treatment period. Seventeen of the 25 children of whom we had pretreatment data, were reassessed after 2 years of hGH treatment. All children had a birth length below the 3rd percentile, and did not show catch-up growth (current height < P3). We compared the self-concept measures (Self-Perception Profile for Children; SPPC) of the IUGR group with similar measures of a Dutch school sample. Four of the six SPPC mean scale scores of the IUGR group prior to treatment were significantly lower than mean scores of the school sample. Mean scale scores of the group children, assessed after 2 years of hGH treatment, did not differ significantly from those of the school sample. In the group of 17 children who were assessed before as well as after 2 years of treatment, the mean scale scores of ‘social acceptance’ and ‘general self-worth’ were significantly higher at the second assessment (t = -5.93, p < 0.001 and t = -4.36, p < 0.001, respectively). From the present study we can hypothesize that short stature after IUGR and a low self-concept are related.

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“…low self-esteem [5, 6], behavioral problems [5, 7], infantilism and social immaturity [5, 8]. Short adolescents were considered to be isolated from peer groups [9, 10].…”

Section: Do Children With Short Stature Have Any Growth-related Psychmentioning

confidence: 99%

Psychosocial Adaptation to Short Stature – An Indication for Growth Hormone Therapy?

Wygold

2002

Horm Res Paediatr

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Although growth hormone does not clearly improve final height in non-growth-hormone-deficient children with short stature, it leads to a temporary acceleration of growth velocity. It is an ongoing discussion whether this effect supports psychosocial adaptation to short stature and therefore could be an indication for growth hormone treatment in children with short stature without growth hormone deficiency. We have reviewed recent literature concerning psychosocial consequences of short stature. Together with own data we can demonstrate that short people regularly adapt well to their height and have a good self-esteem. On the other hand, we focus on the problem that most studies on this subject suffer from methodical problems. A growth-related questionnaire that evaluates subjective and objective perceptions of being short in patients and peers is not at hand. As a consequence, psychosocial problems due to short stature have not been exactly classified yet and therefore do not represent an indication for growth hormone therapy.

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Educational, psychologic, and social aspects of short stature

Cited by 17 publications

References 7 publications

Turner syndrome: Four challenges across the lifespan

Turner syndrome: Four challenges across the lifespan

Self-Concept before and after Two Years of Growth Hormone Treatment in Intrauterine Growth-Retarded Children

Psychosocial Adaptation to Short Stature – An Indication for Growth Hormone Therapy?

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