Effect of Exercise Training on Sports Enjoyment and Leisure-time Spending in Adolescents with Complex Congenital Heart Disease: The Moderating Effect of Health Behavior and Disease Knowledge

Dulfer, Karolijn; Duppen, Nienke; Blom, Nico A.; Dijk, Arie P.J. van; Helbing, Wim A.; Verhulst, Frank C.; Utens, Elisabeth M. W. J.

doi:10.1111/chd.12154

Cited by 27 publications

(23 citation statements)

References 34 publications

(54 reference statements)

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“…This is not surprising as in adolescence contact with peers becomes increasingly important for social and emotional wellbeing, decisions about a (future) education and/or job have to be made, and exposure to all kinds of experimental behaviourfor example, smoking, alcohol, drugs, sex, etc.increases. 21 As to the different cardiac diagnostic groups, no significant differences were found with regard to their need for psychosocial care. This is in line with previous findings, reflecting no consistent relationship between cardiac diagnosis and emotional/behavioural problems in children with CHD.…”

Section: Discussionmentioning

confidence: 87%

“…An expert psychologist (EU) selected the items based on international literature 2,26 and on previous cohort studies by and clinical experience of the research team. 11,21,[27][28][29][30] Consensus regarding items was reached between two psychologists, two paediatric cardiologists, and thereafter piloted by two board members of the Dutch patient organisation. After piloting and feedback, items were adjusted and finalised for the present questionnaire.…”

Section: Instrumentsmentioning

confidence: 99%

“…The relevance of these topics has also been stressed in several previous studies. 6,21 Although the process of emotional adaptation and working through is tough and takes time, several studies have shown that in the long term and with the medical course of the child being stable, parents showed an even better mental health status, with less distress, somatic symptoms, anxiety problems, sleeping problems, and depression symptoms, than the normative reference group. 11,29 Limitations This was a single-centre study.…”

Section: Need For Psychosocial Care As Reported By Parents For Themsementioning

confidence: 99%

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Psychosocial needs of children undergoing an invasive procedure for a CHD and their parents

et al. 2016

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Section: Discussionmentioning

confidence: 87%

Section: Instrumentsmentioning

confidence: 99%

Section: Need For Psychosocial Care As Reported By Parents For Themsementioning

confidence: 99%

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Psychosocial needs of children undergoing an invasive procedure for a CHD and their parents

et al. 2016

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“…The Groningen Enjoyment Questionnaire (GEQ; 10 items; response categories 1–3, higher score indicates more enjoyment) [ 37 , 38 ] is adjusted for parents and teachers and assesses enjoyment of physical activity. Children themselves answer two questions to assess how often they engage in physical activity and to assess enjoyment of physical activity.…”

Section: Methodsmentioning

confidence: 99%

The CHIP-Family study to improve the psychosocial wellbeing of young children with congenital heart disease and their families: design of a randomized controlled trial

et al. 2018

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BackgroundChildren with congenital heart disease (CHD) are at increased risk for behavioral, emotional, and cognitive problems. They often have reduced exercise capacity and participate less in sports, which is associated with a lower quality of life. Starting school may present more challenges for children with CHD and their families than for families with healthy children. Moreover, parents of children with CHD are at risk for psychosocial problems. Therefore, a family-centered psychosocial intervention for children with CHD when starting school is needed. Until now, the ‘Congenital Heart Disease Intervention Program (CHIP) – School’ is the only evidence-based intervention in this field. However, CHIP-School targeted parents only and resulted in non-significant, though positive, effects as to child psychosocial wellbeing. Hence, we expanded CHIP by adding a specific child module and including siblings, creating the CHIP-Family intervention. The CHIP-Family study aims to (1) test the effects of CHIP-Family on parental mental health and psychosocial wellbeing of CHD-children and to (2) identify baseline psychosocial and medical predictors for the effectiveness of CHIP-Family.MethodsWe will conduct a single-blinded randomized controlled trial comparing the effects of CHIP-Family with care as usual (no psychosocial intervention). Children with CHD (4–7 years old) who are starting or attending kindergarten or primary school (first or second year) at the time of first assessment and their families are eligible. CHIP-Family consists of a separate one-day workshop for parents and children. The child workshop consists of psychological exercises based on the evidence-based cognitive behavioral therapy Fun FRIENDS protocol and sports exercises. The parent workshop focuses on problem prevention therapy, psychoeducation, general parenting skills, skills specific to parenting a child with CHD, and medical issues. Approximately 4 weeks after the workshop, parents receive an individual follow-up session. The baseline (T1) and follow-up assessment (T2 = 6 months after T1) consist of online questionnaires filled out by the child, parents, and teacher (T2 only). Primary outcome measures are the CBCL for children and the SCL-90-R for parents.DiscussionThis trial aims to test the effects of an early family-centered psychosocial intervention to meet the compelling need of young children with CHD and their families to prevent (further) problems. If CHIP-Family proves to be effective, it should be structurally implemented in standard care.Trial registrationDutch Trial Registry; NTR6063 on 23 August, 2016.

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“…In this last study, the exercise program had an effect on self-reported passive leisure time spent [ 19 ]. After the program, adolescents spent less time on using the computer.…”

Section: The Influence Of An Exercise Program On Psychosocial Funcmentioning

confidence: 99%

The Influence of Exercise Training on Quality of Life and Psychosocial Functioning in Children with Congenital Heart Disease:A Review of Intervention Studies

Dulfer

Helbing

Utens

2017

Sports

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Children and adolescents operated upon for congenital heart disease may show reduced exercise capacity and physical activity, associated with lowered quality of life. This review presents intervention studies on the influence of an exercise program on quality of life and psychosocial functioning in children with severe congenital heart disease. Participation in an exercise program among young people with complex congenital heart disease seemed to have positive effects on quality of life and passive leisure time spent. However, more effects of the exercise programs may have been expected. For future research it is important to critically evaluate the content of the exercise programs.

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Effect of Exercise Training on Sports Enjoyment and Leisure-time Spending in Adolescents with Complex Congenital Heart Disease: The Moderating Effect of Health Behavior and Disease Knowledge

Abstract: Exercise training decreased passive, but not active, leisure-time spending. It did not influence sports enjoyment.

Cited by 27 publications

References 34 publications

Psychosocial needs of children undergoing an invasive procedure for a CHD and their parents

Psychosocial needs of children undergoing an invasive procedure for a CHD and their parents

The CHIP-Family study to improve the psychosocial wellbeing of young children with congenital heart disease and their families: design of a randomized controlled trial

The Influence of Exercise Training on Quality of Life and Psychosocial Functioning in Children with Congenital Heart Disease:A Review of Intervention Studies

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