Effectiveness of an Intervention to Improve Decision Making for Older Patients With Advanced Chronic Kidney Disease

Ladin, Keren; Tighiouart, Hocine; Bronzi, Olivia; Koch‐Weser, Susan; Wong, John B.; Levine, Sarah; Agarwal, Arushi; Ren, Lucy; Degnan, Jack; Sewall, Lexi N; Kuramitsu, Brianna; Fox, Patrick; Gordon, Elisa J.; Isakova, Tamara; Rifkin, Dena E.; Rossi, Ana P.; Weiner, Daniel E.

doi:10.7326/m22-1543

Cited by 31 publications

(23 citation statements)

References 39 publications

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“…Therefore, further elucidation of the correlations between decision con ict and psychological distress as well as the quality of life of IBD patients might help in understanding the sources of decisional con ict. Our results also show the importance of improving decision con ict, and the use of decision AIDS may be an effective means, which has been validated in multiple high-quality studies [40][41][42] .…”

Section: Decisional Con Ictsupporting

confidence: 56%

Decisional conflict is associated with quality of life and mental health in patients with inflammatory bowel disease

谢,

zhang,

liu

et al. 2023

Preprint

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Purpose Inflammatory bowel disease (IBD) patients are usually provided with multiple treatment options with different risks and benefits. This study aimed to assess the quality of decision-making in IBD patients concerning treatments, investigate the relationship between Shared decision-making (SDM) and decision conflict and health outcomes in patients with IBD, and explore the possible factors related to high decisional conflict in patients with IBD. Methods We conducted a cross-sectional, multicenter study. Patients were grouped according to their actual decision-making role and the level of decisional conflict. Propensity score analysis matched the two groups of patients 1:1 according to different factors. The main measures assessed included decisional conflict, decision regret, compliance, quality of physician communication, satisfaction, quality of life, anxiety, depression, and sleep disturbance. Multiple logistic regression was used to evaluate the factors affecting decisional conflict. Results Patients in the SDM group had a high awareness of the disease, and the impact of decision conflict and disease on work and learning was also low. The actual decision roles, physician communication quality, and disease activity may be independent factors affecting the decisional conflict. DCS was negatively correlated with the patient’s compliance and satisfaction with physician explanations and treatment and positively correlated with DRS, anxiety, depression, sleep disturbance, and SHS (all P <0.05). Conclusion: SDM is beneficial for improving the quality of decision making in patients with IBD. It is necessary to improve decisional conflict in IBD patients because it is closely related to patients' quality of life and mental health.

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Section: Decisional Con Ictsupporting

confidence: 56%

Decisional conflict is associated with quality of life and mental health in patients with inflammatory bowel disease

谢,

zhang,

liu

et al. 2023

Preprint

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“…Even though some PILs are translated into Indian languages, the readability of these PILs cannot be judged using the standard procedures accessible in English. To determine product acceptance and end-user opinion, it is critical to analyze the readability of PILs and apply them to user testing in patients [2]. The purpose of this research was to create PILs for chronic obstructive pulmonary disease (COPD), evaluate their readability based on user feedback, and determine the utility of PILs for such conditions.…”

Section: Introductionmentioning

confidence: 99%

Computer-Assisted Evaluation of Patient Information Leaflets (PILs) for Chronic Kidney Disease Compared with Marketed PILs

Amin¹,

Alam²,

Dey³

2023

Arch Pharm Pract

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Printed educational materials play an important part in the treatment of disease. The patient may use them as a reference at home or to enhance knowledge. The goal of this study was to use standard approaches, such as Baker Able Leaflet Design (BALD) and readability score, to the evaluation of patients' opinions on Patient Information Leaflets (PILs) for chronic kidney disease. Participate were enrolled randomly, and some were taken at a convenient time. The study spanned 1 year in a hospital in Assam, India. We compiled our Patient Information Leaflets (PILs) by referring to various sources of information and translating them into the Assamese language. With the help of the BALD assessment strategy and user rating, we compared our PILs with available PILs on the website and marketed them. The prepared leaflets scored "above standard" in BALD and readability evaluations, indicating that they are above the industry standard. since their average score was greater than 25, the layout and design. This shows that the issue is important from the patient's perspective, which may encourage them to read the PILs. Even though a larger percentage of Indian consumers cannot read or write English, many PILs are still written in the English language. Without considering the patient's reading levels and ensuring proper style and design, PILs may not be understood or used. Every company has to take this into account when creating leaflets and, at the absolute least, in some of the most important local languages in which PILs must be published.

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“…Late referral patients often do not have sufficient acceptance of ESKD, and we speculated that the high patient satisfaction was achieved by the medical staff taking the time to listen to the patient attentively. Recently, it has been reported that decision renal replacement therapy decision support improves decision quality in the elderly with ESKD [4]. Here, we highlight that high patient satisfaction with SDM results from communication rather than just provision of information on the dialysis modality.…”

mentioning

confidence: 77%

Survey on patient satisfaction with a one‐hour discussion on the choice of dialysis modality at the outpatient clinic

2023

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Effectiveness of an Intervention to Improve Decision Making for Older Patients With Advanced Chronic Kidney Disease

Cited by 31 publications

References 39 publications

Decisional conflict is associated with quality of life and mental health in patients with inflammatory bowel disease

Decisional conflict is associated with quality of life and mental health in patients with inflammatory bowel disease

Computer-Assisted Evaluation of Patient Information Leaflets (PILs) for Chronic Kidney Disease Compared with Marketed PILs

Survey on patient satisfaction with a one‐hour discussion on the choice of dialysis modality at the outpatient clinic

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