Effectiveness of “Reducing Disability in Alzheimer’s Disease” Among Dyads With Moderate Dementia

Perales‐Puchalt, Jaime; Barton, Kelli; Ptomey, Lauren T.; Niedens, Michelle; Yeager, Amy L.; Gilman, Laura; Seymour, Pam; George, Amanda M.; Sprague, Susan C.; Neira, Antonio Mirás; Dyke, Rik Van; Teri, Linda; Vidoni, Eric D.

doi:10.1177/0733464820934683

Cited by 13 publications

(20 citation statements)

References 25 publications

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“…532 Interventions for dementia caregivers that have demonstrated efficacy in scientific evaluations have been gradually implemented in the community, but are still not widespread or available to all family caregivers. [533][534][535] When interventions are implemented, they are generally successful at improving how caregiver services are delivered and have the potential to reach a large number of families while also helping caregivers cope with their responsibilities (this includes the Alzheimer's Association 24/7 Helpline). [536][537] In one example, researchers utilized an "agile implementation" process to more rapidly select, localize, evaluate and replicate a collaborative care model for dementia care.…”

Section: Multicomponent Approachesmentioning

confidence: 99%

2022 Alzheimer's disease facts and figures

2022

Alzheimer's & Dementia

1,549

664

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This article describes the public health impact of Alzheimer's disease (AD), including incidence and prevalence, mortality and morbidity, use and costs of care, and the overall impact on family caregivers, the dementia workforce and society. The Special Report discusses consumers' and primary care physicians' perspectives on awareness, diagnosis and treatment of mild cognitive impairment (MCI), including MCI due to Alzheimer's disease. An estimated 6.5 million Americans age 65 and older are living with Alzheimer's dementia today. This number could grow to 13.8 million by 2060 barring the development of medical breakthroughs to prevent, slow or cure AD. Official death certificates recorded 121,499 deaths from AD in 2019, the latest year for which data are available. Alzheimer's disease was officially listed as the sixth-leading cause of death in the United States in 2019 and the seventh-leading cause of death in 2020 and 2021, when COVID-19 entered the ranks of the top ten causes of death. Alzheimer's remains the fifth-leading cause of death among Americans age 65 and older. Between 2000 and 2019, deaths from stroke, heart disease and HIV decreased, whereas reported deaths from AD increased more than 145%. More than 11 million family members and other unpaid caregivers provided an estimated 16 billion hours of care to people with Alzheimer's or other dementias in 2021. These figures reflect a decline in the number of caregivers compared with a decade earlier, as well as an increase in the amount of care provided by each remaining caregiver. Unpaid dementia caregiving was valued at $271.6 billion in 2021. Its costs, however, extend to family caregivers' increased risk for emotional distress and negative mental and physical health outcomes -costs that have been aggravated by COVID-19. Members of the dementia care workforce have also been affected by COVID-19. As essential care workers, some have opted to change jobs to protect their own health and the health of their families. However, this occurs at a time when more members of the dementia care workforce are needed. Average per-person Medicare payments for services to beneficiaries age 65 and older with AD or other dementias are almost three times as great as payments for beneficiaries without these conditions, and Medicaid payments are more than 22 times as great. Total payments in 2022 for health care, long-term care and hospice services for people age 65 and older with dementia are estimated to be $321 billion. A recent survey commissioned by the Alzheimer's Association revealed several barriers to consumers' understanding of MCI. The survey showed low awareness of MCI among Americans, a reluctance among Americans to see their doctor after noticing MCI symptoms, and persistent challenges for primary care physicians in diagnosing MCI. Survey results indicate the need to improve MCI 700

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Section: Multicomponent Approachesmentioning

confidence: 99%

2022 Alzheimer's disease facts and figures

2022

Alzheimer's & Dementia

1,549

664

View full text Add to dashboard Cite

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“…556 Interventions for dementia caregivers that have demonstrated efficacy in scientific evaluations have been gradually implemented in the community, but are still not widespread or available to all family caregivers. [557][558][559] When interventions are implemented, they are generally successful at improving how caregiver services are delivered and have the potential to reach a large number of families while also helping caregivers cope with their responsibilities (this includes the Alzheimer's Association 24/7 Helpline). [560][561][562] In one example, researchers utilized an "agile implementation" process to more rapidly select, localize, evaluate and replicate a collaborative care model for TA B L E 1 2 Type and focus of caregiver interventions.…”

Section: Interventions Designed To Assist Caregiversmentioning

confidence: 99%

2023 Alzheimer's disease facts and figures

2023

Alzheimer's & Dementia

1,458

425

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This article describes the public health impact of Alzheimer's disease, including prevalence and incidence, mortality and morbidity, use and costs of care, and the overall impact on family caregivers, the dementia workforce and society. The Special Report examines the patient journey from awareness of cognitive changes to potential treatment with drugs that change the underlying biology of Alzheimer's. An estimated 6.7 million Americans age 65 and older are living with Alzheimer's dementia today.This number could grow to 13.8 million by 2060 barring the development of medical breakthroughs to prevent, slow or cure AD. Official death certificates recorded 121,499 deaths from AD in 2019, and Alzheimer's disease was officially listed as the sixth-leading cause of death in the United States. In 2020 and 2021, when COVID-19 entered the ranks of the top ten causes of death, Alzheimer's was the seventh-leading cause of death. Alzheimer's remains the fifth-leading cause of death among Americans age 65 and older. Between 2000 and 2019, deaths from stroke, heart disease and HIV decreased, whereas reported deaths from AD increased more than 145%. This trajectory of deaths from AD was likely exacerbated by the COVID-19 pandemic in 2020 and 2021. More than 11 million family members and other unpaid caregivers provided an estimated 18 billion hours of care to people with Alzheimer's or other dementias in 2022. These figures reflect a decline in the number of caregivers compared with a decade earlier, as well as an increase in the amount of care provided by each remaining caregiver. Unpaid dementia caregiving was valued at $339.5 billion in 2022. Its costs, however, extend to family caregivers' increased risk for emotional distress and negative mental and physical health outcomes -costs that have been aggravated by COVID-19. Members of the paid health care workforce are involved in diagnosing, treating and caring for people with dementia. In recent years, however, a shortage of such workers has developed in the United States. This shortage -brought about, in part, by COVID-19 -has occurred at a time when more members of the dementia care workforce are needed. Therefore, programs will be needed to attract workers and better train health care teams. Average per-person Medicare payments for services to beneficiaries age 65 and older with AD or other dementias are almost three times as great as payments for beneficiaries without these conditions, and Medicaid payments are more than 22 times as great. Total payments in 2023 for health care, long-term care and hospice services for people age 65 and older with dementia are estimated to be $345 billion. The Special Report examines whether there will be sufficient numbers of 1598

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“…While Latino caregivers tend to be women, 36 these were over-represented in our study, likely also due to women’s higher likelihood to participate in health-related research. 37,38 The sample size was relatively small and not probabilistic, which reduces the generalizability of the findings. As with most studies, individuals who participated in the study were motivated to participate.…”

Section: Discussionmentioning

confidence: 99%

Impact of the COVID-19 pandemic on Latino families with Alzheimer’s disease and related dementias: Perceptions of family caregivers and primary care providers

Perales‐Puchalt

Peltzer

Fracachan-Cabrera

et al. 2022

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Latinos experience disproportionately poor outcomes in dementia and COVID-19, which may synergistically impact their health. We explored the impact of the COVID-19 pandemic among Latino families with dementia via a qualitative descriptive study of 21 informal caregivers of Latinos with dementia and 24 primary care providers. Two themes arose: The impact of a global pandemic (e.g., accelerated cognitive and physical decline, or caregivers choosing between risking finances and the family's infection given the work situation) and Developing resilience to the effects of the pandemic (e.g., caregivers seeking vaccination sites, moving in with the care recipient and adopting telehealth).

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Effectiveness of “Reducing Disability in Alzheimer’s Disease” Among Dyads With Moderate Dementia

Cited by 13 publications

References 25 publications

2022 Alzheimer's disease facts and figures

2022 Alzheimer's disease facts and figures

2023 Alzheimer's disease facts and figures

Impact of the COVID-19 pandemic on Latino families with Alzheimer’s disease and related dementias: Perceptions of family caregivers and primary care providers

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