Effects of a Home-Based Palliative Heart Failure Program on Quality of Life, Symptom Burden, Satisfaction and Caregiver Burden: A Randomized Controlled Trial

Ng, Adolf K.Y.; Wong, Frances Kam Yuet

doi:10.1016/j.jpainsymman.2017.07.047

Cited by 68 publications

(125 citation statements)

References 55 publications

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“…But at present, because the family visits are affected by geographic location and human resources, the coverage of home-based nursing care is very limited [42]. In addition, the domestic community nursing service is relatively lacking in China, and the cooperative communication mechanisms between hospital and community are not perfect, and it cannot provide effective home care for patients, the patients' medical care service needs have not been met [43]. The main reason why HCH is effective is that by integrating hospital, community and home environmental resources, patients and their families can visually present the patient's condition and nursing skills to medical staff at home, so that the nurses can have a more comprehensive picture of the patient's condition.…”

Section: Discussionmentioning

confidence: 99%

The pattern of hospital-community-home (HCH) nursing in tracheostomy patients with severe traumatic brain injury: is it feasible?

Yin¹,

Wu²,

Zhou³

et al. 2020

Preprint

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Background: Tracheostomy is very common in patients with severe traumatic brain injury (TBI), and long-term nursing care are needed for those patients. We aimed to evaluate the effects of hospital-community-home (HCH) nursing in those patients. Methods: Tracheostomy patients with severe TBI needing long-term care were included. All patients underwent two months long follow-up. Glasgow coma score (GCS), Karnofsky, Self-Anxiety Scale (SAS) (SAS) and Barthel assessment at the discharge and two months after discharge were evaluated. The tracheostomy related complications were recorded and compared.Results: A total of 60 patients were included. There weren’t significant differences between two groups in the GCS, Karnofsky, SAS and Barthel index at discharge((all p>0.05), the GCS, Karnofsky and Barthel index was all significantly increased after two months follow-up for two groups (all p<0.05), and the GCS, Karnofsky and Barthel index at two months follow-up in HCH group was significantly higher than that of control group(all p<0.05), but the SAS at two months follow-up in HCH group was significantly less than that of control group(p=0.009). The incidence of block of artificial tracheal cannula and readmission in HCH group were significant less than that of control group (all p<0.05).Conclusion: HCH nursing care is feasible in tracheostomy patients with severe TBI, future studies are needed to further evaluate the role of HCH nursing care.

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Section: Discussionmentioning

confidence: 99%

The pattern of hospital-community-home (HCH) nursing in tracheostomy patients with severe traumatic brain injury: is it feasible?

Yin¹,

Wu²,

Zhou³

et al. 2020

Preprint

View full text Add to dashboard Cite

show abstract

“…But at present, because the family visits are affected by geographic location and human resources, the coverage of home-based nursing care is very limited [36]. In addition, the domestic community nursing service is relatively lacking in China, and the cooperative communication mechanisms between hospital and community are not perfect, and it cannot provide effective home care for patients, the patients' medical care service needs have not been met [37]. The main reason why HCH is effective is that by integrating hospital, community and home environmental resources, patients and their families can visually present the patient's condition and nursing skills to medical staff at home, so that the nurses can have a more comprehensive picture of the patient's condition.…”

Section: Discussionmentioning

confidence: 99%

The pattern of hospital‐community‐home (HCH) nursing in tracheostomy patients with severe traumatic brain injury: Is it feasible?

Yin

Zhou

et al. 2020

Int J Clin Pract

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Background Tracheostomy is very common in patients with severe traumatic brain injury (TBI), long‐term nursing care are needed for those patients. We aimed to evaluate the effects of hospital‐community‐home (HCH) nursing in those patients. Methods This study was a before‐after study design. Patients were divided into control groups (traditional nursing care) and HCH group(HCH nursing care). Tracheostomy patients with severe TBI needing long‐term care were included. All patients underwent a two‐month long follow‐up. Glasgow coma score (GCS), Karnofsky, Self‐Anxiety Scale (SAS) from caregiver and Barthel assessment at the discharge and two months after discharge were evaluated. The tracheostomy‐related complications were recorded and compared. Results A total of 60 patients were included. There were no significant differences between the two groups in the GCS, Karnofsky, SAS from caregiver and Barthel index at discharge((all P > .05); the GCS, Karnofsky and Barthel index were all significantly increased after two‐month follow‐up for the two groups (all P < .05), and the GCS, Karnofsky and Barthel index at two‐month follow‐up in HCH group were significantly higher than that of the control group(all P < .05), but the SAS from caregiver at two‐month follow‐up in HCH group was significantly less than that of the control group(P = .009). The incidence of block of artificial tracheal cannula and readmission in HCH group were significant less than that of control group (all P < .05). Conclusion HCH nursing care is feasible in tracheostomy patients with severe TBI, future studies are needed to further evaluate the role of HCH nursing care.

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“…These patients were all symptomatic with the heart failure and this was a single consultation, when a management plan was drawn up in collaboration with the patient and family. A study in Hong Kong assessed patients at home, followed by ongoing support in person or by telephone (42). Although there was improvement in assessed quality of life, higher patient satisfaction and lower caregiver burden at 12 weeks, there was no difference in symptom distress or functional status (42).…”

Section: Heart Failurementioning

confidence: 99%

Improving patient outcomes through palliative care integration in other specialised health services: what we have learned so far and how can we improve?

Oliver

2018

Ann. Palliat. Med.

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Palliative care has been increasingly shown to improve patient outcomes, in particular symptom management, quality of life and patient and family satisfaction. This has been shown within the care of people with cancer, neurological disease and heart failure but the methods by which palliative care is introduced earlier in the diagnosis is still complex. There are different models of increasing integration- care solely by the specialist, referral to other professionals or members of the team as necessary or an integrated model where palliative care interventions occur early in the disease progression. The evidence for the effectiveness of early involvement is being developed. The challenge for the future is increasing the awareness of professionals, patients and families that palliative care may be helpful and may improve the quality of life, and maybe the survival, of patients. The complex team interactions need to be acknowledged and all professionals involved to be focussed on improving the outcome for the patient and family.

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Effects of a Home-Based Palliative Heart Failure Program on Quality of Life, Symptom Burden, Satisfaction and Caregiver Burden: A Randomized Controlled Trial

Abstract: The HPHF program is effective in enhancing the QOL of ESHF patients, satisfaction with care, and caregiver burden. The program has potential to reduce distress for some of the symptoms.

Cited by 68 publications

References 55 publications

The pattern of hospital-community-home (HCH) nursing in tracheostomy patients with severe traumatic brain injury: is it feasible?

The pattern of hospital-community-home (HCH) nursing in tracheostomy patients with severe traumatic brain injury: is it feasible?

The pattern of hospital‐community‐home (HCH) nursing in tracheostomy patients with severe traumatic brain injury: Is it feasible?

Improving patient outcomes through palliative care integration in other specialised health services: what we have learned so far and how can we improve?

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