Effects of personal characteristics, disease uncertainty and knowledge on family caregivers' preparedness of stroke survivors: a cross‐sectional study

Liu, Juanjuan; Liu, Qi; Huang, Yanjin; Wang, Wen; He, Guoping; Zeng, Ying

doi:10.1111/nhs.12743

Cited by 31 publications

(40 citation statements)

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“…Their PCS score was 2.13±0.77 (Petruzzo et al, 2018) and 2.11±0.76 (Vellone et al, 2020) with a possible range of 0.00 to 4.00. Contrary to this current study, a study of Chinese family caregivers for stroke patients demonstrated a considerably low score for their preparedness (M=4.42 of 32.00), indicating that the family caregivers were not well prepared (Liu et al, 2020). The low level of preparedness occurred due to family caregivers' inadequate training for their caregiving skills and education (Maheswari & Mahal, 2016).…”

Section: Discussioncontrasting

confidence: 86%

“…It is essential to investigate the caregivers' preparedness as the preparedness has been shown to predict caregiving rewards and improve family caregivers' mental health as well as patients' quality of life. The preparedness of family caregivers has been confirmed in the previous studies from New York (Otto et al, 2020), Ohio (Mazanec, Reichlin, Gittleman, & Daly, 2018), China (Liu et al, 2020), India (Maheswari & Mahal, 2016), and Italy (Petruzzo et al, 2018, Vellone et al, 2020. However, they only focused on preparedness for a specific disease such as stroke, congestive heart failure, and cancer.…”

mentioning

confidence: 68%

“…The low educational level could affect the family caregivers' ability to communicate effectively with the health care providers. The higher the degree of education, the greater the preparedness since they had a more excellent opportunity to improve awareness and expertise and gain more accurate caregiving information (Liu et al, 2020).…”

Section: Discussionmentioning

confidence: 99%

“…Uncertainty about cancer is considered a significant source of psychological distress (Guan, Santacroce, Chen, & Song, 2020). Besides this, the degree of severity of the disease also influences the caregivers' preparedness (Liu et al, 2020;White, Barrientos, & Dunn, 2014). The family caregivers felt severe pressure, burdened, and anxiety about their patients' disease.…”

Section: Discussionmentioning

confidence: 99%

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Preparedness among Family Caregivers of Patients with Non-Communicable Diseases in Indonesia

Sari

Nirmalasari

2020

Nurs. Med. J. Nursing

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Background: Family caregivers spend 24 hours a day looking after and assisting patients. However, they are not always adequately prepared for all the problems they face. There is a lack of evidence exploring caregivers’ preparedness among family caregivers of patients with non-communicable diseases in Indonesia.Purpose: This study aimed to identify caregivers’ preparedness among family caregivers of patients with non-communicable diseases.Methods: This was a cross-sectional study conducted on 120 Indonesian family caregivers for patients with non-communicable diseases, who were selected using a purposive sampling technique. Data were collected using the Indonesian version of the Preparedness for Caregiving Scale (PCS) which had been validated before its use. The possible scores of this tool ranged from 0.00 to 4.00. The higher the score, the more prepared the family caregivers were. Data were analyzed using one way ANOVA .Results: Family caregivers reported feeling of moderately prepared for caregiving. The score of family caregiver preparedness for patients with diabetes, cancer, and chronic kidney disease were 2.97±0.42; 2.83±0.40; 2.89±0.49, respectively with possible range from 0.00 to 4.00. There were no differences on the caregivers’ preparedness among family caregivers of patients with non-communicable diseases (p=0.387).Conclusion: Caregivers’ preparedness is an essential element of patient care. Nurses have to be proactive in assessing each family caregiver’s preparedness to enhance the quality of life of both the family caregivers and the patients themselves, so that they can be empowered as a source of nursing care.

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Section: Discussioncontrasting

confidence: 86%

mentioning

confidence: 68%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

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Preparedness among Family Caregivers of Patients with Non-Communicable Diseases in Indonesia

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Nirmalasari

2020

Nurs. Med. J. Nursing

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“…Not all workplaces accommodate such a sudden need for short, much less extended, time off. Thus, this may adversely affect the overall family income, which can become part of a feedback loop affecting the other three spheres of influence and health: social, psychological, and physical (Liu et al , 2020).…”

Section: Methodsmentioning

confidence: 99%

Burdens among familial caregivers of stroke survivors: a literature review

Suksatan

Collins

Koontalay

et al. 2021

WWOP

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Purpose This paper aims to identify and examine burden(s) among stroke survivors’ familial caregivers for the purposes of future mitigation of such burdens. The purpose is so because these caregivers become the persons responsible for monitoring the daily living activities of their patients and are thus tasked with providing and managing a whole host of recovery, therapy and re-integrative activities to rebalance and re-establish the physical, mental and social well-being of patients. Design/methodology/approach This literature review summarized and synthesized existing literature about the burden(s) caregivers experience and the effects upon them across four primary spheres of influence. Findings Familial caregivers of stroke survivors suffer from high levels of “care burden” because they are the primary participant in the planning and provisioning of care to the patients. Care burden is examined across four primary spheres of influence: physical, psychological, social and economic impacts. The current review shows that familial caregivers experience substantive impacts across all four spheres. Originality/value A professional multidisciplinary team should support caregivers of stroke survivors. To do this, support should be considered among the patient’s overall family system, as well as expanded to address and consider the specifically designated caregivers’ social circles which at a minimum often consists of co-workers, friends and inter-familial relationships. Ideally, caregiver support would also consist of medical and professional case workers that can address further, and in an integrative delivery approach, all four of the highlighted spheres of influence to establish a “best practices” orientation to familial caregivers.

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Family Care Partner's Preparedness in Caring for Hospitalized Persons With Dementia

Paudel,

Al Harrasi,

Kuzmik

et al. 2024

Int J Geriat Psychiatry

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ObjectivesTo examine care partner preparedness in caring for recently hospitalized persons with dementia and care partner characteristics associated with preparedness at discharge, 2 months, and 6 months post discharge.MethodsStepwise regression in a sample of 461 care partners of hospitalized persons with dementia who participated in the Fam‐FFC clinical trial.ResultsOn average, care partners were 61.81 years old (SD = 14.19) and primarily female (n = 334, 72.5%). Care partners reported having some preparedness in general and it increased from discharge (23.75, SD = 6.78) to 2 months (24.5, SD = 6.49) and 6 months (26.35, SD = 6.73). Multiple care partner characteristics were associated with preparedness at discharge [age (b = −0.071; p < 0.001), burden (b = −0.283; p < 0.001), and depression (b = −0.284; p < 0.01)], 2 months [burden (b = −0.226; p < 0.001), strain (b = −0.144; p < 0.05), depression (b = −0.185; p < 0.05)] and 6 months [burden (b = −0.164; p < 0.01), strain (b = −0.183; p < 0.05), depression (b = −0.279; p < 0.01)] post discharge. While care partners' feelings of greater burden and depression were associated with lower preparedness at all time points, care partners' higher age was associated with lower preparedness at discharge only and care partners' feelings of higher strain was associated with lower preparedness at two and 6 months post discharge.ConclusionFindings suggest the need to address care partners' feelings of burden, strain, and depression with tailored interventions and programs to optimize their preparedness in meeting unique care needs of hospitalized persons with dementia. Resilience‐based interventions and programs can be useful to manage feelings of burden, strain, and depression and optimize preparedness.

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Effects of personal characteristics, disease uncertainty and knowledge on family caregivers' preparedness of stroke survivors: a cross‐sectional study

Cited by 31 publications

References 31 publications

Preparedness among Family Caregivers of Patients with Non-Communicable Diseases in Indonesia

Preparedness among Family Caregivers of Patients with Non-Communicable Diseases in Indonesia

Burdens among familial caregivers of stroke survivors: a literature review

Family Care Partner's Preparedness in Caring for Hospitalized Persons With Dementia

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