Eine Analyse der individuellen Wahrnehmungs- und Bewältigungsstrategien von Menschen mit Demenz im Frühstadium ihrer Erkrankung unter Beachtung der Funktion und Wirksamkeit von Selbsthilfegruppen auf der Grundlage von Selbstäußerungen

Abstract

Problem-und FragestellungDas Bild eines Menschen mit Demenz im Frühstadium der Erkrankung 1 beginnt sich in den letzten Jahren auch in Deutschland zu wandeln. Von einer eher defizitorientierten Sicht, die auf eine Desintegration von Menschen mit Demenz fokussiert, rücken zunehmend mehr ressourcenorientierte Aspekte in den Mittelpunkt. Sie deuten eine gesellschaftliche Integration an (Altimisik, 2009;Hauser, 2006;Hauser, 2009;Lakotta, 2010aLakotta, , 2010bLakotta, , 2010cLangehennig & Obermann, 2006;Niebuhr, 2004;Sowarka, 2008;Demenz Support Stuttgart, 2010a, 2010b, 2010cDemenz Support Stuttgart, 2012;Rohra, 2011

Emotional safety of people living with dementia: a systematic review

“…We used database specific Medical Subject Headings. We also used keywords that have been published in other reviews (Farina et al, 2017;Steeman et al, 2006) or that appear in the definitions described above in other settings (Lang et al, 2008;Panke-Kochinke, 2013;Vincent, 1995;Zingmark et al, 2002). We pretested our search strategy, and three authors performed a title-abstract screening of the first 200 hits.…”

“…Two studies also included other perspectives (family members and staff members). Living with forgetfulness (Brataas et al, 2010;Brorsson et al, 2011;2013;Hung et al, 2017;Mazaheri et al, 2014;Panke-Kochinke, 2013;Sørensen et al, 2008) was related to changes such as not remembering passwords (Brorsson et al, 2011;2013) and encountering "new" places that had previously been perceived as familiar but were gradually forgotten (Sørensen et al, 2008). Another mentioned change was difficulty in focusing attention due to the presence of too many stimuli (Brorsson et al, 2013;Hung et al, 2017), e.g.…”

“…Seven main "inner conditions related to psychological aspects" were identified: "perceived self-efficacy and selfdetermination" (Brataas et al, 2010;Ericsson et al, 2013;Mazaheri et al, 2014;Panke-Kochinke, 2013), "willingness to receive support" (Panke-Kochinke, 2013), "perceived dependency on others" (Panke-Kochinke, 2013), "perceived mental stability" (Wang et al, 2015), "perceived familiarity" (Brittain et al, 2010;Brorsson et al, 2011;Duggan et al, 2008;Genoe, 2009;Genoe & Dupuis, 2011), "perceived information need" (Panke-Kochinke, 2013) and "assurance that others care for PLWD" (Brorsson et al, 2013;Cronfalk et al, 2017;Hung et al, 2017;Mjørud et al, 2017;Nijhof et al, 2013). These conditions were often reported in a context or setting related to the use of outdoor environments and to interacting with others, e.g.…”

“…Two "outer conditions related to social aspects" were identified: "opportunity to interact socially" (Brataas et al, 2010;Faith, 2014;Hansen et al, 2017;Hung et al, 2017;Hynninen et al, 2015;Mazaheri et al, 2014;Mjørud et al, 2017;Panke-Kochinke, 2013;Sørensen et al, 2008) and "receiving support" (Brataas et al, 2010;Cronfalk et al, 2017;Ericsson et al, 2013;Hung et al, 2017;Mjørud et al, 2017;Panke-Kochinke, 2013;Wang et al, 2015). The first category comprises the following three conditions related to the basics of social interaction among people: "attitude towards people living with dementia" (Brataas et al, 2010;Mazaheri et al, 2014;Mjørud et al, 2017;Panke-Kochinke, 2013), "behavior of others" (Hansen et al, 2017;Hung et al, 2017;Sørensen et al, 2008) and "living in relationships" (Faith, 2014;Hynninen et al, 2015). The second category is related to the special care situation and focuses on the implementation and receipt of support.…”

“…Therefore, based on existing research (Lang et al, 2008;Panke-Kochinke, 2013;Vincent, 1995;Zingmark et al, 2002), we defined emotional safety in the field of dementia as the experience of people living with dementia on a continuum between feeling safe and feeling threatened in the context of subjectively perceived inner and outer conditions. Panke-Kochinke (2013, 2016) provided a further basis for the concept of emotional safety by proposing the "model of inner security". This disease-specific model of actions related to coping focuses on the search for "inner security" in relationships.…”