El Rol De La Familia en La Calidad De Vida Y La Autodeterminación De Las Personas Con Trastorno Del Espectro Del Autismo

Abstract

Comunicación

The Influence of ASD Severity on Parental Overload: The Moderating Role of Parental Well-Being and the ASD Pragmatic Level

“…The study by [ 31 ] stated that the family, and specifically parents, are the first nucleus of children’s co-existence and are an important source for detecting problems in children’s development. The family, as [ 32 ] assures, becomes the main and most permanent support for individuals. However, Ref.…”

“…This is why social and family support are received at that time. It is true that, as indicated by [ 32 ], the treatment approach has been modified because while a subject-centered education by specialists was previously sought, joint collaboration is currently pursued by professionals and families. As ASD is one of the most complex disorders, given its wide variability of symptoms and needs, each family must adopt education guidelines based on their child’s characteristics.…”

“…The World Health Organization in 1996 defines quality of life as “the perception that an individual has of his place in existence, in the context of the culture and value system in which he lives and in relation to their objectives, their expectations, their norms and concerns” (p. 385). Therefore, the quality of life of not only subjects with ASD, but also of their families, is one of the main objectives to be considered for adequate intervention because as [ 32 ] points out, people with ASD require more attention given the complexity of their demands and, consequently, family overload might occur.…”

“…For this reason, Ref. [ 32 ] emphasizes the fundamental need to provide support and guidance to families with people with ASD to either help parents in the adaptation process and with emotional acclimatization, or to facilitate parents’ roles in their children’s education, especially in the early years. In another study, Ref.…”

“…Therefore, undoubtedly, a series of consequences will appear in caregivers (such as stress, depression, and misunderstanding). Studying these consequences in caregivers is a relevant tool in preserving their health and maintaining their quality of life, because the family’s active participation in the development process of the child with ASD does not imply ignoring the study of the family’s support needs [ 32 ].…”