Elderly Mothers of Adult Children with Intellectual Disability: An Exploration of a Stress Process Model for Caregiving Satisfaction

Abstract

The findings of this study shed light on the development of intervention strategies for elderly mothers who provide care permanently to adult children with intellectual disabilities.

The Impact of Affiliate Stigma on the Psychological Well‐Being of Mothers of Children with Specific Learning Disabilities in India: The Mediating Role of Subjective Burden

“…Models to understand the stress process have been widely used in the West to examine the stress processes of family caregivers to individuals with mental illnesses (R€ usch et al 2009), IDD (Werner & Shulman 2013 and SLD (Antshel & Joseph 2006). However, only two studies from Asia, one from Hong Kong (Mak & Ho 2007) and the other from Korea (Kim & Chung 2015) have explicitly stated using a stress process model in the context of studying mothers of children with disabilities. In the absence of published literature on parents' experience of caring for a child with SLD in India, we present findings from other forms of neurodevelopmental disorders such as ADHD, ASD and IDD to contextualize our study.…”

An exploration of care‐burden experienced by older caregivers of adults with intellectual disabilities in Ireland

“…In Ireland, 66 years is retirement TA B L E 1 Socio-demographic characteristics of respondents, n = 30 age and as approximately 70% were above or at this threshold, it was expected that a large proportion of this population would not be employed. Comparisons with the existing literature are limited as often the samples were female only (Chou et al, 2010;Kim & Chung, 2016) or the samples included carers of all ages who support a family member with an intellectual disability. A female-only sample may differ as traditionally caregiving is a female role and it would be expected that a large percentage would not be employed.…”

“…Experiences of burden were also identified as a gender issue in the literature (Chou et al, , ; Kim & Chung, ). Caregiving as a largely female role appears to transcend all populations with many studies identifying a high proportion of female carers.…”

“…Experiences of burden were also identified as a gender issue in the literature (Chou et al, 2011(Chou et al, , 2010Kim & Chung, 2016).…”

The aging of families with members with intellectual disabilities

“…Researchers point out that 83.6% of PwId are cared for by family members, and almost 70% of them depend on their parents for survival, even after they become adults (12) . In this study, primary care was offered more frequently by mothers, followed by the father.…”