Emotional Burden in Parents of Children With Trisomy 21. Descriptive Study in a Colombian Population

Abstract

a b S t r a c tThe role of a parent with a disabled child can be highly demanding. There are few publications concerning parental emotional exhaustion in Latin America. The present prevalent case-controlled study evaluated the frequency of emotional exhaustion in 103 parental couples of parents of children with Down Syndrome (DS); likewise the study explores the rate of emotionally exhausted and depressed mothers in comparison with the fathers. This outcome was measured using a modified and validated version of the Maslach Burnout Inventory. The results showed a prevalence of emotional exhaustion of 52.64%. In the matched-pair analysis we found a higher chance of exhaustion in mothers in comparison with their partners. KeywordsTrisonomy 21, Emotional Burden, Parents r e S u m e n El trabajo de un padre con un hijo con discapacidad puede llegar a ser muy exigente. Existen pocas publicaciones que hacen referencia al agotamiento emocional de los padres de niños con discapacidades en América Latina. El presente estudio de casos y controles prevalentes describe la frecuencia de agotamiento emocional en 103 parejas de padres de niños con síndrome de Down. También describe las diferencias en el agotamiento emocional y depresión entre padres y madres. Este resultado se midió usando una versión modificada y validada del Maslach Burnout Inventory. Los resultados mostraron una prevalencia de agotamiento emocional del 52,64%. En el análisis apareado encontramos una mayor probabilidad de agotamiento en las madres en comparación con sus parejas.

Görme Engelli Çocuğu Olan Anne ve Babaların Çeşitli Psikolojik Değişkenler Açısından Karşılaştırılması

“…When we examined three different sub-dimensions in the Maslach Burnout Inventory, there was no significant difference between the parents for each of the three sub-dimensions in this study. This finding contradicts Jaramillo et al (2016) finding that being a mother increases the likelihood of emotional exhaustion. The authors reported that this distinction might be due to the fact that the mothers did not have a half-or full-time job-occupation.…”

Does Informal Caregiving Lead to Parental Burnout? Comparing Parents Having (or Not) Children With Mental and Physical Issues

“…This adds confusion to an already disputed literature about the impact of gender on PCg burnout. Where some studies showed increases of burnout symptoms among mothers ( Jaramillo et al, 2016 ), others did not consistently find such a gender difference (e.g., Lindahl Norberg, 2007 ). Yet, there was no evidence of males experiencing more burnout symptoms than women in a caregiving context.…”

Validation of a Chinese Version of the Parental Burnout Assessment

“…For instance, the Maslach Burnout Inventory (MBI; Maslach and Jackson, 1981), the leading measure of burnout, was firstly used by Pelsma (1989). Subsequently, several different versions of job-burnout scales were applied to assess parental burnout, such as the MBI-Human Services Survey (Demirhan et al, 2011;Jaramillo et al, 2016;Vinayak and Rohin Kaur, 2017) and the Shirom-Melma Burnout Questionnaire (Norberg, 2007;Lindström et al, 2011;Norberg et al, 2014;Beheshtipour et al, 2016).…”