Empiricaly Validated Family Intervetions for Pediatric Psychology: Sickle Cell Disease as an Exemplar

Kazak, Anne E.; Kaslow, Nadine J.; Collins, Marietta H.; Loundy, M. R.; Brown, Fuse; Hollins, Leslie; Eckman, James R.

doi:10.1093/jpepsy/22.2.213

Cited by 33 publications

(3 citation statements)

References 17 publications

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“…Twenty-seven interventions aimed to change aspects of parenting behavior including: Acceptance and Commitment Therapy (ACT) [43, 44], Cognitive Behavioral Therapy (CBT) [37, 45], Problem Solving Skills Therapy (PSST) [46, 47], coping skills training [48], multi-family therapy [24], individual family therapy [49], adapted Chronic Disease Self-Management based programs [25, 26], group meetings [27–29, 38, 50–54], residential programs [22, 55–57], an interactive online application [58], participatory training [59], and filial therapy, based on play therapy [30, 60].…”

Section: Resultsmentioning

confidence: 99%

“…Sometimes interventions were not well matched to the parent’s prior experience: some parents felt an intervention to be ‘too late’ [50], while others felt that they had already dealt with the issues that were discussed [63], that group discussions were repetitive [50, 62], or that attendance had not resulted in new learning [26]. Exposure to an intervention too early may however raise issues that parents are not ready to face [49, 53].…”

Section: Resultsmentioning

confidence: 99%

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Improving health, wellbeing and parenting skills in parents of children with special health care needs and medical complexity – a scoping review

et al. 2019

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Background Parenting children with special health care needs can be challenging particularly if children have complex conditions. Parents may struggle to manage their child’s health and their own emotions, contributing to poorer health outcomes for the family. Frequent healthcare contact presents opportunities to intervene, but current evidence review is limited. This review scopes and synthesizes interventions to improve health, wellbeing and parenting skills. Methods Using formal scoping review methodology MEDLINE, EMBASE, PsycINFO, CINAHL, The Cochrane Library, ERIC, ASSIA, HMIC and OpenGrey were searched to February 2017. Citations were double screened according to predetermined eligibility criteria. Data were extracted and synthesized on study design, population, measurement tools, and results. Results Sixty-five studies from 10,154 citations were included spanning parenting programs, other parent behavior change interventions, peer support, support for hospital admission and discharge and others. Interventions for parents of children with a wide range of conditions were included. These targeted a broad selection of parent outcomes, delivered by a wide variety of professionals and lay workers. Most studies reported positive outcomes. No serious adverse events were noted but issues identified included group and peer relationship dynamics, timing of interventions in relation to the child’s disease trajectory, the possibility of expectations not fulfilled, and parent’s support needs following intervention. Children with medical complexity were not identified explicitly in any studies. Conclusions The range of interventions identified in this review confirms that parents have significant and diverse support needs, and are likely to benefit from a number of interventions targeting specific issues and outcomes across their child’s condition trajectory. There is much scope for these to be provided within existing multi-disciplinary teams during routine health care contacts. Careful tailoring is needed to ensure interventions are both feasible for delivery within routine care settings and relevant and accessible for parents of children across the complexity spectrum. Further review of the existing literature is needed to quantify the benefits for parents and assess the quality of the evidence. Further development of interventions to address issues that are relevant and meaningful to parents is needed to maximize intervention effectiveness in this context. Electronic supplementary material The online version of this article (10.1186/s12887-019-1648-7) contains supplementary material, which is available to authorized users.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Improving health, wellbeing and parenting skills in parents of children with special health care needs and medical complexity – a scoping review

et al. 2019

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“…Such information would be extremely useful for designing supportive family interventions for adolescents with diabetes. In fact, a number of prominent pediatric researchers have noted the dearth of effective family interventions for youths with chronic disease (Drotar, 1997;Kaslow et al, 1997;Kazak, 1997).…”

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confidence: 99%

The Diabetes Social Support Questionnaire-Family Version: Evaluating Adolescents' Diabetes-Specific Support From Family Members

Greca

2002

Journal of Pediatric Psychology

116

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A Randomized, Controlled Trial of a Community-Based Support Program for Families of Children With Chronic Illness: Pediatric Outcomes

Chernoff¹,

Ireys²,

DeVet³

et al. 2002

Arch Pediatr Adolesc Med

100

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Our results demonstrate modest positive effects of a family support intervention in promoting the adjustment of children with selective chronic health conditions. Including child life specialists in a community-based intervention may be especially salient for children with chronic illnesses who have low physical self-esteem. The intervention had a similar outcome for all diagnostic groups, suggesting that it could be effective for children with any chronic illness and implemented in a variety of pediatric settings.

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Empiricaly Validated Family Intervetions for Pediatric Psychology: Sickle Cell Disease as an Exemplar

Cited by 33 publications

References 17 publications

Improving health, wellbeing and parenting skills in parents of children with special health care needs and medical complexity – a scoping review

Improving health, wellbeing and parenting skills in parents of children with special health care needs and medical complexity – a scoping review

The Diabetes Social Support Questionnaire-Family Version: Evaluating Adolescents' Diabetes-Specific Support From Family Members

A Randomized, Controlled Trial of a Community-Based Support Program for Families of Children With Chronic Illness: Pediatric Outcomes

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