Employability among people with uncontrolled seizures: An interpretative phenomenological approach

Wo, Monica Chen Mun; Lim, Kheng Seang; Choo, Wan Yuen; Tan, Chong Tin

doi:10.1016/j.yebeh.2015.02.016

Cited by 6 publications

(3 citation statements)

References 37 publications

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“…However, 57% of the US cohort had additional medical problems. Other studies have had even higher unemployment rates: A Malaysian study 13 reported 47.6% unemployment but the sample size was small (n ¼ 21) and included only those with uncontrolled seizures. Likewise, a study conducted in India 5 had an unemployment rate of 58%, but their sample population included only those with epilepsy onset in childhood.…”

Section: Discussionmentioning

confidence: 99%

A Survey on Epilepsy and Work: Profiles and Challenges

D'Souza,

Mani,

Shah

et al. 2022

International Journal of Epilepsy

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Objective Epilepsy can have a chronic course in a subgroup of people and may impact the ability to study, marry or earn a living thereby increasing significantly the burden of the illness. For a person with epilepsy (PWE), beyond seizure control, being participative and productive in life is a crucial factor for a good quality of life. The aim of the study was to explore factors that help and/or hinder PWE find work / employment. Materials and Methods Data was collected via a self-reported structured questionnaire from PWE in the age group 21 to 60 years, who had completed their education, and had a confirmed diagnosis of epilepsy for at least a year with no known psychiatric ailment or psychiatric morbidity. Binomial logistic regression was used to determine factors that impact employment. Results Sixty-three percent of our cohorts (n = 119/190) were employed. Factors that supported employment were higher education, late age of epilepsy onset, and better maternal education. The odds of being employed decreased significantly with increasing seizure frequency (odds ratio [OR] = 0.749; 95% confidence interval [CI] = 0.586–0.957) and occurrence of cluster seizures (OR = 0.348; 95% CI = 0.163–0.742; p < 0.05). Conclusion PWE can secure employment when their seizure frequency is low and epilepsy onset is after the age of 5 years. However, high job stress and cognitive and emotional difficulties are barriers and reasons for resignation from work. PWEs and their caregivers need to be empowered with psychoeducation and receive counselling support for their mood and cognitive issues to help them reach their full work potential.

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Section: Discussionmentioning

confidence: 99%

A Survey on Epilepsy and Work: Profiles and Challenges

D'Souza,

Mani,

Shah

et al. 2022

International Journal of Epilepsy

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“…[1][2][3] Patients with epilepsy (PWEs) may have a seizure while working, which can lead to accidents that may adversely affect employability. 4 A systematic review study showed the employment rate of people with uncontrolled seizures to be about 58%, where employment is one of the psychosocial parts that significantly affects quality of life (QOL), symptoms such as low self-confidence and anxiety are also commonly associated. [4][5][6][7] There was a trend showing a significant influence of depressive symptoms on social functioning, further affecting treatment outcomes and QOL.…”

mentioning

confidence: 99%

“…4 A systematic review study showed the employment rate of people with uncontrolled seizures to be about 58%, where employment is one of the psychosocial parts that significantly affects quality of life (QOL), symptoms such as low self-confidence and anxiety are also commonly associated. [4][5][6][7] There was a trend showing a significant influence of depressive symptoms on social functioning, further affecting treatment outcomes and QOL. [7][8][9] In addition, epilepsy could potentially affect their families, and caregivers.…”

mentioning

confidence: 99%

Study in the Clinical Outcomes and Quality of Life in Epilepsy Patients at Bangkok Hospital Headquarters

Yongprawat

Jarrat²,

Seeboonruang³

et al. 2020

bkkmedj

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To evaluate clinical outcomes of care for patients with epilepsy (PWEs) and assess the quality of life (QOL) for PWEs in Epilepsy Clinic at Bangkok Hospital Headquarters (BHQ). MATERIALS AND METHODS: A cross-sectional descriptive study was conducted at the Epilepsy Clinic in a tertiary care private hospital. The study population included patients with epilepsy who are over 18 years of age. It took place from July 2016 to December 2018. The clinical outcomes were assessed by the frequency of seizures and QOL. The QOL was assessed by the Thai version of QOLIE-31-P questionnaire. It comprises 38 questions about patients' health and the daily activities of patients with epilepsy. The Epilepsy Clinic's compliance with the Epilepsy Quality Measurement set (EQMs) standard was used to evaluate the patient's care process. Descriptive statistics were used in this study to determine compliance with quality measurements. A Fisher's Exact Test was used to compare the seizure frequency between baseline and 12-week follow-up and a Paired t-test statistic was used to compare QOL scores among baseline and 12-week follow-up. RESULTS: A total of 66 participants were used in our survey study. 46 (69.7%) of them were female. The mean age was 35.18±12.52 years. The average age of the first seizure onset was 27.21±13.75 years. 49 (74.2%) had a duration of epilepsy of more than 5 years. 54 (81.8%) had a bachelor degree in education. 48 (72.7%) of etiology were unspecified. 63 (95.5%) had partial or focal seizures. 58 (87.9%) of seizure frequency had no seizure or had it once in the last 3 months. All participants did not have adverse effects from antiepileptic medications. All records had compliance rates with the EQMs standard of more than 60% up to 100%. The overall mean score of QOLIE-31-P in the participants at 12-week follow-up was at a relatively moderate level and the energy subscale was lowest, while the daily activities subscale was highest. The Mood, Energy subscales and final QOL scores of patients with epilepsy had statistically significant differences between baseline and 12-week follow-up (p < 0.01). The seizure frequency indicated no significant differences between baseline and 12-week follow-up (p < 0.05). CONCLUSION: Researchers suggested that the QOLIE-31-P questionnaire for screening should become a routine practice for QOL assessment in PWEs and detection for signs of psychiatric symptoms that worsen QOL. Seizure frequency may not be the only single factor that represents a complete valid index to evaluate clinical outcomes. The EQMs standard may be applied to practice as it can resolve the missing necessary clinical data or gaps in care that may be beneficial to improve PWE patient care outcomes.

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Factors affecting the employability in people with epilepsy

Lim

Choo

et al. 2016

Epilepsy Research

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Employability among people with uncontrolled seizures: An interpretative phenomenological approach

Cited by 6 publications

References 37 publications

A Survey on Epilepsy and Work: Profiles and Challenges

A Survey on Epilepsy and Work: Profiles and Challenges

Study in the Clinical Outcomes and Quality of Life in Epilepsy Patients at Bangkok Hospital Headquarters

Factors affecting the employability in people with epilepsy

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