End-of-life care in a regional level IV neonatal intensive care unit after implementation of a palliative care initiative

Samsel, Chase; Lechner, Beatrice E.

doi:10.1038/jp.2014.189

Cited by 32 publications

(42 citation statements)

References 39 publications

(36 reference statements)

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“…There is little literature regarding the evidence-base for palliative care interventions in the perinatal or neonatal population. 5 There are several published studies characterising the infants who receive hospitalbased perinatal or neonatal end-of-life care in North America [6][7][8][9][10][11][12] and Europe. 13 Little is published regarding neonatal end-of-life care in Australia.…”

mentioning

confidence: 99%

Adequacy of palliative care in a single tertiary neonatal unit

Gilmour

Davies

Herbert

2016

J Paediatrics Child Health

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confidence: 99%

Adequacy of palliative care in a single tertiary neonatal unit

Gilmour

Davies

Herbert

2016

J Paediatrics Child Health

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“…There is a wide range of suggestions for improving the team performance that focus mainly on the need for training (27)(28) . Another important aspect is team sharing and reflection.…”

Section: Discussionmentioning

confidence: 99%

“…This particular aspect is also regarded as being an obstacle to the implementation of NPC and that comes not only from poor communication skills and conflicts between professionals, but also from existing discrepancies and the lack of administrative support and financial resources (12) . The existence of protocols was suggested because this might facilitate decision-making, procedures standardization and is regarded as a factor that facilitates the provision of end-of-life care (6,12,28) .…”

Section: Discussionmentioning

confidence: 99%

Perception of health professionals about neonatal palliative care

Silva¹,

Silva

Silva³

2019

Rev. Bras. Enferm.

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Objective: To identify the perception of health professionals about neonatal palliative care. Method: A phenomenological qualitative study, a non-probabilistic sample, of 15 health professionals from a neonatal intensive care unit in northern Portugal. Content analysis was performed. Results: Despite their lack of training in palliative care, the health professionals showed concern for the dignity, quality of life and comfort of the newborn and family. They expressed emotional and relational difficulties in following the trajectories of serious illness and death and in the ethical decisions regarding the end-of-life. Conclusion: It is emphasized that professionals are sensitive to pain and suffering and reveal dedicated and committed in the care of the newborn and family. They are available to train and embrace the current challenges posed by the constitution of pediatric palliative care teams and to help achieve an organizational culture that advances in such care.

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“…Of the eight studies, five were retrospective cohort comparisons that obtained their data from chart review, 14,16,18,20,21 one was a longitudinally followed cohort comparison that used a parental survey, 17 one was both a retrospective and longitudinally followed cohort comparison that obtained its data from chart review, 19 and one was a randomized controlled trial. 15 Only one study was conducted in Australia, 14 the rest were conducted in the United States.…”

Section: Study Characteristicsmentioning

confidence: 99%

“…The provided SPPC services varied among the studies: two provided antenatal palliative care and delivery planning 16,21 ; three provided bereavement support 14,18,19 ; four provided a Newcastle-Ottawa Scale for assessing the quality of nonrandomized studies based on the selection of the study groups, their comparability, and the ascertainment of the outcome. The greater the number (maximum 9), the higher the quality.…”

Section: Study Characteristicsmentioning

confidence: 99%

Specialized Pediatric Palliative Care in Neonates with Life-Limiting Illness: A Systematic Review

et al. 2020

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Objective The aim of this study is to assess the impact of specialized pediatric palliative care (PPC) on neonates with life-limiting conditions compared to standard care. Study design MEDLINE, PsycINFO, Cochrane Central Register of Controlled Trials, Web of Science, CINAHL, Scopus, and Embase databases were searched from January 2000 to September 2018. Randomized clinical trials, experimental or observational studies, and secondary administrative database analyses published in English, Spanish, French, and German were included. Two independent reviewers extracted data, and used the Newcastle-Ottawa Scale and the Cochrane Risk of Bias Tool for quality analysis. Discrepancies were resolved as a team. Results From the 37,788 records obtained, only eight articles met the inclusion criteria. A meta-analysis was not possible due to the heterogeneity in how the outcomes were defined; however, a qualitative synthesis of the results was possible; organizing outcomes into eight different categories: psychological, social and spiritual support; communication; location of care; symptom management; bereavement care; predicted versus actual neonatal outcomes; and parental coping, stress, and satisfaction. Conclusion Specialized versus may have an impact on neonates with life-limiting conditions and their families. More studies that evaluate the impact of specialized versus in neonates with sound statistical analysis is warranted.

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End-of-life care in a regional level IV neonatal intensive care unit after implementation of a palliative care initiative

Abstract: The implementation of a neonatal palliative care initiative was associated with increases in palliative interventions for neonates in their final 48 h of life, suggesting that such an initiative may enhance end-of-life care.

Cited by 32 publications

References 39 publications

Adequacy of palliative care in a single tertiary neonatal unit

Adequacy of palliative care in a single tertiary neonatal unit

Perception of health professionals about neonatal palliative care

Specialized Pediatric Palliative Care in Neonates with Life-Limiting Illness: A Systematic Review

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