End-of-life Decisions at Neonatal Intensive Care Units: Jordanian Nurses Attitudes and Viewpoints of Who, When, and How

Nurses' attitudes toward caring for terminally ill neonates and their families in Iran: a cross-sectional study

“…This scale has been designed by Frommelt (1991) and used for terminally ill patients of any age ( 23 ). The scale consists of 30 items, 15 of which are expressed in a positive manner ( 1 , 2 , 4 , 10 , 12 , 16 , 17 , 19 , 20 , 21 , 22 , 23 , 24 , 26 , and 29 ) and emphasize the nurses’ attitudes toward the role of families in caring for terminally ill patients; the remaining 15 items are expressed in a negative manner ( 3 , 5 , 6 , 7 , 8 , 9 , 11 , 13 , 14 , 15 , 18 , 25 , 27 , 28 , and 30 ) and are related to the nurses’ fear and stress in caring for terminally ill patients. The items are scored based on the Likert scale (completely disagree, disagree, no idea, agree, and completely agree), and the overall scores range between 30 and 150.…”

“…Accordingly, one of these advanced care modalities is end-of-life care provided for terminally ill neonates ( 2 ). This type of care is considered standard practice in NICUs ( 3 ). While providing therapeutic interventions for terminally ill neonates, caregivers suffer from the pain neonates might feel ( 4 ).…”

“…According to Iranian nurses working in NICUs, the most important obstacles to providing end-of-life care for neonates are inadequate resources and equipment, inappropriate individual and social attitudes, and defective organizational culture ( 7 ). Jordanian nurses, on the other hand, consider legal constraints as one of the obstacles to making decisions about neonates' end of life ( 3 ). The results of a study conducted in Korea suggested that the factors affecting these decisions are related to the clinical conditions of terminally ill neonates ( 8 ).…”

Neonatal Intensive Care Unit Nurses Knowledge and Attitude Toward Neonatal Palliative Care: Review of the Literature

“…On the other hand, Kyc [ 21 ] found that the medical staff had significantly more negative attitudes regarding multiple resource-related items: assistance from peers, availability of counseling, and ability to spend time with families of dying neonates. In Jordan, Raziq [ 23 ] found all nurses (96%) had a negative attitude about giving drugs for the purpose of ending the life of the neonate, and 63% continuing the current treatment without adding other drugs. The author perceived impact of nurses' end-of-life decisions on their daily lives, and the importance of religious values in the nurses' personal lives.…”

“…Another subheading emerged from the literature was the predictors of knowledge and attitude toward NPC [ 18 , 23 , 39–42 ]. Azzizdeh et al [ 40 ] revealed some correlations between several of the participants' core characteristics and NiPCAS scores.…”