Endometriosis pain and epistemic community: Mapping discourses in online discussions among sufferers

Lindgren, Simon; Richardson, Lorna

doi:10.1016/j.socscimed.2023.115889

Cited by 5 publications

(1 citation statement)

References 56 publications

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“…While the term "medical gaslighting" seems extreme, it denotes situations where healthcare providers dismiss patient concerns or symptom accounts they deem normal or manifestations of stress (Barnes, 2023). Women and minorities experience more incidences of medical gaslighting and are more likely to be dismissed or misdiagnosed when presenting with myocardial infarctions (Wu et al, 2018) or poorly understood ailments like perimenopause (Harper et al, 2022), endometriosis, and autoimmune disorders, potentially delaying diagnosis and treatment (Lindgren & Richardson, 2023;Sebring, 2021). Women with DOR experienced similar circumstances when seeking infertility diagnosis and treatment.…”

Section: Subtheme: a Demand For Holistic Carementioning

confidence: 99%

A phenomenological exploration of the mental health experiences of young women with diminished ovarian reserve

Woods,

Bray,

Campbell

et al. 2023

Research in Nursing & Health

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Infertility is a reproductive disease affecting one in six individuals that renders an individual unable to conceive. One cause of infertility is diminished ovarian reserve (DOR), which reduces the quantity and/or quality of a female's oocyte pool. Although typically indicating normal ovarian aging during the late 30s and early 40s, DOR can also impact younger women, increasing their risk for psychological distress from an unexpected diagnosis of infertility. A phenomenological approach examined the mental health experiences and perceptions of infertility‐related mental health care of young women with DOR. Women diagnosed with DOR by age 35 in the United States who experienced emotional distress during infertility were recruited from infertility‐specific social media and via snowball sampling. Participants completed a demographic survey and semi‐structured individual interview that was audio‐recorded, transcribed verbatim, and analyzed using a phenomenological approach. Ten women ages 27–41 completed the study. On average, participants were 30 years of age at the time of DOR diagnosis (age range 25–35), primarily Caucasian (90%), and married (90%). Two main themes were found: (1) Young women with DOR feel like a “forgotten community” coping with an invisible disease; and (2) Not all fertility clinics are created equal. Participants perceived their diagnosis as devastating and hopeless and urged others to find a provider with ample experience treating patients with DOR. This study helped to understand how young women with DOR perceive their mental health and identified a significant need for advancing towards more holistic infertility healthcare that encompasses both physical and mental health.

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Section: Subtheme: a Demand For Holistic Carementioning

confidence: 99%

A phenomenological exploration of the mental health experiences of young women with diminished ovarian reserve

Woods,

Bray,

Campbell

et al. 2023

Research in Nursing & Health

View full text Add to dashboard Cite

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Introduction

Tomlinson

2024

Palgrave Studies in Communication for Social Change

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This introduction explores the emergence of the global menstrual movement, tracing its roots back to the early twentieth century. Focussing on Great Britain, this chapter identifies the key aims of the menstrual movement as well as the political and educational changes this movement has inspired. Drawing on scholarly literature, it examines five topics with which the movement in Great Britain is concerned, namely, menstrual stigma, ‘period poverty’, sustainability, menstrual health conditions, as well as inclusion and intersectionality. The introduction situates the book within critical menstruation studies, feminist scholarship, social movement studies, and the broader disciplines of sociology and communication whilst also highlighting its original contribution to these areas.

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Exploring women’s chronic disease experiences: A mixed-methods analysis of endometriosis narratives

Ito,

Pascual

2024

Language and Health

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Endometriosis pain and epistemic community: Mapping discourses in online discussions among sufferers

Cited by 5 publications

References 56 publications

A phenomenological exploration of the mental health experiences of young women with diminished ovarian reserve

A phenomenological exploration of the mental health experiences of young women with diminished ovarian reserve

Introduction

Exploring women’s chronic disease experiences: A mixed-methods analysis of endometriosis narratives

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