Engaging patients and consumers in research evidence: Applying the conceptual model of patient and family engagement

Abstract

Understanding patient and consumer perspectives of research evidence is critical to engaging them in meaningful partnerships that produce actionable research findings that they can in turn use in partnership with health professionals to improve their own health and the healthcare system as a whole.

“What Is PER?” Patient Engagement in Research as a Hit

“…The instrumentalization of patients to gain access to these funds is real and represents a pressing ethical issue [1], yet even well-intentioned researchers are facing difficulties in authentically conducting PER. The song conveys that researchers' and patients' narratives are still tangential, highlighting that these communities have not yet established the necessary dialogue [13].…”

Value Co-Creation Opportunities: Managerial Transformation of Digitisation Risks into Success Factors

“…The shared information and jointly set targets for the care or treatment and the active participation of the customer in decision making and treatment are contributing to the process and end result. The customer becomes an active participant in shared decision making with shared information and targets for the treatment or service (Gionfriddo & al., 2013;Hoffmann, 2014;Carman and Workman, 2017), which consist of dialogue and mutual interests, crucial elements of value co-creation.…”

Engaging older patients with cancer and their caregivers as partners in cancer research

“…Active engagement of stakeholder partners (patients, family members, caregivers, and organizations that are representative of the population of interest in a study), as defined by the Patient‐Centered Outcomes Research Institute (PCORI), has been increasingly regarded as an essential component of research, in which stakeholder experiences and perspectives can thoroughly guide and inform research processes . The participation of stakeholder partners in clinical research makes research more meaningful and relevant, increases the generalizability and attractiveness of research findings to patients and clinicians, and aids in the translation of research findings into clinical practice . Partner engagement is mutually beneficial to partners and researchers.…”

“…[2][3][4] The participation of stakeholder partners in clinical research makes research more meaningful and relevant, increases the generalizability and attractiveness of research findings to patients and clinicians, and aids in the translation of research findings into clinical practice. 3,[5][6][7][8] Partner engagement is mutually beneficial to partners and researchers. Patient partners have reported feelings of empowerment and value, a sense of cohesiveness, and having a better understanding of research, which collectively resulted in positive attitudes toward clinical research.…”