Engaging Service Users and Carers in Health and Social Care Education: Challenges and Opportunities in the Chinese Community

Yeung, Yuet-Wah Echo; Ng, Siu-Man

doi:10.1080/02615479.2010.491542

Cited by 11 publications

(11 citation statements)

References 38 publications

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“…They further reference an increased questioning by service users and carers regarding who benefits from social care research. Building upon Arnstien's ladder of citizen participation and other such models (Warren, 2007;Green and Wilks, 2009;McLaughlin, 2010;Yeung and Ng, 2011) this involvement in social 302 S. Biskin et al care has established itself along a continuum from consultation through more collaborative involvement processes to service user and carer controlled experiences. It takes place across a range of social work settings: individual care planning and service provision; commissioning, planning and development of services; organisation and management; workforce recruitment and training; student education; and research and service evaluation (Warren, 2007).…”

Section: Literature Searchmentioning

confidence: 98%

Reflections on Student, Service User and Carer Involvement in Social Work Research

Biskin

Barcroft

Livingston

et al. 2013

Social Work Education

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Introduction Researchers are increasingly being asked to include patient engagement in their research programs. Some organizations , such as the UK-based Involve [1], have begun to organize approaches to engage patients in research. This article provides a perspective on front-line involvement of a patient and caregiver in a research project focused on integrated care. My name is Frank Hanson and I have been diagnosed with multiple chronic medical issues. I have been married to my caregiver Rhene for over 50 years and we are both in our seventies. In this article we offer our perspective as patient and caregiver advisors engaged in the multi-year iCOACH (implementing Integrated Care for Older Adults with Complex Health needs) research project. Based on our experience thus far, we have provided some suggestions for including patients and caregivers more effectively. We also share a few of our thoughts and suggestions after several decades of navigating our way through the Ontario health care system. Participating as a Patient and Caregiver in a Research Project We were first engaged as participants in a small research study that included interviews with patients aged 65 and over living with multiple chronic conditions, as well as their caregivers and physicians, to ask about goals of care [2-4]. We were subsequently asked to participate in future research, and we agreed. After a meeting with the Principal Investigator to discuss what was being asked of us, we were pleased to participate as patient and caregiver advisors. We have been recipients of many benefits of the health care system, and this venue provides a way of "giving back" to society. This research also provides an opportunity for us to share experiences and help improve the health care system for others. We hope to further advocate for the patients' interest and ensure accountability, providing a practical perspective to the research study. We have participated as the sole patient and caregiver representatives in quarterly meetings with the overall team of iCOACH investigators. There have also been two three-day, in-person study team meetings. From time to time we are called upon to share our thoughts with the team, usually on specific areas that involve the patient/caregiver experience. We have also provided direct feedback on patient and caregiver surveys and interview guides used by the team. How to Ensure a More Successful Engagement of Patients and Caregivers on a Research Team The experience for all parties has been a continuous learning curve and is evolving. Although our experience has been mostly positive, there have been a number of challenges. This is an entirely new experience for us and there has been much to learn in order just to participate. It has also been a challenge for the professional researchers to engage lay people in their research. We offer here some suggestions for ways to improve the present platform to become more meaningful. At the outset of the study, we felt that we could not fully participate in team meetings because w...

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Section: Literature Searchmentioning

confidence: 98%

Reflections on Student, Service User and Carer Involvement in Social Work Research

Biskin

Barcroft

Livingston

et al. 2013

Social Work Education

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“…While the research shows tensions between larger, traditional mainstream provision and smaller, specialist community support initiatives, it also demonstrates the value of these small organizations for improving mainstream services if the gap can be bridged (Mir and Tovey ; Yeung and Ng ; Papadopoulous et al . ; Merrell et al .…”

Section: Intersections Between Mainstream and Specialist Support – Brmentioning

confidence: 99%

“…In his comparative study of the expectations of support among White British and Asian‐Indian older people in Britain, Sin (: 216) notes that, ‘a person's perception of the adequacy or quality of support is inevitably influenced by his or her expectations of the type, frequency and source of support preferred or required’. This was true for BME communities, LGB people, people from certain faith groups and asylum seekers and refugees, as the research studies suggested that all feared discrimination or misunderstanding, had low expectations of the suitability or accessibility of support and even feared interventions from large, generalist or mainstream providers (Price , ; Mir and Tovey ; Sin ; Yeung and Ng ; Cronin et al . ; Papadopoulous et al .…”

Section: Limitations Of Mainstream Supportmentioning

confidence: 99%

“…The issue of confidentiality and mental health stigma was found in research on orthodox Jewish people in the UK, South Asian people, Irish older people and for Somali older men (Loewenthal ; Silveira and Allebeck ; Cant and Taket ). Yeung and Ng (: 294) conclude that, ‘the cultural issues about shame, losing face and other traditional Chinese beliefs … need to be thought through carefully when planning [for] this marginalised community’. Further complexities around mental health, stigma and gender were found for South‐Asian women (Batsleer et al .…”

Section: Limitations Of Mainstream Supportmentioning

confidence: 99%

“…; Moriarty ). Studies suggest that user and carer groups can be instrumental in providing support for people from South‐Asian and Chinese communities to be aware of available mainstream services and to influence how that support meets the needs of the particular group (Mir and Tovey ; Yeung and Ng ). A study of the health and social care experiences of Ethiopian refugees and migrants in the UK showed that, ‘participants reported Ethiopian community organisations often played a crucial role in advocating for them and helping them access statutory services’ (Papadopoulous et al .…”

Section: Intersections Between Mainstream and Specialist Support – Brmentioning

confidence: 99%

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Micro‐provision of Social Care Support for Marginalized Communities – Filling the Gap or Building Bridges to the Mainstream?

Needham

Carr

2015

Soc Policy Adm

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As English social care services reconstruct themselves in response to the personalization agenda, there is increased interest in the contribution of micro‐providers – very small community‐based organizations, which can work directly with individuals. These micro‐providers are assumed to be able to cater for the ‘seldom heard’ groups which have been marginalized within mainstream social care services. This article reviews recent literature from the UK published in peer‐reviewed journals from 2000 to 2013 on support provision for people with protected characteristics under the Equality Act 2010. It considers the marginalising dynamics in mainstream, statutory social care support provision, and how far local community, specialist or small‐scale services are responding to unmet need for support and advice among marginalized groups. The review found that there is a tradition of compensatory self‐organization, use of informal networks and a mobilization of social capital for all these groups in response to marginalization from mainstream, statutory services. This requires recognition and nurturing in ways that do not stifle its unique nature. Specialist and community‐based micro‐providers can contribute to a wider range of choices for people who feel larger, mainstream services are not suitable or accessible. However, the types of compensatory activity identified in the research need recognition and investment, and its existence does not imply that the mainstream should not address marginalization.

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Revisiting Social Work with Older People in Chinese Contexts from a Community Development Lens

Lai¹,

Ruan²

2019

Community Practice and Social Development in Social Work

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Engaging Service Users and Carers in Health and Social Care Education: Challenges and Opportunities in the Chinese Community

Cited by 11 publications

References 38 publications

Reflections on Student, Service User and Carer Involvement in Social Work Research

Reflections on Student, Service User and Carer Involvement in Social Work Research

Micro‐provision of Social Care Support for Marginalized Communities – Filling the Gap or Building Bridges to the Mainstream?

Revisiting Social Work with Older People in Chinese Contexts from a Community Development Lens

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