2022
DOI: 10.1192/bja.2022.64
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Epilepsy, intellectual disability and the epilepsy care pathway: improving outcomes

Abstract: SUMMARY The strong, life-long association between epilepsy and intellectual disability means that psychiatric teams, and the services they exist in, have a need for significant competencies in the field of epilepsy. This article addresses these competencies through the pathway of care. It will focus on those areas most relevant to psychiatric care and, when possible, explore where technology has begun to influence practice. The pathway leads from diagnosis through, in some cases, to mortality and support of… Show more

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Cited by 3 publications
(5 citation statements)
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“…Kerr et al (2023, this issue) argue strongly and rightly for a range of improvements, including better informed psychiatric services and rapid implementation of reliable validated technology such as the EpSMon (an epilepsy self-monitoring app). However, although a focus on psychiatric services and other important healthcare stakeholders, such as epilepsy specialist nurses and neurologists, is important and essential, it can only be the start of the improvement narrative.…”
Section: What Should Be Done To Improve Outcomes?mentioning
confidence: 99%
See 2 more Smart Citations
“…Kerr et al (2023, this issue) argue strongly and rightly for a range of improvements, including better informed psychiatric services and rapid implementation of reliable validated technology such as the EpSMon (an epilepsy self-monitoring app). However, although a focus on psychiatric services and other important healthcare stakeholders, such as epilepsy specialist nurses and neurologists, is important and essential, it can only be the start of the improvement narrative.…”
Section: What Should Be Done To Improve Outcomes?mentioning
confidence: 99%
“…Clinician-level tools focused on seizure risk, such as the SUDEP and Seizure Safety Checklist, are discussed comprehensively by Kerr et al (2023). This checklist is a validated international tool for communication and discussion of epilepsy risk.…”
Section: What Should Be Done To Improve Outcomes?mentioning
confidence: 99%
See 1 more Smart Citation
“…Kerr et al (2023), in their article on improving outcomes, explore the importance of technological advances, including apps, that can empower those with epilepsy and intellectual disability in making decisions together with their carers, thereby supporting a fulfilled life. This includes minimising risks from sudden unexpected death in epilepsy (SUDEP).…”
Section: Assistive Technology To Improve Outcomes In Epilepsymentioning
confidence: 99%
“…In brief, as clinicians, we all should keep abreast of new advances in medical technologies or we risk missing out on advancing our practice and maintaining our status in modern health care services 6 . Apps, wearables and other artificial intelligence technologies, similarly to other medical equipment utilised in clinical practice, have their own benefits and drawbacks.…”
mentioning
confidence: 99%