Erschöpfung und Überlastung pflegender Angehöriger von Krebspatienten in der palliativen Situation

Abstract

Family caregivers of terminal ill cancer patients receiving home based palliative care were interviewed at 2 measurement points. Symptoms of exhaustion and overload (Copenhagen Burnout Inventory, CBI) and caregiver burden (German version of the "Burden Scale for Family Caregivers", BSFC-10) were assessed. The physical and emotional exhaustion of the family caregivers increased over the time of care, regardless of age, gender, education and religion. Caring partners as well as caregivers with financial burden due to the care situation were more exhausted and overloaded than other caregivers. The construct "exhaustion and overload" was closely associated with psychological distress, quality of life and sense of coherence. Offering psychological support for family caregivers should be an integral part of outpatient palliative care. Furthermore it is important to discuss the financial situation of family caregivers at the beginning of home care and refer them to appropriate support services if needed.

Sense of coherence, burden and mental health in caregiving: A systematic review and meta-analysis

“…Of these 34 were published studies (Andrén and Elmståhl, 2008;Bias, 1998;Bowe, 2003;Caap-Ahlgren and Dehlin, 2002;Coe et al, 1991;Chumbler et al, 2004;Dejo Vásquez, 2007;Fan et al, 2014;Forsberg-Warleby et al, 2002;Gallagher et al, 1994;Götze et al, 2015;Gustavsson-Lilius et al, 2012;Hiyoshi-Taniguchi et al, 2014;Hsiao and Tsai, 2015;Jaracz et al, 2015;Jaracz et al, 2014;Lo Sterzo and Orgeta, 2017;Matsushita et al, 2014;Michailidou et al, 2013;Olsson and Hwang, 2002;Orgeta and Lo Sterzo, 2013;Perrin et al, 2008;Shroff, 2014;Suresky et al, 2014;Sutter et al, 2016;Tang et al, 2013;Thompson et al, 2004;Trujillo et al, 2016;Truong, 2015;Välimäki et al, 2009;Van Puymbroeck et al, 2008;Weimand et al, 2010;Wu et al, 2015;Zauszniewski and Suresky, 2010), and one was unpublished (López-Martínez, 2016). Across the 35 included studies there were 40 independent samples with 22 independent comparisons of SOC with subjective burden, 26 with depressive symptoms and 7 with symptoms of anxiety.…”

Resilience and burnout status among nurses working in oncology

“…Akyüz [19] reported results similar to those observed in this study where individuals having dependents to care for had higher ratios of emotional exhaustion and depersonalization. The role of a caregiver leads to individuals experiencing emotional exhaustion more frequently and, as a result, increases the rate of developing burnout [20, 21]. Demir et al [15] found that continuous day work reduced depersonalization, and the nurses in charge had high personal accomplishment levels.…”

Unterstützung pflegender Angehöriger in der allgemeinen ambulanten Palliativversorgung Vorarlberg, Austria aus Sicht der Pflege

“…Mehr als zwei Drittel der Pflege-und Betreuungsleistungen werden in der Familie und im Freundeskreis erbracht [8]. Sie sind dabei meist hohen Anforderungen ausgesetzt, die proportional zur Dauer der Pflege und Nähe des Todes steigen [9]. Neben der zunehmenden körperlichen, psychischen und sozialen Belastung wächst mit fortschreitender Erkrankung die Angst vor Gesundheitsverschlechterung der Betreuten.…”