Esclerosis múltiple y decisión de la maternidad: estudio observacional en pacientes portuguesas

Carvalho, Ana Teresa Pugas; Veiga, A. Mirás; Morgado, Joana Alexandra da Silva; Tojal, Raquel; Rocha, Sofía Ródenas de la; Vale, José; José, María; Timóteo, Ângela

doi:10.33588/rn.5912.2014332

Cited by 12 publications

(10 citation statements)

References 18 publications

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“…We found a high frequency of women who did not want to have children and had permanent contraception, which is in line with previous findings of a lower number of children in women with MS relative to the general population ( 3 , 8 ). Our findings also suggest that clinical variables such as MS phenotype and number of relapses are not significantly related to the decision to become a mother or not, as previously reported in the Portuguese population ( 8 ).…”

Section: Discussionsupporting

confidence: 92%

“…No statistically significant association was found for clinical variables and childbearing preferences to assess the possible concerns of the 51% of women who prefer not to have children or are undecided about having children for MS-related reasons. Our findings are similar to what is known from women with chronic illnesses, who state that the decision to become a mother is difficult and even linked to possible negative health effects ( 6 ), which include disease progression, symptoms that could potentially interfere with parenting, and interruption of treatments ( 2 , 5 , 8 ). This would suggest the need to evaluate not only clinical variables, such as those evaluated in this study, but also these women's perceptions of pregnancy.…”

Section: Discussionsupporting

confidence: 84%

“…Most women (95.04%) had RMS. The median (IQR) age at diagnosis was 29 ( 10 ) years, and the median (IQR) time since diagnosis was 6 ( 8 ) years. One hundred and thirty-three patients (94.3%) were treated with DMTs.…”

Section: Resultsmentioning

confidence: 99%

“…These can occur in relation to future offspring, such as the risk of inheriting MS ( 2 , 3 ), the risk of harm to the fetus or newborn/infant by exposure to disease-modifying therapies (DMTs) ( 3 , 4 ), and limitations in the ability to care for the children due to disability and MS symptoms ( 2 – 6 ). In relation to MS itself, the concerns described include the unpredictability of MS ( 4 , 7 , 8 ). Finally, the lack of social support has also been described as an important issue for women with MS when deciding to get pregnant ( 6 ).…”

Section: Introductionmentioning

confidence: 99%

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Fertility preferences and unmet need for family planning in women with multiple sclerosis

et al. 2022

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BackgroundMost women with multiple sclerosis (MS) have childbearing potential. Although fertility and pregnancy are not affected by MS, the fertility preferences of women with MS can change due to the risk of complications for the mother and/or adverse pregnancy outcomes resulting from the disease or its treatment.ObjectivesTo describe fertility preferences (FPs) and their associated factors, to estimate the Unmet Need for Family Planning (UNFP), use of contraceptives, and history of exposure to disease-modifying therapies (DMTs) during pregnancy in women with MS.MethodsIn a cross-sectional observational study, a random sample of women with MS were surveyed with the FP subset of the Demographic and Health Survey of Colombia. Factors associated with FP were evaluated through bivariate and logistic regression analysis. The proportion of pregnancies exposed to DMTs, UNFP, and use of contraceptives was estimated.ResultsOf the 141 women interviewed, 101 women had childbearing potential, of whom 49 did not want to have children, 38 were sterilized, 33 wanted to have more children, 19 were undecided, and 2 stated they were unable to bear children (menopause or hysterectomy). No MS-related variables were associated with the preference to have more children. Age (OR 0.91; 95% CI 0.84–0.98) and the number of children (OR 0.23; 95% CI 0.09–0.58) decreased the likelihood of desire for children. Of 116 sexually active women, 87.06 % (101) were using contraceptives, and among them, four were using fertility awareness methods and withdrawal. The UNFP was estimated at 6.03% and was not significantly different from the general population. Eighty-two pregnancies were identified, of which 48 occurred after diagnosis, and 25 were exposed to DMTs.ConclusionFertility preference in women with MS is not associated with clinical variables. A large proportion of women choose not to have children and prefer to use permanent contraceptive methods. Although the frequency of contraceptive use was high, some women have the UNFP and use low-efficacy contraceptive methods, which may result in unplanned pregnancies.

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Section: Discussionsupporting

confidence: 92%

Section: Discussionsupporting

confidence: 84%

Section: Resultsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Fertility preferences and unmet need for family planning in women with multiple sclerosis

et al. 2022

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“…Multiple sclerosis significantly hinders everyday functioning, fulfilling family, social, and professional roles, disturbs the emotional well-being of patients, significantly affects the quality of life and triggers a complex adaptation process (Carvalho et al, 2014;Ghafari, Fallahi-Khoshknab, Nourozi, & Mohammadi, 2015;Hyarat, Subih, Rayan, Salami, & Harb, 2019;Dymecka & Gerymski, 2019;Irvine, Davidson, Hoy, & Lowe-Strong, 2009;McReynolds, Koch, & Rumrill, 1999;Vukusic & Marignier, 2015), which is why self-efficacy is an important resource for this group of patients. It affects how they adapt to and manage the disease (Calandri, Graziano, Borghi, & Bonino, 2019;Eccles & Simpson, 2011;Motl & Snook, 2008;Schmitt, Goverover, Deluca, & Chiaravalloti, 2014;Wassem, 1992), physical activity and rehabilitation (Casey et al, 2018;Ferrier, Dunlop, & Blanchard, 2010;Morris, McAuley, & Motl, 2008;Motl & Snook, 2008;Sikes, Cederberg, Baird, Sandroff, & Motl, 2019) and the well-being and quality of life Guicciardi, Carta, Pau, & Cocco, 2019;Mitchell, Benito-León, Morales González, & Rivera-Navarro, 2005;Motl, McAuley, Wynn, Sandroff, & Suh, 2013;Motl & Snook, 2008).…”

Section: Introductionmentioning

confidence: 99%

Selected psychometric aspects of the Polish version of the Liverpool Self-efficacy Scale

Dymecka¹,

Gerymski²,

Bidzan³

2020

Current Issues in Personality Psychology

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BackgroundSelf-efficacy expresses the individual’s belief in their ability to take up and continue actions in order to achieve a particular result and cope with various life events. For people with multiple sclerosis (MS), self-efficacy is an im-portant resource because it affects how they adapt to the disease, and influences their motivation, health-related behavior and physical activity. It also has a great impact on their quality of life. Because of the lack of tools for meas-uring self-efficacy in Polish patients with multiple sclerosis, the goal of the current study was to develop a Polish language version of the Liverpool Self-efficacy Scale (LSES) and assess its validity and reliability.Participants and procedureA total of 175 people diagnosed with MS took part in the study. A Polish version of the LSES, the Sense of Coherence Questionnaire (SOC-29), the Resiliency Assessment Scale (SPP-25), the Health-Related Hardiness Scale (HRHS), the Acceptance of Illness Scale (AIS) and the Multiple Sclerosis Impact Scale were applied.ResultsConfirmatory factor analysis, reliability analysis using α and ω coefficients, and two measures of validity (content and criterion validity) were used in order to validate psychometric properties of the Polish version of the LSES. Our analyses confirmed a good fit of the one-factor and two-factor models.ConclusionsThe results indicate that the Polish version of the LSES is a useful and valuable tool for assessing levels of self-efficacy in Polish patients with multiple sclerosis. The scale can be used for both clinical and research purposes.

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Factors interfering with parenthood decision-making in an Italian sample of people with multiple sclerosis: an exploratory online survey

Lavorgna

Esposito

Lanzillo³

et al. 2019

J Neurol

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Esclerosis múltiple y decisión de la maternidad: estudio observacional en pacientes portuguesas

Cited by 12 publications

References 18 publications

Fertility preferences and unmet need for family planning in women with multiple sclerosis

Fertility preferences and unmet need for family planning in women with multiple sclerosis

Selected psychometric aspects of the Polish version of the Liverpool Self-efficacy Scale

Factors interfering with parenthood decision-making in an Italian sample of people with multiple sclerosis: an exploratory online survey

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