Establishing the Position of Neurosurgery Nurse Coordinator as a Catalyst for Advancing Quality of Care in a Tertiary Hospital in Israel

Savion, Inbal; Porat, Nurit; Shoshan, Yigal

doi:10.1097/jnn.0b013e31829dba48

Cited by 2 publications

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“…Given the rarity of primary malignant brain tumors, with just over 1,700 new projected cases of brain cancer diagnosed in 2014 in Australia, and an incidence of 7.2 per 100,000 ( 50 ), a neuro-oncology-specific care coordinator is understandably a very uncommon role and recurrent funding remains an ongoing challenge. The title and the constituents of the role varies considerably, as described in Europe ( 51 – 53 ), North America ( 26 ), and other regions such as Israel ( 54 ). Some of the roles focus on cancer treatments (such as chemotherapy management) versus a more holistic model of supportive care throughout the entire care trajectory.…”

Section: Discussionmentioning

confidence: 99%

Screening for Psychological Distress in Adult Primary Brain Tumor Patients and Caregivers: Considerations for Cancer Care Coordination

et al. 2015

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IntroductionThis study aimed to assess psychological distress (PD) as scored by the Distress Thermometer (DT) in adult primary brain tumor patients and caregivers (CGs) in a clinic setting and ascertain if any high-risk subgroups for PD exist.Material and methodsFrom May 2012 to August 2013, n = 96 patients and n = 32 CG underwent DT screening at diagnosis, and a differing cohort of n = 12 patients and n = 14 CGs at first recurrence. Groups were described by diagnosis (high grade, low grade, and benign) and English versus non English speaking. Those with DT score ≥4 met caseness criteria for referral to psycho-oncology services. One-way ANOVA tests were conducted to test for between-group differences where appropriate.ResultsAt diagnosis and first recurrence, 37.5 and 75.0% (respectively) of patients had DT scores above the cutoff for distress. At diagnosis, 78.1% of CGs met caseness criteria for distress. All CGs at recurrence met distress criterion. Patients with high-grade glioma had significantly higher scores than those with a benign tumor. For patients at diagnosis, non English speaking participants did not report significantly higher DT scores than English speaking participants.DiscussionPsychological distress is particularly elevated in CGs and in patients with high-grade glioma at diagnosis. Effective PD screening, triage, and referral by skilled care coordinators are vital to enable timely needs assessment, psychological support, and effective intervention.

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Section: Discussionmentioning

confidence: 99%

Screening for Psychological Distress in Adult Primary Brain Tumor Patients and Caregivers: Considerations for Cancer Care Coordination

et al. 2015

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Rehabilitation of motor dysfunction in primary brain tumor patients†

Kushner

Amidei

2015

Neuro-Oncology Practice

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In 2010 it was estimated that >688 000 Americans were living with a primary brain tumor (PBT) corresponding to a U.S. prevalence rate of approximately 221.8 per 100 000 people. Five-year survival is 96.1% in nonmalignant PBTs, 34% in malignant PBTs for all ages, and 71% in children [1985–2005]. Case fatality rates have decreased in the U.S. since the 1970's for nonmalignant PBTs and for medulloblastoma, oligodendroglioma, and astrocytoma. Statistics of increasing survival highlight the importance of rehabilitation interventions to improve function and quality of life in survivors. PBT motor dysfunction is multifactorial, occurring as a result of direct effects of tumor and/or swelling or as a result of treatments; etiologies include encephalopathy, myopathy, neuropathy, infection, poor nutrition, metabolic factors, emotional factors, impaired perception/vision/cognition and complications of immobility. Motor dysfunction may lead to: impaired mobility, impaired activities of daily living, risk for complications of immobility, falls, pain, anxiety/depression, and loss of functional independence and quality of life. Rehabilitation treatment strategies target specific causes of motor dysfunction to improve functional independence and quality of life. This article reviews current knowledge and controversy regarding the role of rehabilitation for motor disorders in PBT patients.

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Establishing the Position of Neurosurgery Nurse Coordinator as a Catalyst for Advancing Quality of Care in a Tertiary Hospital in Israel

Abstract: The study results reflect patient needs for emotional support, information, and additional education. These findings emphasize the great importance of the position of nurse coordinator in the neurosurgery department.

Cited by 2 publications

References 3 publications

Screening for Psychological Distress in Adult Primary Brain Tumor Patients and Caregivers: Considerations for Cancer Care Coordination

Screening for Psychological Distress in Adult Primary Brain Tumor Patients and Caregivers: Considerations for Cancer Care Coordination

Rehabilitation of motor dysfunction in primary brain tumor patients†

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