Estilos de manejo familiar: uma possibilidade de avaliação no transplante hepático pediátrico

Abstract

Objective: To identify the styles of family management during the experience of liver transplantation of a child, according to the Family Management Style Framework. Methods: A descriptive study with a qualitative approach, conducted by means of a secondary analysis of nine semi-structured interviews previously collected with eight families who had a child who experienced a liver transplantation. Results: From the analysis, it was possible to identify five styles of management: adjusted family, family in adaptation, struggling family, family in conflict and family in waiting. Conclusion: The model proved useful in assessing families in the context of pediatric transplant and its use is encouraged in this and other scenarios of chronic disease. Keywords: Family; Transplantation; Pediatric nursing RESUMO Objetivo: Identificar os estilos de manejo familiar durante a experiência do transplante hepático da criança, de acordo com o Family Management Style Framework. Métodos: Estudo descritivo, com abordagem qualitativa, realizado mediante uma análise secundária de nove entrevistas semiestruturadas, previamente coletadas com oito famílias que tiveram uma criança que atravessava a experiência de transplante hepático. Resultados: Pela análise, foi possível identificar cinco estilos de manejo: família ajustada, família em adaptação, família lutando, família em conflito e família em espera. Conclusão: O modelo mostrou-se útil na avaliação de famílias no contexto do transplante pediátrico e seu uso é encorajado neste e em outros cenários de doença crônica. Descritores: Família; Transplante; Enfermagem pediátrica RESUMEN Objetivo: Identificar los estilos de manejo familiar durante la experiencia del transplante hepático del niño, de acuerdo con el Family Management Style Framework. Métodos: Estudio descriptivo, con abordaje cualitativo, realizado mediante un análisis secundario de nueve entrevistas semiestructuradas, previamente recolectadas con ocho familias que tuvieron una niño que atravesaba la experiencia del transplante hepático. Resultados: Por el análisis, fue posible identificar cinco estilos de manejo: familia ajustada, familia en adaptación, familia luchando, familia en conflicto y familia en espera. Conclusión: El modelo se mostró útil en la evaluación de familias en el contexto del transplante pediátrico y su uso es incentivado en éste y en otros escenarios de enfermedad crónica. Descriptores: Familia; Trasplante; Enfermería pediátrica

Family management ofchildren who experience sickle cell disease: a qualitative study

“…In a study on the spirituality of families of adolescents with SCD (26) , it was identified that trust in God and prayers were fundamental for relief during sickle cell crises, in addition to favoring coping to overcome the current and expected unpredictability for the future. SCD, as a chronic condition, requires adaptations and readaptations, being a dynamic process marked by daily advances and challenges, where each family studied acquired their own management styles in their experiences, as seen in a survey of families who experienced liver transplantation of their children (27) . Among the families investigated here, three management styles were identified: five families in the accommodatingstyle, in which family members remain focused on seeking normality and adjustment, although they fear about the possible complications of the disease; two families in the strugglingstyle, in which family members live with parental conflict, making management difficult; and only one enduring-style family, in which family members share decisions, believe in their management skills, but over-protect their child.…”

The use of the Family Management Style Framework to evaluate the family management of liver transplantation in adolescence

“…Those are represented by knowing the need of the transplantation and receiving the transplant, both marked by the family imbalance due to the adaptations that are more intense in those periods; and two phases marked by relative constancy and stability, although still exposed to risks and uncertainties, which are waiting for the transplantation and living with it (3)(4) . The family can and should be helped in this process during all phases -and not only during crisis moments, when they normally receive more attention (4)(5)(6) .…”

Family management for pediatric transplant recipients with grandparents as caregivers: a case study

“…O FMSF tem sido aplicado, tanto no Brasil quanto internacionalmente, em diferentes situações de doença. Os resultados reforçam que ele pode ser utilizado com sucesso na avaliação das famílias de crianças com doenças crônicas e permite planejar intervenções personalizadas (2)(3)(4)(5)(6) .…”