Estudio de la calidad de vida y la función visual en niños con glaucoma en España

Abstract

Available online xxxKeywords: Childhood glaucoma Quality of life Visual function a b s t r a c t Objective: To evaluate the effect of glaucoma on visual function, as well as quality of life in children and quality of life perceived by caregivers in children up to 16 years of age. Material and methods: An observational and prospective study was designed using the questionnaire GQL-15 (Glaucoma Quality of Life) and conducted on children and caregivers. The questionnaire VFQ-25 (Visual Functioning Questionnaire) was conducted on children. Different variables of the clinical history that could influence the quality of life and visual function were recorded.Results: The study included 24 patients with a mean age of 9.13 ± 3.08 years, and included 3 with unilateral involvement, and 20 diagnosed with primary congenital glaucoma. Parents reported a worse quality of life than children. The result of the GQL-15 survey was 32.3 ± 11.56 points in children and 37.52 ± 14.59 points in caregivers (p = 0.001). The parameter most related to quality of life and visual function was the mean deviation (MD) of the visual field in the best eye. A statistically significant correlation was found between the result of GQL-15 and the mean deviation of the visual field (children: R = 0.63, p < 0.01, caregivers: R = 0.81, p< 0.001). Conclusions:Functional loss has an impact on the quality of life and visual function in children with glaucoma, although the quality of life perceived by the caregivers is worse than that perceived by the child. Pages 6 R = 0,63; p < 0,01 y cuidadores: R = 0,81; p < 0,001).Conclusiones: El daño funcional visual producido por el glaucoma tiene un impacto importante en la calidad de vida y en la función visual de los niños con glaucoma, si bien la calidad de vida percibida por los cuidadores es peor que la percibida por el niño.

The impact of childhood glaucoma on psychosocial functioning and quality of life: a review of the literature

“…The majority of studies reported possible differences in patient’s QoL and FV in relation to their VA. The results across the studies measuring VR-QoL were mostly consistent, with seven papers reporting worse QoL in cases of increasing visual field deviation [ 79 , 81 ], worse VA [ 36 , 38 , 77 – 79 , 82 ], or worse postoperative VA [ 75 ]. Though, one study found the association with VA not to be important [ 81 ].…”

“…Many of the included papers investigated associations between the main outcomes (i.e., QoL or FV) and at least one clinical, treatment, or disease-specific factor. For instance, the studies most frequently compared PF or QoL findings to glaucoma type or laterality [ 36 – 38 , 75 , 77 , 78 , 83 , 85 , 88 , 90 ], visual acuity (VA) [ 36 – 38 , 75 , 77 – 79 , 82 , 83 , 88 , 90 ], age at or duration since diagnosis [ 36 , 38 , 77 , 79 , 83 , 86 , 87 ], medication or treatment practices [ 36 , 71 , 75 , 77 – 79 , 81 – 83 , 88 ], and number and outcomes of glaucoma surgeries [ 36 , 38 , 75 , 77 – 79 , 81 – 83 , 85 – 88 ]. In relation to family and broader sociodemographic characteristics, researchers most frequently compared outcome measures to age, gender, marital status, parental education level, employment status, household income, socioeconomic status, and presence of another child with glaucoma in the family [ 36 – 38 , 75 , 77 – 79 , 81 , 83 , 85 – 88 , 90 ].…”

Primary congenital glaucoma surgery: outcomes and visual function

“…Up to half of the patients have an unpredictable prognosis and require lifetime monitoring to early recognize the causes of visual loss [31,32]. Moreover, visual impairment may have a major impact on the child's development, education, social integration and independence [33,34]. In conclusion, this study underlines the role of the growth curves in the analysis of the patient's visual function and the early detection of the causes of low vision for proper management.…”

Sobrecarga y calidad de vida en cuidadores de enfermos crónicos con base en el nivel de independencia

“…En cuanto a la calidad de vida -percepción del individuo de su posición en la vida considerando su contexto, sus objetivos, estándares y preocupaciones que se ven afectados por su salud física, estado psicológico, relaciones interpersonales, espiritualidad, etc. (Whoqol Group, 1997)-, los estudios sobre cuidadores señalan que en cuidadores ésta es más baja que la de los enfermos a quienes cuidan (Moreno et al, 2019). Entre las principales manifestaciones se encuentra la depresión/angustia y el dolor/malestar (López-Espuela et al, 2015).…”